Holding steady at baseline

[JuliaFaith]

My ds has been on Valcyte for 5 months now to get rid of viruses (HHV-6) that would not deactivate. First 1 1/2 months on the med. he felt the same but since then he has had very few 'baseline' (best he has felt in 2 yrs.) days-only a day a month. Flare is when flu-like symptoms ramping up. Now, 2-3 weeks after mold removal (should be the last...) he has been at baseline for over 1 1/2 weeks! Cannot believe it. He did do 2 weeks of abx during that time for a really bad inner ear infection. His chronic illness has never improved with abx before.

 

Not sure what is happening, but will take it. Has at least one more month on Valcyte. Thought it might be because his school is out, but he says 'no', and he is still doing 3 subjects that he did not get done for his on-line program.

 

See doctor next week so will be interesting to see how his ART testing results come out!

 

Any ideas?

[philamom]

My ds has been on Valcyte for 5 months now to get rid of viruses (HHV-6) that would not deactivate. First 1 1/2 months on the med. he felt the same but since then he has had very few 'baseline' (best he has felt in 2 yrs.) days-only a day a month. Flare is when flu-like symptoms ramping up. Now, 2-3 weeks after mold removal (should be the last...) he has been at baseline for over 1 1/2 weeks! Cannot believe it. He did do 2 weeks of abx during that time for a really bad inner ear infection. His chronic illness has never improved with abx before.

 

Not sure what is happening, but will take it. Has at least one more month on Valcyte. Thought it might be because his school is out, but he says 'no', and he is still doing 3 subjects that he did not get done for his on-line program.

 

See doctor next week so will be interesting to see how his ART testing results come out!

 

Any ideas?

Could be everything you've done prior has allowed the abx to be more effective. What abx was prescribed? Anyway, so happy for you.

[JuliaFaith]

Could be everything you've done prior has allowed the abx to be more effective. What abx was prescribed? Anyway, so happy for you.

Amoxicilin, but how would that affect the viruses? If he still has mico. going on, that might be affected by the abx.

Edited June 28, 2012 by JuliaFaith

[SSS]

Could be all of your incredibly hard work coming to fruition :-)

 

Yea!

[JuliaFaith]

Thanks Philamom and S&S for your support. Not holding my breath...don't want to expect something and it goes away. One day at a time.

 

Thought of another variable - DH just started abx for Mico. for 1 month about a week before ds started staying at baseline. PANDAS is what I have no idea about now that he is healing from most of the other stuff. Has not had any 'PANDAS' episodes since starting treatment 19 months ago. Although, coughs seemed to be his trigger and he has not had one since treatment started.

 

Keep healing!

Edited June 30, 2012 by JuliaFaith

[tpotter]

Thanks Philamom and S&S for your support. Not holding my breath...don't want to expect something and it goes away. One day at a time.

 

Thought of another variable - DH just started abx for Mico. for 1 month about a week before ds started staying at baseline. PANDAS is what I have no idea about now that he is healing from most of the other stuff. Has not had any 'PANDAS' episodes since starting treatment 19 months ago. Although, coughs seemed to be his trigger and he has not had one since treatment started.

 

Keep healing!

 

 

Dry coughs can be a symptom of mycoP. Sounds like everything is coming together. I am so happy for you.

[JuliaFaith]

Dry coughs can be a symptom of mycoP. Sounds like everything is coming together. I am so happy for you.

Thanks Tpotter. Just saw that it has been 2 years since I first started on this forum...and a lot of you have been there the whole time along with me. Really appreciate your support and hope that I can return the favor as much as possible. Take care and keep healing!