tpotter Posted January 18, 2013 Report Share Posted January 18, 2013 I am celebrating! It was only 99 degrees F, but given the fact he usually comes in at about 96 degrees, and hasn't had a fever in years, this is very significant. Was having hot and cold flashes with it, as his body was fighting. He appears to have the flu, and maybe strep, and pneumonia and who knows what else. Saw the dr. today. Been out of school for 4 days now, and will take off through tomorrow at least. We've been treating for lyme, bartonella, babesia, erlichiosis, and a host of other things for 5 years (the lyme and co- for about 2 1/2 years.) Link to comment Share on other sites More sharing options...
rowingmom Posted January 18, 2013 Report Share Posted January 18, 2013 A question continued from the PANDAS forum this afternoon. Do his lyme and coinfection symptoms resolve with fever? Glad to hear that perhaps his immune system is gaining some ground. Link to comment Share on other sites More sharing options...
tpotter Posted January 18, 2013 Author Report Share Posted January 18, 2013 A question continued from the PANDAS forum this afternoon. Do his lyme and coinfection symptoms resolve with fever? Glad to hear that perhaps his immune system is gaining some ground. I saw that thread. I don't know. We've been doing ART, and I've been seeing steady improvement since we started it. He really wasn't having significant PANS symptoms since we started the ART (some, but not significant). The last big PANS symptom (a massive rage like I've never seen, and I've seen some horrible ones with him) was last September when he was exposed to mold that was released into our house (big problem). But, as I said we've added in ART, and I think the treatment has made the difference in how he seems to be fighting this illness. That said, he's been pretty darn sick this week. I'll let you know when he's over the illness(es) what happens with his PANS symptoms, but I still don't know if I'd be able to correlate it, because there's other things going on. Link to comment Share on other sites More sharing options...
Fixit Posted January 18, 2013 Report Share Posted January 18, 2013 I am celebrating! It was only 99 degrees F, but given the fact he usually comes in at about 96 degrees, and hasn't had a fever in years, this is very significant. Was having hot and cold flashes with it, as his body was fighting. He appears to have the flu, and maybe strep, and pneumonia and who knows what else. Saw the dr. today. Been out of school for 4 days now, and will take off through tomorrow at least. We've been treating for lyme, bartonella, babesia, erlichiosis, and a host of other things for 5 years (the lyme and co- for about 2 1/2 years.) YAY! Ds12 had if first fever in about 5-7 maybe 9 years, just after thanksgiving 102.8-9!!!!!! i monitored it very carefully...that was my limit. i was not going to let it go to 103..i felt comfortable staying just under that number. i was giving cold compress on neck, forhead, and feet. once it got to the above number, i had him get in a cool bath....i didn't want to shock him. his fever was 2 days and the second day stayed at 100-101. No tylenol, or ibuprofen. We did get a little bump up in his condition(in a good way)from the fever. Maybe in a few days you will see a little bump up too!!!!!! Link to comment Share on other sites More sharing options...
tpotter Posted January 18, 2013 Author Report Share Posted January 18, 2013 I am celebrating! It was only 99 degrees F, but given the fact he usually comes in at about 96 degrees, and hasn't had a fever in years, this is very significant. Was having hot and cold flashes with it, as his body was fighting. He appears to have the flu, and maybe strep, and pneumonia and who knows what else. Saw the dr. today. Been out of school for 4 days now, and will take off through tomorrow at least. We've been treating for lyme, bartonella, babesia, erlichiosis, and a host of other things for 5 years (the lyme and co- for about 2 1/2 years.) YAY! Ds12 had if first fever in about 5-7 maybe 9 years, just after thanksgiving 102.8-9!!!!!! i monitored it very carefully...that was my limit. i was not going to let it go to 103..i felt comfortable staying just under that number. i was giving cold compress on neck, forhead, and feet. once it got to the above number, i had him get in a cool bath....i didn't want to shock him. his fever was 2 days and the second day stayed at 100-101. No tylenol, or ibuprofen. We did get a little bump up in his condition(in a good way)from the fever. Maybe in a few days you will see a little bump up too!!!!!! That's great about the bump-up. I'll tell him. I did have him take ibuprofin, only because he was in severe pain, and I was also concerned about the fact that he was having trouble breathing (wanted to decrease inflammation.) Link to comment Share on other sites More sharing options...
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