Stress Call!

[faith]

Hi all,

I would like to call out and ask if anyone might have an insight to why my son's vocal has really kicked up yesterday after about two weeks of being way down (and before that, the usual, not good, not bad). I can't believe this is just coincidence, it seems as tho something has really irritated his system. I'm not new at this game so the usual stuff I pretty much have a handle on. But my suspicion is that I gave him a 600 mg. NAC (N-acetyl cysteine) capsule when he came home from school on Friday (yesterday). I haven't given him this in many months, but decided to start it again because his facial/eye tic was kicking up and I was realizing that he has just had way too much computer time lately so I was keeping him off screens for several days and my brainy idea was that maybe the NAC would help kind of detox any residual sensitivity from his system. I have given him this supplement before (I gave it to him last summer for about three months) and don't think I noted any problem one way or another so didn't think it could hurt. I know he was fine on Thursday, and I don't think I noted anything unusual Friday morning at breakfast, and when he came home from school I didn't really pay attention, just gave him the NAC right away, so this waxing (and I mean WAXING) that I noticed started Friday afternoon. If it was a reaction from the NAC, could it start right away? It does state that NAC is delivered to the system right away and does cross the blood brain barrier. Does anyone know enough about NAC to comment on what this supplement does that may have stirred up his system so much? I am wondering if it didn't kick around some toxic stuff from his liver or something like that? I am under the impression that N-acetyl cysteine helps promote glutathione and helps detox mercury. But could one capsule cause this havoc? Could this be an initial reaction from giving too much on the first dose, kind of like some have when starting the Bontech vits? This vocal is unbelievably strong right now, he is "huh"ing every 5 seconds and quite loud. I don't recall it ever being like this.

 

I'm really scared. For the first time, I'm afraid I won't be able to send him to school. Any insight would be greatly appreciated.

 

Faith

[ilovedogs]

Hi all,

I would like to call out and ask if anyone might have an insight to why my son's vocal has really kicked up yesterday after about two weeks of being way down (and before that, the usual, not good, not bad). I can't believe this is just coincidence, it seems as tho something has really irritated his system. I'm not new at this game so the usual stuff I pretty much have a handle on. But my suspicion is that I gave him a 600 mg. NAC (N-acetyl cysteine) capsule when he came home from school on Friday (yesterday). I haven't given him this in many months, but decided to start it again because his facial/eye tic was kicking up and I was realizing that he has just had way too much computer time lately so I was keeping him off screens for several days and my brainy idea was that maybe the NAC would help kind of detox any residual sensitivity from his system. I have given him this supplement before (I gave it to him last summer for about three months) and don't think I noted any problem one way or another so didn't think it could hurt. I know he was fine on Thursday, and I don't think I noted anything unusual Friday morning at breakfast, and when he came home from school I didn't really pay attention, just gave him the NAC right away, so this waxing (and I mean WAXING) that I noticed started Friday afternoon. If it was a reaction from the NAC, could it start right away? It does state that NAC is delivered to the system right away and does cross the blood brain barrier. Does anyone know enough about NAC to comment on what this supplement does that may have stirred up his system so much? I am wondering if it didn't kick around some toxic stuff from his liver or something like that? I am under the impression that N-acetyl cysteine helps promote glutathione and helps detox mercury. But could one capsule cause this havoc? Could this be an initial reaction from giving too much on the first dose, kind of like some have when starting the Bontech vits? This vocal is unbelievably strong right now, he is "huh"ing every 5 seconds and quite loud. I don't recall it ever being like this.

 

I'm really scared. For the first time, I'm afraid I won't be able to send him to school. Any insight would be greatly appreciated.

 

Faith

Faith, I was looking for a hugging smilie but couldn't find one. Yes, NAC promotes glutathione in the body helping to detox the liver. I can't imagine that one pill could have that reaction. I remember when Griffin was given 5-HTP last summer and his OCD went berserk and it was very scary for us. When I finally realized it was the supplement it took a few days for him to settle down once I took him off of it. Are you sure there wasn't/isn't some other trigger? Environmental allergy, etc? Have you tried the L-carnitine ever for his vocals? I know others have had success with it. But, you may be leary of trying a new supplement right now until a pattern is established, at least that's how I'd be. How does he feel about his vocal tic? I wish I could help you out about the NAC info but I don't give it to Griffin, I take it myself but only when I have Tylenol since Tylenol can damage the liver. Praying it clears up this weekend so you don't have to stress over school.

