mum in a state

[jewels]

Hello all,

 

Hope to keep this quite brief, but quite alot of history of symptoms! My dd had a measles vac in Sept 2006. Two weeks later she started with soaring temp, eye blinking, walking on tip toes, spinning round, loss of eye contact etc. By Christmas she had nine different tics, and showed signs of adhd, ocd and various autistic symptoms.

Your website gave me hope, and some sanity back that we could help our little one.

We allergy tested, removed gluten, dairy, e numbers etc and became a organic household. Used nystatin, probiotics, vits/mineral, kids calm and zinc . By March she had calmed down, no tics, and no spinning toe walking.

 

A few months ago after being tic free for such along time we started more food allergy tests and lab tests. Started on food nutralization drops, and as yeast was found in stool, blood and urine test we started on nystatin and probiotics again.

 

We are in a very bad place at the moment as two days into the candida treatment our beautiful dd exploded with six different horrible tics and has become very hyper (massive temper tantrums and shouting). We are into week seven of these symptoms.

 

We are holding back the tears, but I feel helpless. Has the die-off caused these reactions or is she waxing? At the moment dd is off nystatin and we are trying mct oil, until we start a natural yeast aid being made for us as dd is only 5 and weighs 17kg.

 

Thankyou for any insight, and help. Jules, (from UK)

[Chemar]

hello

yes, die off of candida releases toxins which in turn can trigger tics etc, especially in those whose systems are already sensitive and compromised, as your dd's possibly was after the vaccine

 

I know many have used nystatin with much success, but it was actually something our physician would not rx preferring to use the diet and capryllate over a number of months to slowly but steadily control the yeast overgrowth. Since then, NOW products have come out with CANDIDA CLEAR, which I personally feel is an excellent yeast buster because of the blend of substances in it

 

I know that Kim and others who are very up on vaccination effects will likely have more input on that for you, as well as the PANDAS parents here. Whenever there is a very sudden onset of tics, and intense waxing, there is often an identifiable trigger. Tics can wax and wane, but the very dramatic changes are usually indicative of an illness, infection, or toxic/allergic trigger

 

do you have any family history of tics or Tourette?

 

also Jules, have you tried Epsom Salt baths to relax and help with the detox?

I know your daughter is still very young, but if you have access to a pediatric acupuncture facility and she is willing, that can help so very much with the fallout from the die off etc

 

I do hope your dd will stabilize again quickly. I know all too well how scary these severe waxing times can be.

[jewels]

Thanks Cheri,

 

We are trying Epsom salts bath 3 times a week with lots of bottled water, and after the baths she is soooo calm with very mild tics and sleeping well. Our Dr thinks that she has had an allergic reaction to nystatin and probiotics, so she is having a natural candida treatment made up for her weight.

 

 

The Dr also feels that she has an infection that she is fighting which is not helping. her immune system seems to be very low so we are trying natural ways to improve this.

 

We don't have any tic/tourettes family members as far as we know, however her grandad was adopted. her daddy cannot stop shaking his legs and fidgeting when he is relaxing....drives me mad.

 

Our little one has been lacto free from 12 months old, due to swollen tummy, excessive wind etc. however we have found out that she is now allergic to dairy. At two years old she caught chichen pox and was very ill. Within months of getting better she started to stammer badly. I feel now that this could have been a tic, as the stammer came and went.

 

She has a long history of virus after virus, and i do think there is a connection with her immune system and the tics etc.

 

i am home schooling at moment as she is aware of her tics (we call them our wiggles) , but misses school and is falling behind.

 

Cheri, do you know of anything that i could give to her to help with the die off?

 

Thankyou so much for your reply, Jules

[kim]

Jewels,

 

I'm wondering if your daughter had the individual measles vaccine or the combo MMR or even the newer MMR+varicella vaccine? Did she have any other illness shortly before or after the vaccine, that you remember? Even stomach bug, sore throat, cold, or had she taken antibiotics for anything prior to that vaccine, say within 1 month?

 

Had she had all of the regularly recommended vaccines before the one that appeared to trigger the symptoms?

 

Since it sounds like you have had quite a bit of testing and physician guidance, I'm wondering if your daughters vit/mineral levels have been tested? The measles vaccine is a live viral vax and vit A can play a role in recovery from naturally occuring mealsles or if there was a deficiency prior to the vaccine, I suspect there may be issues with reactions to that vax. Has your Dr. discussed anything like that with you?

 

In addition to Cheri's comments, it seems the prevailing thought is exactly what she posted, but I have also read in a few places about the candida may actually be playing some sort of protective role. I have nothing to link to that would give any good reason or explanation for that, but thought I would mention it, as part of me thinks it makes a bit of sense. If it were my child, I would ask the Dr. if we could go very slowly with the yeast treatment, try make sure that the probiotics aren't part of the problem. Another explanation may be that since the body seems to compensate for lack of neurotransmitters in various ways (one of them possibly being the formation of extra receptors) as the body starts to become more balanced, and produces closer to the normal amts of required substances, these "extra receptors" may be part of the problem that causes the an increase in symptoms.

 

Also, I know some very educated parents on an autism forum discuss using activated charcoal for die off, and I believe alka seltzer gold is supposed to be helpful. Are you a memeber of any of the autism bds? If you would like, I would be happy to give you a link to one that has some really great resources in their files section along with some wonderful parents that could probably be helpful to you.

[Caryn]

Molybdeum (hope I spelled that right?) is supposed to be good for candida die off. It helps the body eliminate the toxic overload produced by the candida. Our doc prescribed it in our son's compounded vits last summer.

Too much treatment too fast will cause a surge in symptoms. A slow die off is better.

[jewels]

Thanks for your replies,

 

Our little one had a bad reaction to her first baby vac. so we backed off and started again when she was four with a single measles (no thermasol). She has been on and off antibiotics for along time. At the time i did suspect a problem with her immune system, but dr. just kept saying all children get up to 12 viruses a year. I should have gone with my instinct on that one.

 

it is very hard in the uk to find a DAN dr. but we have found a biomedical allergy dr (private) who is great. this dr feels that the measles could of damaged her brain, and attacked her already weak immune system. Most of the tests carried out are sent to the States.

 

We have not carried out vit/mineral tests yet, as dr feels yeast is a big problem. We are also trying to treat all her food allergies as her live blood test had excessive amounts of allergen cells. dr said when her gut flora is healthier, we'll go onto next issue, and recommended no more vaccines.

 

Our other problem is that it is hard to find supplements here, so i import things from US. (wish i lived over there)

 

What i can't get my head around is why she shows autistic symptoms when she starts ticcing, has anyone noticed anything like this?

 

i have found an english product called mycocurb, is that the right product.

 

thanks again for your help and advice,

 

jules