seroquel

[Chemar]

Hi Linda and welcome

 

Having been thru the Haldol zombie phase with my dear son for a year over 2 years ago, I can only say I sure know how you feel when you say you just want your son back!(Mine was on Luvox too, very similar to Zoloft)

 

The med. withdrawal should be done VERY gradually and it is a very good idea to start the supplements soon to build his system (just NOT the seratonin elevating ones like 5HTP or SJW till he is off the Zoloft completely) but starting him on a good multivit with high Vit B plus extra magnesium/zinc/calcium and fish/flax oil capsules will work wonders. (There is very helpful advice on withdrawing from psychiatric drugs in Dr Breggin's book "Your Drug may Be your Problem"

http://www.breggin.com/yourdrug.html

(it is also available thru Amazon, Boarders etc)

 

 

Withdrawing from the meds is not a pleasant experience....BUT once it is over and your son's true personality begins to re-emerge....OH WHAT JOY!

 

All the best to you and do stay in touch with us and let us know how things are going.

[Guest kpd]

Hi,

I have been reading this site for a short time , it makes me feel better to hear that there are others in my position. My son was diagnosed 2 years ago with TS. We are trying tenex and was wondering if anyone else has used it. I do not like giving him medication but it seems to help. I tried Rescue Remedy which is homeopathic it seemed to work a little. I am just starting to finally understand this all and have tried many natural options before we have tried the tenex.(sorry to ramble,but I am so glad I found this site) Has anyone heard of or done NAET .

 

 

 

 

kpd

[Guest Jennifer Powers]

I am so relieved to have found this site. My 9 year old son has ADD and is Bi Polar. We are currently on seroquel, clondodine and lamactil. This has been a struggle since the age of 3. It has been one medicine change after another. At times I feel he would be better off without any medicines but then I worry about getting him through the day at school. School is a really big problem at this point, lack of attention and behavior problems have him a very labeled child and it seems as though they would rather not deal with him. We tried to home school, that was a disaster....Any suggestions???

[Chemar]

Hi Jennifer and welcome

 

we are glad you found this site too as we can all attest as to how much we have learned here, and how great it is to have such caring people on the board!

 

I hope you have visited the other Forum too here for ADD

 

Also you can get a lot of info from the ADD and the BiPolar forums over at BrainTalk http://www.braintalk.org

 

stay in touch!

Cheri

[Claire]

Hi Jennifer,

 

You have a lot to deal with there, with all the medications. In addition to reading the threads on this site and asking questions, I suggest that if you have insurance and can afford it, you look at the doctor list at the top of the site.

 

These doctors will help you look for underlying health issues or food/environmental triggers that may be aggravating your son's condition. I don't know much about bi-polar, but there are a spectrum of neurological issues such as ADD/ADHD, tics, ocd etc.. that have been helped considerably through these methods.

 

Are you saying your son was diagnosed with ADD/bipolar at age 3? Was he on repeated anti-biotics as a child (e.g. ear infections)?

 

Claire

[Heather]

Jennifer,

 

Another site that may be of interest to you is Truehope.com. This is a non-profit organization that was established by a man who's wife suffered from depression and took her own life. A multi-vitamin has been formulated to contain ingredients specific to Bipolar/Depression. You can read extensive information about the product (Empower Plus) on the website. The staff on the phone are very helpful and will monitor your son's progress with phone support. I am aware of others who have been helped by this product. It has also been used to treat tics successfully in some cases.

 

I would still recommend seeing a doctor in your area who can properly assess your son's imbalance, however, if money is tight, it is worth looking into this product.

 

Heather

[Claire]

Heather,

 

I saw your other post on TV. Finding that right balance of trigger control and emotional happiness is not easy is it?

 

I am going through it with my son on carbs vs protein (his balance should be shifted due to the yeast), and I am leaving him a lot of control there--e.g. he still basically eats carbs (potatoes, rice, granola). His protein is power bars, cheese and 2x weekly he has chicken. The good news is I finally found a soy milk he will have with this granola--at least a little protein there.