 

Bonnie

[CSP]

Hi Faith,

 

 

((((((((BIG HUG))))))))))))

 

My son has had waxings with NAC, l-carnitine, and taurine. He reacted quickly too.

 

I have to say I have taken every vit. out except vit.E/selenium. He does not wax like he did when I would have him on vit. He has waxing but it is less then before and does not last but a day or two. While on the vit. or an introduction to a new vit. he would wax and it would last weeks. I don't know if he is just more relaxed because I have let up on him or what.

 

I just make sure he eats very well and just about homemade everything.

 

CP

[ilovedogs]

Hi Faith,

 

 

((((((((BIG HUG))))))))))))

 

My son has had waxings with NAC, l-carnitine, and taurine. He reacted quickly too.

 

I have to say I have taken every vit. out except vit.E/selenium. He does not wax like he did when I would have him on vit. He has waxing but it is less then before and does not last but a day or two. While on the vit. or an introduction to a new vit. he would wax and it would last weeks. I don't know if he is just more relaxed because I have let up on him or what.

 

I just make sure he eats very well and just about homemade everything.

 

CP

Homemade everything???? I wish I could get to this point! We are constantly on the run and I allow way too much junk in Grif's diet. Would you believe I was actually happy when he got sick to his stomach from drinking a Sprite too fast? I thought it would turn him away for soda for a while, it only lasted a week! OTOH, I don't see food really being a trigger for him. How do you get your 15 year old to eat so well?

PS: what benefits are there from the Vit E and Selenium are there specifically? Is there a reason you only keep those 2 supplements?

B

[faith]

Thanks for your help guys. I'm not out of the woods yet. He's still goin to town this morning, so I don't know what is going on. If anyone else has had any reaction from NAC, please let me know.

 

I should mention that we have been undergoing NAET treatments for the last couple months, so they say when you are cleared of some allergies and sensitivities, especially to some vits, then you are supposed to be able to absorb vitamins and nutrients better. this is another reason why I feel the NAC supplement may have been too much for him this time, possibly he absorbed it TOO well this time. don't know. I don't think it is any reaction or side effect from the treatment because this wax came on in between treatments, there was no reaction in the days before and we didn't go again till the day after it started. Of course, this could all be a big bad coincidence too, just don't know. I'll just have to see in a few days. does anyone think a bad reaction to a supplment could cause anything permanent? wow, I'm in a real panic mode. I should be more confident at this point. but his vocal was like 80-90% down in last two weeks, so what the heck? what a disappointment.

 

I remember having some imagined waxing from tryptophan, taurine and carnitine too in the past. but I'm sketchy on the details, not good at keeping notes, just take it day by day.

 

any other thoughts or advice on how to get rid of this faster is welcome.

 

Faith

[melanie]

Thanks for your help guys. I'm not out of the woods yet. He's still goin to town this morning, so I don't know what is going on. If anyone else has had any reaction from NAC, please let me know.

 

I should mention that we have been undergoing NAET treatments for the last couple months, so they say when you are cleared of some allergies and sensitivities, especially to some vits, then you are supposed to be able to absorb vitamins and nutrients better. this is another reason why I feel the NAC supplement may have been too much for him this time, possibly he absorbed it TOO well this time. don't know. I don't think it is any reaction or side effect from the treatment because this wax came on in between treatments, there was no reaction in the days before and we didn't go again till the day after it started. Of course, this could all be a big bad coincidence too, just don't know. I'll just have to see in a few days. does anyone think a bad reaction to a supplment could cause anything permanent? wow, I'm in a real panic mode. I should be more confident at this point. but his vocal was like 80-90% down in last two weeks, so what the heck? what a disappointment.

 

I remember having some imagined waxing from tryptophan, taurine and carnitine too in the past. but I'm sketchy on the details, not good at keeping notes, just take it day by day.

 

any other thoughts or advice on how to get rid of this faster is welcome.

 

Faith

 

 

 

Oh I understand I tried the NaC it didnt take long for behavior to pop up and his face was flushed I thouht the taurine was good for vocal tics and the lcartine too ??? your kidding me how do you know whats good and whats bad Im not sure the vitamine route is ever going to work maybe I should just give up Nothing works NOTHING!!!

