Pandasphilly Posted October 28, 2012 Report Share Posted October 28, 2012 DS10 has severe pandas induced ocd and does not currently attend school. We live near Plymouth meeting,PA outside of Philadelphia so currently use the well know Children's Center for OCD and anxiety (Tamar Chansky's group)& Dr.Franklin's group at Penn. It has become unaffordable at $195/hr, 2-3x/week for over a year. Does anyone know of any providers of Cognitive Behavioral Therapy with Exposure Response Prevention in this area? Or perhaps have used a therapist of value they can recommend? Any that take insurance or Aetna? We have tried Rogers Memorial (Pre IVIG and pex) and will try All Children's Tampa after pex but I'm hoping to find someone local for support. Link to comment Share on other sites More sharing options...
beeskneesmommy Posted October 28, 2012 Report Share Posted October 28, 2012 Tru calling the behavioral Health Dept. at Dupont in DE. Dr. Josephine Elia, one of the foremost specialists in treating PANDAS and using PEX, will be going to work there at the turn of the year. Link to comment Share on other sites More sharing options...
Pandasphilly Posted October 28, 2012 Author Report Share Posted October 28, 2012 Tru calling the behavioral Health Dept. at Dupont in DE. Dr. Josephine Elia, one of the foremost specialists in treating PANDAS and using PEX, will be going to work there at the turn of the year. Thanks so much. Do you know if she be offering PEX again? IVIG? She was one of our three diagnosing Pandas specialists but she disappeared from CHOP a few weeks later. We got word after she was gone. I never knew what happened there. Link to comment Share on other sites More sharing options...
Kathy4Him Posted October 29, 2012 Report Share Posted October 29, 2012 DS10 has severe pandas induced ocd and does not currently attend school. We live near Plymouth meeting,PA outside of Philadelphia so currently use the well know Children's Center for OCD and anxiety (Tamar Chansky's group)& Dr.Franklin's group at Penn. It has become unaffordable at $195/hr, 2-3x/week for over a year. Does anyone know of any providers of Cognitive Behavioral Therapy with Exposure Response Prevention in this area? Or perhaps have used a therapist of value they can recommend? Any that take insurance or Aetna? We have tried Rogers Memorial (Pre IVIG and pex) and will try All Children's Tampa after pex but I'm hoping to find someone local for support. We went to All Childrens Rothman Center in St, Petersburg Florida in 2010. We did 4 wks of therapy, 3 hrs a day but sadly it did not help at all. I think this is because we are dealing with Pandas/PANS not plain OCD. But Eric Storch and staff are very kind. And they took our insurance which helped. We stayed at the Hampton Inn downtown about 5 minutes from all childrens. Link to comment Share on other sites More sharing options...
Pandasphilly Posted October 29, 2012 Author Report Share Posted October 29, 2012 DS10 has severe pandas induced ocd and does not currently attend school. We live near Plymouth meeting,PA outside of Philadelphia so currently use the well know Children's Center for OCD and anxiety (Tamar Chansky's group)& Dr.Franklin's group at Penn. It has become unaffordable at $195/hr, 2-3x/week for over a year. Does anyone know of any providers of Cognitive Behavioral Therapy with Exposure Response Prevention in this area? Or perhaps have used a therapist of value they can recommend? Any that take insurance or Aetna? We have tried Rogers Memorial (Pre IVIG and pex) and will try All Children's Tampa after pex but I'm hoping to find someone local for support. We went to All Childrens Rothman Center in St, Petersburg Florida in 2010. We did 4 wks of therapy, 3 hrs a day but sadly it did not help at all. I think this is because we are dealing with Pandas/PANS not plain OCD. But Eric Storch and staff are very kind. And they took our insurance which helped. We stayed at the Hampton Inn downtown about 5 minutes from all childrens. Link to comment Share on other sites More sharing options...
Pandasphilly Posted October 29, 2012 Author Report Share Posted October 29, 2012 Thanks for responding Kathy. We had a similar experience at Rogers memorial and another pandas mom there clued me in that it's hard for the kids to receive therapy without pex or ivig to address the pandas first. A year later we're at square one with aversion to exposures. Exhausting. but USF takes Aetna so I'll be going sometime post pex & ivig. Here's hoping Link to comment Share on other sites More sharing options...
Ebersolk Posted October 29, 2012 Report Share Posted October 29, 2012 We have used Dr. Lori Kasmen at Anxiety and Agoraphobia Treatment Center in Bala Cynwd. Dr. Grayson who has written several books on OCD is at this center. Rates are $160 (but there may be other children's doctors who are lower). They submitted to our insurance for us for reimbursent as out of network provider. I know she treated my daughter and at least one other with Pandas/Pans. She is a great therapist. Kerry Link to comment Share on other sites More sharing options...
tpotter Posted October 29, 2012 Report Share Posted October 29, 2012 Thanks for responding Kathy. We had a similar experience at Rogers memorial and another pandas mom there clued me in that it's hard for the kids to receive therapy without pex or ivig to address the pandas first. A year later we're at square one with aversion to exposures. Exhausting. but USF takes Aetna so I'll be going sometime post pex & ivig. Here's hoping Who's doing the PEX/IVIG? Just curious. Link to comment Share on other sites More sharing options...
Pandasphilly Posted October 29, 2012 Author Report Share Posted October 29, 2012 Pex with Dr. L & iIvig with Dr. T. Link to comment Share on other sites More sharing options...
Pandasphilly Posted October 29, 2012 Author Report Share Posted October 29, 2012 We have used Dr. Lori Kasmen at Anxiety and Agoraphobia Treatment Center in Bala Cynwd. Dr. Grayson who has written several books on OCD is at this center. Rates are $160 (but there may be other children's doctors who are lower). They submitted to our insurance for us for reimbursent as out of network provider. I know she treated my daughter and at least one other with Pandas/Pans. She is a great therapist. Kerry Link to comment Share on other sites More sharing options...
Pandasphilly Posted October 29, 2012 Author Report Share Posted October 29, 2012 Thx Kerry, Ive heard great things of them & dr greyson. Link to comment Share on other sites More sharing options...
philamom Posted November 1, 2012 Report Share Posted November 1, 2012 Pandasphilly- we have been without power since Monday. I'll send you a pm tomorrow. Link to comment Share on other sites More sharing options...
Pandasphilly Posted November 1, 2012 Author Report Share Posted November 1, 2012 Hi Melinda We have a new generator and lots of gas. Can you use it? We can deliver if you have someone to help unload. It's heavy. We have power if I can be of any help to you. We are in blue bell pa just past plymouth meeting. Even if you all just need hot showers and hot food please call me. We are a strep free environment C 610-348-4058 Michelle Link to comment Share on other sites More sharing options...
philamom Posted November 1, 2012 Report Share Posted November 1, 2012 Thanks Pandasphilly- that is so kind! Our power was restored last night. We have a school meeting this morning, so will get back to you later today. Link to comment Share on other sites More sharing options...
Kayanne Posted November 1, 2012 Report Share Posted November 1, 2012 I like this Therapist's website, although I haven't contacted him: http://overcomeocd.net/rx.html Link to comment Share on other sites More sharing options...
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