Heading to the ER

[colleendonny]

Not for my PANDAS DD. She is currently well.

But my little one is almost 10 months. It seems as if she had a few seizures tonight. I'm scared to death

[junkyardjean]

My thoughts are with you tonight!

[Tamistwins]

Sending good thoughts and praying for speedy recovery!

[philamom]

Also sending prayers.

[fightingmom]

Hang in there. Thinking of you.

[Orion]

Oh No!

 

Hugs to you and your family!

[colleenrn]

Please let us know how she is doing when you get a chance. You will be in my prayers.

Colleen

[colleendonny]

Thanks everyone we spent the night amd she is now on an EEG moniter. We will spend the night again. She hasn't had anymore episodes. I wish it would happen at least once just to get it on the EEG.

Anyone know is seizures are related to PANDAS? I know it can be a sign of Lyme. I just got tested myself at Dr. B's office last week.

We saw someone from neurology in the ER last night. He may have been a resident. Taking family history, I mentioned kayleigh has PANDAS. He said, "You know, a lot of neurologists don't believe in PANDAS." I said, "Yes I know, but she is getting treatment amd is getting better, so I believe in it."

And I overheard a nurse talking in the ER to someone. I think someone brought their daughter in and I caught that she was having bad words/ thoughts. They were saying behavioral. I wanted to jump out of my room and shriek PANDAS!!

We are at non- PANDAS believing Children's Hospital Boston.

They are taking great care of Lucy though!

[bulldog24]

thinking of you!

[bigmighty]

Thinking good healing thoughts for Lucy and hoping that the docs are able to figure things out sooner rather than later.