 

Claire

[Eric]

I feel it is worth the mention---

 

please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...

 

Marinol is worth taking a look at---

 

Thus far it is doing the job of 3 drugs otherwise-

 

it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...

 

I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--

 

indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...

 

let me know if I can help-

Eric

[Eric]

I feel it is worth the mention---

 

please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...

 

Marinol is worth taking a look at---

 

Thus far it is doing the job of 3 drugs otherwise-

 

it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...

 

I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--

 

indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...

 

let me know if I can help-

Eric

[Eric]

FOR LINDA(GUEST)--with 23 yr son---

 

I was having a confusing moment and think I posted this twice in incorrect threads--anyway-ignore the confusion-please...

 

I feel it is worth the mention---

 

please refer--to my "Marinol" thread---and--look at my "light sensitivity" for an example of how pronounced my TS is---if your son is similar...

 

Marinol is worth taking a look at---

 

Thus far it is doing the job of 3 drugs otherwise-

 

it is addressing my hypertension, depression, sleep problems, rage tics, helps my chronic pain from the strain of the movements- and it has only been a week...

 

I again am 27--and, have been on a string of meds--all causing more trouble than they are worth-- I can relate instantly--

 

indeed, the first and end product of the TS nightmare--from beginning to end, beyond all other overtones---depression is always your companion--Indeed, TS can destroy every ounce of joy you otherwise would have a fighting chance to feel---sometimes one is not even given the option...

 

let me know if I can help-

Eric

[Guest ConcernedFiance]

Hello, I have read all of the things you have written on this board and also am very impressed. I have a slightly different case though that I am really concerned about. My fiance has started taking seroquel (which she took starting 3 years ago for a duration of 2 years but then changed to another medicine, not sure of the name but she had to change medicines again because it was eating away at her insides) about a week and a half ago. I know I should wait 2 weeks they say to see a different in her medicine and her attitude and feelings towards it... but it's really making her act strange and I don't know what to do and I can't convince her that she's changed. She now has a lack of interest in life and has no feelings or emotion (which really hurts me inside when she can't express how she feels towards me anymore). I'm so worried for her it's making me sick inside and I just want her to be better. I'm not sure where to turn or what to do. This was an overnight change. A shock to me. This is the same girl that until a week and a half ago couldn't stand going a day or even an hour without knowing she had a way to see me. Then overnight started telling me she doesn't want to see me (same time she started the new medicine) and she has no emotions if I hug her or kiss her. Her sex drive is completely gone. Is this normal side affects of seroquel? Will these things go away? What can I do? Should I suggest a new doctor or a new medicine? The doctor that prescribed this medicine IS a new doctor. This was her first visit to him. If anyone could help me at all I would be very appreciative. Thanks (in advance)

[Chemar]

Dear Concerned fiance

 

how blessed your lady is to have you!

 

Most of us here are anti-prescription meds either by bitter experience or because we dont want to have the bitter experience that so very many people do have with these brain drugs.

 

My son was severely hurt by these drugs and, from what you are describing, the same is happening to your fiance.

 

One doesnt wait 2 weeks when a drug is having a bad effect!!! Believe me...it can lead to toxic shock, med induced psychosis and more. I am not being alarmist...this is a simple reality!

She needs to get to the doctor asap.

Dont abruptly stop the med tho...she needs to taper off it under doctor guidance.

 

My personal advice to you would be to find an alternative doctor from the list posted at the top of this board,

http://www.latitudes.org/forums/index.php?...p?showtopic=565

and see if she can possibly be helped naturally.

 

I and many others here can testify to the effectiveness of alternative treatments.

