Help please please please....

[Wilma Jenks]

when i added the bacterium, it made her mean,

then i added in the minocycline and it made her less mean, but she is constantly agitated and obsessing about people that are copying her or giving her dirty looks. with these antibiotics, i saw her begin to shower and she seemed to sleep a bit better. my question is...if these antibiotics seem to help some things, but are making her too aggressive, are there other abx. that they can try that perhaps will not make her so mean and uninhibited? it is about 4 months on this stuff. when is it time to move on???

[mama2alex]

Wilma,

 

It may not be that she's on the wrong antibiotics, but rather that they are the right ones and her symptoms are from the bugs dying off. What are you doing for detox? I would work on that aspect and see if detoxing her helps the symptoms before changing the antibiotics.

[lismom]

Are you also treating for co=infections? It took my son over six months to shed the worst symptoms. He still has some minor lingering symptoms, its been eight months.

[sptcmom]

Treatment time is to be considered in years not months. Individual symptoms may resolve in months even weeks but not overall remission. That takes time. In my experience adding a holistic regimen to help with the herxing is the best way to go so the poor child's body gets organ support for detox and drainage. if the body has to struggle on its own its hard on the child an dthe family.The LLMDs who have seen the best results advocate holistic add ons for nutritional and detox support. I follow Dr Klinghardt and he is the only LLMD who has been able to achieve anything close to a "cure" for these infections. I can say the same for Dr. Jones. The others I havent read too many long term success stories, with children that is. Most of our children have multiple chronic infections and have been ill for years, these infections brewing under the surface and adding on symptoms. It may take 3 to 4 years easily to get the body back on track as per our LLMD. As long as the child is shedding symtoms its a good sign.

A quick search and read of these most informative posts is invaluable. The moms and parents on these forums are tremendously proactive and very knowledgeable. I have learned many good and important things from their experiences.

 

Lyme is always two steps forwards and one step back in my experience.

 

There are numerous posts on the forums that talk about methylation issues, genetic polymorphisms, nutritional deficiencies, dehydration, KPU etc in our children.ALL of these have to investigated and treated in the right order. The order of treatment is VERY imp. If you treat Lyme first and not address Bartonella, its really of no use for example.Another example is intestinal parasites- the big guys. If one treats lyme and co without addressing these first well then your titers for lyme and co are erroneous since the little bacteria will hide within the big guys and some are adhered to the immune complexes too. So the blood tests are coming back negative, IND etc.

 

In my experience , A.R.T. with an advanced practitioner is the most reliable way to diagnose and treat with far more precision that blood tests if the practitioner is experienced and advance trained an duse genuine Klinghardt protocols for diagnosis and treatment.

 

Many of our children have PANDAS too and I was happy to see they are talking about PANDAS at the ILADS conf this year. By God's Grace I will be presenting next year and will certainly revisit this issue. 50% of my patients have PANDAS along with lyme and coinfections. 50% of the children with Autism at my local DAN doctor also have PANDAS from what I heard from him. So its a huge issue and there is rapidly growing awareness for Lyme and PANDAS in my area.Getting the PANDAs plus Autism kids's parents to rule out other infections is a huge undertaking by us right now and we hope to educate thru gentle persuasion and seminars for info.

 

Most LLMDs know the order and some even treat all together. A good holistic practitioner and a good LLMD go hand in hand to see reliable long term results. I speak from my personal and professional experience only.

Edited October 26, 2011 by sptcmom

[philamom]

sptcmom- I have received no holistic suggestions for nutritional support and detox from Dr. J.

 

Wow, that would be great to see you present at next year's conference!!

 

edit to say I really like Dr. J. I just want people to be aware of it - if they are looking for a holistic approach in selecting a llmd.

Edited October 26, 2011 by philamom

[SSS]

Wilma, I'm sorry it is so hard right now- hang in there. I have mentioned before to you about your daughters 'gut' issues- for some reason, this always comes to my mind again when you post- do you think her clostrida has cleared? Have you been able to get any probiotics into her? Sending PV's----- and hope you are feeling better, too.

 

 

I also want to add:

The blanket statement that Dr. Klinghardt and Dr. J are the only LLMD's that really 'cure' these infections in children struck me the wrong way-

Many of us are using excellent LLMD's besides these 2- and are paying hard earned money, trust their LLMD, and believe they are capable, and are seeing results and healing.

The LLMD we are working with does in fact advocate detoxing and makes it an imperative part of our journey, and also 'holistic' drainage and body care for the individual going through treatment- and he has treated children successfully-