MamaOnAMission Posted February 13, 2013 Report Share Posted February 13, 2013 I have been pouring through tests results and it said "Mycoplasma pneumoniae" was off or something like that. What is this and could this be causing any problems? Link to comment Share on other sites More sharing options...
T_Anna Posted February 13, 2013 Report Share Posted February 13, 2013 That sound like mycoplasma (waking pneumonia). Yes, that has caused a lot of problems with many on this list. T.Anna Link to comment Share on other sites More sharing options...
Lisa3 Posted February 13, 2013 Report Share Posted February 13, 2013 I 'd love to hear more about this too since this is one of my DD10 triggers. Link to comment Share on other sites More sharing options...
MamaOnAMission Posted February 13, 2013 Author Report Share Posted February 13, 2013 Would Dr. J address this or Dr B??? Or do I have too see another specialist? Link to comment Share on other sites More sharing options...
jtp Posted February 13, 2013 Report Share Posted February 13, 2013 Would Dr. J address this or Dr B??? Or do I have too see another specialist? Dr B does treat mycoplasma, he's been treating my son. His trigger was Mycoplasma. I don't know much about Lyme treatment but I recall that this could somehow be related to lyme disease as well. Link to comment Share on other sites More sharing options...
philamom Posted February 13, 2013 Report Share Posted February 13, 2013 Lily- is the IGM or IGG elevated? What is the number? My daughter's IgG has been slightly elevated for over a year (Quest: 1.02,1.58,1.11,2.20,1.21,1.09) and both doctors above are not treating. Not saying I agree with it- just letting you know. Link to comment Share on other sites More sharing options...
cobbiemommy Posted February 13, 2013 Report Share Posted February 13, 2013 Dr B or Dr. J will treat mycoplasma. My son's IGg was over 5.0 (very high) and after treating for a year, it is below 3.75. If you are interested in research, look up Dr. Garth Nicholson and Gulf War Syndrome. He finds that Mycoplasma is a big trigger for these problems. Link to comment Share on other sites More sharing options...
bobbynangie Posted February 13, 2013 Report Share Posted February 13, 2013 I'm with her, I don't understand mycoplasma either. My son has had very high results( 953 in sept. 2012) but no outward signs of any colds or anything. What is the differences in IgG and IgM positives? Western blott was negative in Sept. Tested in Nov. myco was 582, has been on zithromax 250 once daily since Sept. Waiting on test results from Monday. OCD coming back, bothering him alot. On the good side Vitamin D level finally came up to 32 this time. Link to comment Share on other sites More sharing options...
philamom Posted February 13, 2013 Report Share Posted February 13, 2013 (edited) Dr B or Dr. J will treat mycoplasma. My son's IGg was over 5.0 (very high) and after treating for a year, it is below 3.75. If you are interested in research, look up Dr. Garth Nicholson and Gulf War Syndrome. He finds that Mycoplasma is a big trigger for these problems. In my daughter's case, they say her elevated IgG's are not high enough to be a concern, even though it's been 1.5 years. Having her tested again next week, as we've been sick alot since xmas holiday. Edited February 13, 2013 by philamom Link to comment Share on other sites More sharing options...
Lisa3 Posted February 13, 2013 Report Share Posted February 13, 2013 My DD10 IgG is 1731, her IgM is 1282, she is on her first round of Biaxin - Dr T is treating her. Her Western Blot came normal except for an abnormal IgM p41 Ab. I'm still concerned and want her tested further for Lymes. Everything I've read on Mycoplasma says it's very hard to treat. We've been homebound for a month so far.I hope we're on the right course, seeing small improvements. Link to comment Share on other sites More sharing options...
Hopeny Posted February 14, 2013 Report Share Posted February 14, 2013 Lisa3 The more I read the more it seems that many of the PANDAS kids also have Lyme and vice versa. Mycoplasma is also carried by ticks so it would be worth exploring. Band 41 is known to cross react with a number of illnesses, but it is also commonly the first band to show up with Lyme, so its hard to make any conclusion on Band 41 alone. LLMD's assess physical symptoms along with Western Blots by the more sophisticated Lyme testing centers such as Igenex and SUNY Stonybrook, request "show all bands". Quest and standrd labs only test for a small number of strains of Bb while Igenex and Stony brook test for hundreds. The CDC "surveillance" criteria that most doctors refer to was never intended to be used for diagnostic purposes but for research. Unless a doctor has had specific Lyme training it may be very difficult for them to spot Lyme except in the most obvious cases. IMO and respectfully, the PANDAS doctors including Dr. T. should be more careful in how they test and what they tell patients about Lyme, and probably should just refer out if there is any suspicion. Because if your child does have Lyme you could waste years with treatments that are not fully effective. As well, not every PANDAS child has Lyme. In any case it is good to rule it in or out with a qualified physician. In my DD's case, who has +Lyme, +PANDAS and +Myco, her physical Lyme/co infections symptoms have been: extreme lethargy, joint pain (single sided and transitory) neuropathy (limbs fall asleep), blurry vision, stomach pain, headache and dizziness. Her OCD was pretty clearly PANDAS as it resolved almost immediately with abx, as did much of the extreme anxiety. We have some residual psych stuff thats hard to discern what is what, rages, situational anxiety, saddness, non existent self esteem, perfectionism, etc I call it collateral damage. I hope hearing about these symptoms can help you figure out what you are dealing with. Link to comment Share on other sites More sharing options...
beeskneesmommy Posted February 14, 2013 Report Share Posted February 14, 2013 Myco is a critter that jumps in with walking pneumonia. It can also be transmitted by ticks. Azithromycin is the first line of treatment. Dr. Bouboulis can treat this. My son had it and we successfully knocked it out. It has not returned. Link to comment Share on other sites More sharing options...
landamom Posted February 15, 2013 Report Share Posted February 15, 2013 MycoP can be transmitted by ticks but it is also a very common air borne bacteria that is all over the place. It is opportunistic in that it can show up when one has pneumonia but it can show up any time. Most people have had it, probably multiple times, but it becomes chronic when you can't clear it (just like strep or a lot of other things our autoimmune kids are susceptible to for whatever reason). IgG levels indicate an older infection (those are memory antibodies that show exposure, not always a current issue) IgM mean its a current infection. IgG can also mean a chronic issue - It's really dependent on if there are symptoms of it or not. Treatment for mycoP is generally Zithromax but if there is a chronic infection that is stubborn it is sometimes treated with multiple rounds of different abx. Keep in mind that with kids who have PANS, they have already turned that corner to having an autoimmune issue. You can be infection-free and still have the autoimmune issues. If MycoP igg levels are high, it could be that it triggered things but not nessesarily a current infection. You really need to look at the symptoms of MycoP and see if they apply and also check the labs to see if you are dealing with elevated IgG or IgM. Good luck! Link to comment Share on other sites More sharing options...
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