[CSP]

Bonnie,

 

His spectraCell tests have him really good on all vit. and the only thing not good was antioxident % so I decided to give it a try and stop all vit. to see how he would do. I only kept the vit.E/sel. because it was part of his antioxident suggestions. CoQ10 had been a tic trigger so I dumped that one, and only stayed with vit.E/sel. So far so good.

 

He does well on the diet because of the really bad allergy to peanuts. He knows not to eat anything someone has given him because he has already had a trip to the hosp. because someone didn't know what they were talking about, and gave him something to eat with peanuts. I think he would cheat if he did not have the allergy.

 

Yep... homemade bread products, yogurt, ice cream made with raw milk, and candy. All other foods are fresh fruit ,veggies, and sandwich meat cut from a chix, turkey, and beef. Homemade sauces for sloppy joe's.

 

CP

[ilovedogs]

Hi Faith, I was thinking about you this AM. How's it going, have you seen any waning of the vocal yet? What about school?

Praying this wanes quickly so you can figure out if the NAC was the trigger or not.

 

Bonnie

[faith]

Thanks Bonnie,

It seems like he's still going strong upon returning from school today. He seemed a little less this morning so I sent him to school (altho I gave him the option of going, I wouldn't have minded him getting some more sleep and keeping an eye on him). Last nite we went to a chinese buffet and it seemed a little less and he remarked about it, but as I type this, he is grunting away in the other room while doing homework. Homework is a nightmare right now, he seems really agitated and I think I'm realizing now that even his behavior was a little off since I gave him that NAC capsule, he did act somewhat hyper and more annoying than usual on Saturday. I hate to accuse, but I can only assume this was the problem. I am also aware that the teacher got annoyed at him today, she wrote a note in his planner that he was given 25 minutes to look up seven vocabulary words and did not get it done (I got the story from his friend that he took his sweet time unpacking and then decided to walk across the room and swat another friend in the head for laughs)

 

I'm recalling (and checked my post) that when he spiked up in November when I gave him some tryptophan for the first time, it looks like I remarked that his vocal was still waxing a week after giving and then stopping that supplement. I sure do hope whatever is going on actually IS from this or something and not just my dumb luck. my little family feels like its falling apart with all my son's issues, we are all so stressed with each other and not handling our frustrations well at all.

I'll certainly let you all know what happens.

 

Faith

[Chemar]

Last nite we went to a chinese buffet .......

 

 

Faith

 

MSG????

 

hope things calm soon Faith. We have never used NAC so I cant comment on that

[CSP]

Faith,

 

I don't remember, but does your little buddy have a sulfate metabolic issue? Just wondering why you used the NAC.

 

CP

[kim]

CP's sulfate metabolic issue remark, was what I was thinking regarding the NAC (sulfur supp) too. Especially in Melanie's sons case, NAC can have effects of blood pressure too. I would be curious to know how much NAC you gave your son Melanie and how long before you saw that reaction. Can either of you say how your boys react to high protein foods eggs, meat, etc? Do they seem to prefer carbs? I have one that avoids at all costs, and one that LOVEs his steak, ribs, etc. Blood ammonia is something that you can have checked thru reg Dr.

 

In this situation, ammonia levels can rise due to protein intake, that's why I was asking about the diet. These negative reactions can be huge clues too!

 

 

Check out this page

 

http://74.125.95.132/search?q=cache:0gVAX8...=clnk&gl=us

 

CBS (Cystathione-Beta-Synthase) – helps to convert homocysteine into glutathione (major antioxidant in the body). If a defect exists it will affect ammonia detoxification because excess sulfur in the body (endogenous or exogenous sources, ie. supplements like MSM, Epsom Salt or medications such as DMPS) can be converted to ammonia. Also, this defect can affect an enzyme called G6PDH which has negative effects on blood sugar metabolism and red blood cell formation and blood vessel stability (easy bruising, bleeding, broken blood vessels).

[melanie]

CP's sulfate metabolic issue remark, was what I was thinking regarding the NAC (sulfur supp) too. Especially in Melanie's sons case, NAC can have effects of blood pressure too. I would be curious to know how much NAC you gave your son Melanie and how long before you saw that reaction. Can either of you say how your boys react to high protein foods eggs, meat, etc? Do they seem to prefer carbs? I have one that avoids at all costs, and one that LOVEs his steak, ribs, etc. Blood ammonia is something that you can have checked thru reg Dr.

