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Is it dangerous not to treat it?


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Love it!! ;)

 

The joy and therapeutic value that her horse has brought her over the past year has been unbelievable. And it has given me some respite (something I have not had for years). Here are a couple of brief poems she wrote last month:

 

Horses

Helping to build relationships

Overcoming fears

Respect for this gentle giant

Scoring a perfect 10 overall in the Dressage ring

Exploding into the show jumping ring and racing towards the fences

Speeding up towards each and every cross country jump with boldness and determination

 

Horse Eye

A magical gleam

Stares at you with awe

A look of the future

A sign of bond and friendship

Images through the magical eye surround you

A relationship forms

Through the gleaming eye

An unexplicable feeling

Through the wonderous horse eye

 

Yes, our children are so incredibly strong and resilient. I find it amazing after all they have been through.

 

Nancy

 

I can already see the book about your daughter. Each chapter beginning w/ a poem of hers....and a dedication from her to her horse. That'd be great. I have smile on my face already. Best of luck!

 

ps Aren't our children some of the strongest people you've ever met?

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I would be interested! In fact with all of the discussion of chlorine as a trigger (my daughter does not have tics, but ocd and sensory issues) I cringe every time my kids take a bath. Our horrible DC water (which we do not drink or cook with) is treated with chloramine (chlorine plus ammonia). There is no easy way to remove this from the water beyond a couple thousand dollar whole house water purifier. (We plan to move in about a year so don't want to invest here...). I have read about vitamin C tablets as able to neutralize chloramine. But if anyone has any real info on the toxicity of chloramine or removing it- I would (I think) like to hear...

 

We use a shower filter which is supposed to filter out a lot of the chlorine. I know it helps me to not have itchy skin, I think it works. It does not help for a bath though. My Step-Dad runs the bath with all hot water and let's it cool down to the temperature that is confortable. He says the chlorine will disapate as steam. I don't know if that is true or not though....

 

http://www.inspiredliving.com/shower-filters/

 

I bought him the bath filter but he said the water did not want to flow through it nicely.

 

Susan

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Nancy, I have read Healing the New Childhood Epidemics, and I loved it. Now that I know your daughter is one of the case studies I will go back to it and look at it again. Best of luck with whatever you decide to do! From reading your posts, I can see that you have a lot to share and offer other parents. I am sure you will find the best possible way to present it, and I look forward to reading (or viewing if there is a documentary) whatever comes next.

Ellen

 

Ellen,

 

The tricky part -- as I touched on in my last post to Vickie -- is the lack of research. However, I can get around it if I tell the story through several familes (who have varying diagnoses) and discuss how they treated their children. I do like this idea. I would also love to do a companion documentary at the same time. That is another of my passions!

 

Have you read Healing the New Childhood Epidemics by Kenneth Bock, MD? It's very good! He presents a few detailed case studies (my daughter is one -- we have pseudonyms) and he goes into detail about testing and treatments. I highly recommend it.

 

Thank you for your thoughts and support!

Nancy

 

Nancy, I think you are on to something with this idea about showing the various ways infections, toxins, and other environmental triggers contribute to these disorders and I think if you made the biomedical treatment piece a big part of your focus you might have a big enough market for your book. In my quest to help my son recover from PANDAS through working with DAN doctors and a biomedical approach, I have been eager to read any books dealing with biomedical approaches to autism or related disorders and I think many parents of kids with PANDAS, autism, OCD, Tourettes, ADHD or related disorders want to hear the success stories and want to know more about causes as well. One idea for you next book might be to collect and share stories of families who have helped their children improve and/or recover from autism, PANDAS, and other related disorders through biomedical intervention. Just a thought. If you wrote a book like this one, I would be one of the first in line to get my copy! On another note, I am glad to hear your daughter likes to write, and I hope you have a chance to write something together some time. I am also looking forward to reading your recent autism book.

 

Ellen

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Nancy, these are wonderful. I can see her artistic talent. You'd make a great writing team!

 

Love it!! ;)

 

The joy and therapeutic value that her horse has brought her over the past year has been unbelievable. And it has given me some respite (something I have not had for years). Here are a couple of brief poems she wrote last month:

 

Horses

Helping to build relationships

Overcoming fears

Respect for this gentle giant

Scoring a perfect 10 overall in the Dressage ring

Exploding into the show jumping ring and racing towards the fences

Speeding up towards each and every cross country jump with boldness and determination

 

Horse Eye

A magical gleam

Stares at you with awe

A look of the future

A sign of bond and friendship

Images through the magical eye surround you

A relationship forms

Through the gleaming eye

An unexplicable feeling

Through the wonderous horse eye

 

Yes, our children are so incredibly strong and resilient. I find it amazing after all they have been through.

 

Nancy

 

I can already see the book about your daughter. Each chapter beginning w/ a poem of hers....and a dedication from her to her horse. That'd be great. I have smile on my face already. Best of luck!

 

ps Aren't our children some of the strongest people you've ever met?

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This reminds me of Horse Boy http://www.cnn.com/2009/HEALTH/04/24/autis...olia/index.html (I didn't read that book but did look glance at it at Barnes and Noble a while back).

 

I think you should put your dd and her horse on the cover! If you don't want to show her face you can make it one of those silhouettey pics or something from a distance.

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Thanks Michele! It could be fun.

 

Nancy, these are wonderful. I can see her artistic talent. You'd make a great writing team!

 

Love it!! :)

 

The joy and therapeutic value that her horse has brought her over the past year has been unbelievable. And it has given me some respite (something I have not had for years). Here are a couple of brief poems she wrote last month:

 

Horses

Helping to build relationships

Overcoming fears

Respect for this gentle giant

Scoring a perfect 10 overall in the Dressage ring

Exploding into the show jumping ring and racing towards the fences

Speeding up towards each and every cross country jump with boldness and determination

 

Horse Eye

A magical gleam

Stares at you with awe

A look of the future

A sign of bond and friendship

Images through the magical eye surround you

A relationship forms

Through the gleaming eye

An unexplicable feeling

Through the wonderous horse eye

 

Yes, our children are so incredibly strong and resilient. I find it amazing after all they have been through.

 

Nancy

 

I can already see the book about your daughter. Each chapter beginning w/ a poem of hers....and a dedication from her to her horse. That'd be great. I have smile on my face already. Best of luck!

 

ps Aren't our children some of the strongest people you've ever met?

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It would be a very different story from Horse Boy (by the way, that's a good book). Sarah is used to having her face on TV and in magazines. She's been profiled twice on Today Show, in a documentary, and on several other shows, so she's used to it. She would like to help other children who have disabilities.

 

This reminds me of Horse Boy http://www.cnn.com/2009/HEALTH/04/24/autis...olia/index.html (I didn't read that book but did look glance at it at Barnes and Noble a while back).

 

I think you should put your dd and her horse on the cover! If you don't want to show her face you can make it one of those silhouettey pics or something from a distance.

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