myrose Posted June 23, 2009 Report Share Posted June 23, 2009 Well its been a long week for us here. My daughter has been off from topamax for 14 days today. She remained tic free until yesterday. I am trying to figure out what happened because there were and are a few issues that could have caused this vocal thing to start. I need help! First is that she banged heads with another child on Friday afternoon. They hit pretty hard! We ended up taking my daughter to Arnold Palmer childrens hospital. She is okay and has a hematoma above her left eye. They gave her the okay after everything was done and said that it would drain down the face. Well it is....she started with quite an egg potruding out above her eye and the swelling continued to spread over her forehead and down her face. Today she has swelling and two black eyes and most of her face is bruised. It was quite an ordeal to say the least. Next is that the x-ray a friend had taken before we went to the hospital showed she has teeth ALL OVER coming in. You can see her molars when she opens her mouth, two of her bottom are loose and several are pushing through that we can see in the xray. Next is that I stopped giving her the allergy medicine (claritin tablets) Next is that as I mentioned in another post she has got into some "not so good food and snacks" at camp last week. Lastly......and most alarming to me is that TODAY she had some chick-fil-A at camp.....this contains MSG!!!!!!!! I sent her in with her lunch but she was asked if she wanted it and she took it. She started this vocal thing (a hmmm or grunting sound not sure how to explain it) yesterday or possibly Sunday. But today after I picked her up from camp its more noticable and constant and not as faint as it was. Also the docs at the hospital were talking about her tic dis-order (I hate when they talk in front of her) it makes her tic. She wasn't ticing though Friday after we had seen them. Just thinking it could be part of the ocd issue with her after remembering someone talk about her condition and not being able to forgot about it thus starting the tics??? I am confused! Exactly what I feared seems to have happended and that is and was that too many things happening at once would leave me confused as to what might have started it. I am leaning towards the MSG possibly aggravating itl right now because the sound is so intensified today. But I just do not know. The good news is that its not bothering her....if its not bothering her than it doesn't bother me. I should mention that we have never had vocal tics before (that we were aware of anyhow) HELP!!!!!!!!!!!!!!!!!! Link to comment Share on other sites More sharing options...
Chemar Posted June 23, 2009 Report Share Posted June 23, 2009 myrose *all* of the above are potential tic triggers so it would be very hard to single anything out IMO, altho teeth stuff and MSG are sure always biggies for my son and the head trauma could likely have set something off too. Did they check her for any signs of concussion? all you can do for now is maybe try to add some good supps, especially the magnesium and wait for things to stabilize again ((((((myrose))))))) so sorry to hear of this set back as you were being so very careful to try to set a baseline. Hope she heals quickly Link to comment Share on other sites More sharing options...
ilovedogs Posted June 23, 2009 Report Share Posted June 23, 2009 I'm sorry that things are being set back for you! I know that teeth things actually set my son off with more jaw/neck tics so that's a trigger, too. Chemar is right. Add some magnesium and wait for things to stabilize. I know that I want to get carried away with supplementation when things get out of whack but I have to remind myself that it won't help me in the long run. Praying for you and for your dd, for her tics to subside so you can get back on track! Bonnie Link to comment Share on other sites More sharing options...
myrose Posted June 24, 2009 Author Report Share Posted June 24, 2009 I will start with the magnesium tonight. I have the ionic liquid one. Hopefully this was triggered from something and it will settle down and I can identify it quickly or at least get to the bottom of it before school starts back up. Cheri...she had no signs of concussion and was cleared with x-ray only. My friends own a health and wellness center and they took an xray for us in which we took with us to the hospital after he thought he possibly saw a fracture. He couldn't say for sure (he is a chiroprator) They did not want to do a ct scan because she was already past the 3 hour window of concern and the neuro stated that they really do not like to expose children to these types of scans unless absouletly nessasary. He said that they just do not know the effects these scans will and can have on children 10 years from now. The x-ray he said is just like 3-days of sunshine. She never got dis-oriented, sleepy or vommited and acted completely normal so they gave her the okay after viewing the x-ray we brought. Thanks for all the advice, I will keep you posted. I have never seen/heard vocal tics before and its quite odd. I am just thanking the heavens above that this is not bothering her at all. Have a good night everyone Link to comment Share on other sites More sharing options...
myrose Posted June 24, 2009 Author Report Share Posted June 24, 2009 Me again.....also keep wondering about the claritin allergy tablets. I stopped them on Saturday as planned and this is when this vocal thing seemed to appear. Wonder if I should try the claritin tabs tomorrow just to see?? Link to comment Share on other sites More sharing options...
abbe Posted June 24, 2009 Report Share Posted June 24, 2009 [quote name='myrose' Wendy, Why did you go off claritan? Just curious. I would go back on to see if that stops it right away. If it does you will know it is allergies. Then you can decide your plan of attack. When Nick first started with this mess he had a throat clearing tick. I did the acetyl l carnitine and it never ever came back. Even when the other tics come and go it never came back. He used to get a whole capsule and now I give him one half. abbe Link to comment Share on other sites More sharing options...
colleenrn Posted June 24, 2009 Report Share Posted June 24, 2009 Myrose- I was wondering if it could be that her teeth are coming in b/c when you have a tooth pulled, or it falls out, or any dental work done, the strep that could be lingering in the mouth has a quick entry into the body, thus causing an exacerbation. Just a thought. Colleen Link to comment Share on other sites More sharing options...
abbe Posted June 24, 2009 Report Share Posted June 24, 2009 [quote name='myrose' date='Jun 23 2009, 0 Yes I would without a doubt. You have nothing to lose and valuable insight to gain. abbe Link to comment Share on other sites More sharing options...
myrose Posted June 24, 2009 Author Report Share Posted June 24, 2009 Although I was not with my daughter long this morning before I dropped her off at camp....I didn't hear the vocal. I did give her the liquid ionic magnesium lastnight before bed (1/2 the adult dose, 1 tablespoon). I will have to see how she is when I pick her up in a few hours. I also thought about the teeth issue and I now realize that the teeth have been like that for some time so wondering if it is the teeth, why would it effect her now? The only thing that happened immediately before the vocal started was the head injury on Friday afternoon...vocal started Saturday sometime but was very mild. Yesterday it intensified. (this was also when she was exposed to MSG) I will update after I spent more time with her today and talk with the girl who is in charge of camp. Funny how I waited all morning even the whole ride in the car to camp and I heard nothing.....yesterday was a totally different story! She has two full black eyes now but just the lids not underneath and the swelling is still there but not as bad and appears to be going down. Link to comment Share on other sites More sharing options...
myrose Posted June 25, 2009 Author Report Share Posted June 25, 2009 Just wanted to quickly update on her....I picked her up from camp and they said she was fine all day. I anxiously got in the car for the ride home and kept the radio off on purpose. NOTHING! Not a peep. We went out for a walk after dinner and nothing all night and now she is asleep! I am more confused than EVER before. I am wondering now if it was a tic to begin with??????????? This is all just too confusing for me at this time! I am happy though, I will see what tommorow brings and hopefully we can get back on track with being tic free. I gave nothing today...as far as magnesium and everything. I will continue with the claritin tmorrow morning....she was rubbing her eyes all afternoon again and said they kept getting watery. Link to comment Share on other sites More sharing options...
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