 

In this situation, ammonia levels can rise due to protein intake, that's why I was asking about the diet. These negative reactions can be huge clues too!

 

 

Check out this page

 

http://74.125.95.132/search?q=cache:0gVAX8...=clnk&gl=us

 

CBS (Cystathione-Beta-Synthase) – helps to convert homocysteine into glutathione (major antioxidant in the body). If a defect exists it will affect ammonia detoxification because excess sulfur in the body (endogenous or exogenous sources, ie. supplements like MSM, Epsom Salt or medications such as DMPS) can be converted to ammonia. Also, this defect can affect an enzyme called G6PDH which has negative effects on blood sugar metabolism and red blood cell formation and blood vessel stability (easy bruising, bleeding, broken blood vessels).

 

 

how do u know all of this I cant possibly figure this out!!! Ps danny is going for allergy testing at the DO today any suggestions?

Melanie

[faith]

Hey CP,

Well, I don't really know about the sulfate thingy, but my bright idea was that because his facial tic seemed more than usual, I was feeling that I have been way to passive about letting him stay on computer games for long periods of time and so was keeping him off for several days. I guess I felt maybe the NAC would help detoxify any accumulation of photosensitivity or electromagnetic radiation, totally a scatter brain idea of mine, I have nothing to go on, don't even know if that is at all possible, all I know is the info that was put out by CarolynN, so was going along those lines. and since I have used NAC before with him last summer and did not seem to have any problems, I figured it couldn't hurt. Bear in mind I have also been persuing NAET, and our last treatment was for electromagnetic radiation (computer, tv,). I don't feel like I can make any connection with that treatment because this all occured between treatments. In fact, as I mentioned, his vocal had seemed to be down about 85-90% in the last couple weeks. (we had begun to suspect chocolate and he was treated for that also). My thought is that possibly his body chemistry in absorbing nutrients is more enhanced and so he could have been way more sensitive to the NAC, it is said that NAC helps move mercury out, but I did read something that stated that in doing so, NAC could cause some intensity of symptoms due to pushing mercury around. Its the only connection I can make. I just don't know, its all speculation at this point. And I do have under my belt a coincidence of reaction to tryptophan and the l-carnitine, both the times I tried those last year, it seemed he kicked up a tic. so who knows. but I think I am done trying aminos. Like you are seeming to find, I too, am feeling my son does better when on minimal supplements, I am really only sticking with Natural Calm and sometimes B6 and GABA. My feelings re the NAET are still mixed (I think I believe it is a valid modality, but the jury is still out on wether or not it will have any effect on his tics or other issues, hopefully I will hit on something and make a breakthru soon) but I am sticking with it for sticking with it's sake and would like to see it thru, if you get my drift.

 

Cheri, re the msg, we have been to this same restaraunt many times and I am not super strict with his diet except for the obvious things like artificials, colors and dairy. slip ups do not seem to aggravate him.

 

Kim, forgive me, I don't understand any of that, if you can explain it would be good, but I can only tell you he does eat carbs (natural cereals, breads) and meats, some veg and no fruits. junkfoods are kept to a minimum.

 

Faith

[kim]

Melanie,

 

how do u know all of this I cant possibly figure this out!!! Ps danny is going for allergy testing at the DO today any suggestions?

 

First off, don't get discouraged and overwhelmed. Take it in very small steps. If you go back and review some basics on NAC, you will see many ways that it could be beneficial or ways that you could see adverse reactions. Faith touched on one aspect (possible detox). Just google it, or read here, whatever. Go slow. I have to read things many many times (then go back and brush up if it's been more than a couple of weeks ). These are very complicated issues/pathways. Dr.s who are studying these things daily, don't have all of the answers. One thing that I will say, NEW INFO IS EMERGING DAILY. There is a lot of focus on "spectrum" disorders. Since SO many children are affected, there is a lot of money to be made in finding ways to help. Also, this is becoming quite a political issue now too. Answers are desperately needed, and I think that is finally being recognised. So try to hang in there.

 

Let's say that you see "behaviors" when your son has been consuming a lot of high protein foods. Since you have already seen an adverse reaction with NAC, I think this might be an area that would be really good for your son, for you to become familiar with. Stay focused on this one thing. Read a little on it each day. Then ask more questions.

 

I hope the allergy testing is helpful. let us know how it goes.