 

I am rushing out, but please feel free to ask more details or email me if you need more info

Cheri

[Claire]

Dear Concernedfiance,

 

I have a good girlfriend who went on Prozac (for depression) and it killed her sex drive and emotions--according to her husband anyway. She is off of it now. Different drug, but definitely side effects.

 

If your fiance had OCD tendencies prior to taking the drug, some of the obsession/compulsion of seeing you a ton may be mitigated. Certainly there is a healthy balance in there, but it sounds like she has been taken too far in the other direction.

 

As with Chemar, I hope you can get her to see an alternative doctor. They have been Godsends to almost all of us here. And people who put there faith in doctors might not take to message board input--but rather a 'real doctor' to guide them. I basically shied away from doctors for my son for this--until I found the list on the board. Chemar and others were lucky enough to find theirs on their own--but it was like finding a needle in a haystack for me.

 

Claire

[Guest Guest_teach1]

Hi, Boy, lots to respond to here!! First, having had TS for most of my life, I"m now 49, and having been on haldol for 20 years, which has caused tardive dystonia-which has totally affected my life- no reading, tv, driving, had to got to 1/2 time working, can barely see, constant pain, etc, believe me, these drugs are scary, and what i have, i have for life, there is nothing i can do about it, so please be careful when your dr recommends a new or old drug. I toowas on seroquel for the TS it did nothing for me, i can't remember the side effects , as they put me thro many trials of all sort s of new drugs, none of which worked, and now i have this which is even worse! To the pregnant woman who can't sleep, have you tried melotonin? Ask your dr first of course, but we get it at the health food store, it is something that your body naturally produces, but makes less the older youget, it really helps with sleeping and has noafter effects. Pilots take it alot because of their night hours etc.. i wouldn't stay on the drugs while pregnant, but thats my own view of course, i went off the halidol both times i was pregnant,and for some strnge and wonderful reason my tics totally went away until about 2 weeks after i finished nursing andthen returned with a vengeance sohad to go back on it, but at least i was off it during my pregnancy. I could never have forgiven myself if ihad caused a problem,but you have to do what you feel isbest for you, because your health and state of well being is very important right now. So please take care of yourself, and congratulations for being alchohol free for so long!! I think the young boy who has decided to go med free and live with his tics is very brave, and i congratulate him. My dr wanted me to try orap and i said no, I've had enough, i too want to be drug free. It's tough, the stares i get, the snickers etc, and i'm older, i can't imagine being so young and taking that on, good for him!!! We are what we are, and God gave us this for a reason, why i may never know, but i'm learning to live with it, and these forums are a real life line to so many people. Take care all of you.. teach1

[Guest ConcernedFiance]

So you're saying that this drug (seroquel) may be doing her damage instead? She was on this medicine for 2 years before. She said this is how she was then too. She just started using this doctor and went to him because of his reputation. Maybe it wasn't the right choice. I am looking through the list now to see if there are better choices for her. Normally she would let me go with her to the doctors but she's been acting so strange lately I'm not sure she'll accept my concerns about her as well as she normally would have. So, in other words, I'm not sure she'll like me going with her. She does have some small bits of OCD she says but it's nothing major. The only thing I notice is her bed. It has to be made a certain way or she can't stand it. Other than that, I don't notice anything about her. She's actually somewhat on the sloppy side at times (no offense to her in case she ever reads this!) I will read over these alternative doctors you have posted for me and see if me and either her or her family can't figure out a better solution for her. I plan on talking with her family tomorrow while she's at work, this way she doesn't know about it. I feel sneaky about doing it but I know she isn't thinking normally right now. If only she knew how much I wanted to help her. She tells me that she feels fine but I know she doesn't. She tells me this while her head is hanging low to the floor. She's actually been asleep all day today. She sleeps 15 hours and told me today that she needed her day off to rest and not be with me. She's never wasted 1 second she thought she could be with me. But she's been in bed all day today. It's 7 PM. That in itself scares me, let alone the fact that her personality has been shifted completely.