Resistant mycoplasma

[3boysmom]

Our DS1 is on his IVIG #2. We ae actually still in CT (Dr. B's). I have a questions:

 

DS's mycoplasma numbers have gone from 1047 in March to 1256 in June and now 1457 as of the results that Dr B just went over with us. DS has been on Augmentin XR1000 for the strep issues but also 3 different antibiotics for the mycoplasma.

 

Dr. B says that it is highly unusual for the mycoplasma to not respond to the Bioxin. "possibly a resistant form of mycoplasma". He is switching DS to (script packed in luggage.....think it starts with a "m" and is some type of cycalin?

 

Anyway, if you have had a difficult time gettting rid of mycoplasma, what worked? Which medicine?

 

Thanks for the help,

Linda

[3boysmom]

Sorry. DS is 11 NOT 1

[kimballot]

 

 

Dr. B says that it is highly unusual for the mycoplasma to not respond to the Bioxin. "possibly a resistant form of mycoplasma". He is switching DS to (script packed in luggage.....think it starts with a "m" and is some type of cycalin?

 

Thanks for the help,

Linda

 

You've got me thinking now... I think the antibiotic you are mentioning is minocycline It is in the doxycyline family. My son has done very well with minocycline and also with doxy as compared to azith or augmentin or biaxin. We attributed this to some type of hidden lyme or coinfection (mycoplasma can be airborne or a tick coinfection). Now I am going to go back and check my son's mycoplasma labs... I would love to pinpoint what his underlying infection is so we can be more precise with treatment.

[Tamistwins]

My son had issues with mycoplasma. We treated with biaxin and other meds he still had issues. I think we finally had a negative result but now again while being treated with minocycline and rifampin he now has a new infection ugh I haven't a clue y some kids can't get rid of it.

Edited September 24, 2011 by Tamistwins

[philamom]

I'm just curious - are we talking mycolpasma IGM or IGG? I get conflicting advice on whether elevated Igg needs to be treated? If Igg, do they feel it's a chronic, persistent mycoplasma infection?

 

I know Igm means current infection.

 

thx

[dut]

Hi - bit of an aside but I've read that you can't clear mycoplasma without sufficient selenium levels... may not help but could (god knows why u need selenium to clear myco) but can't hurt.. really good and easy way to supplement is brazil nuts, if not allergic. 1 or 2 is enough per day, in fact you gotta be careful with brazil nuts 'cos they are so high in selenium you can easily overdo it if eating too many too frequently....

Edited September 24, 2011 by dut

[eljomom]

I just wonder if this has anything to do with pandas kids immune systems being in overdrive as it is....maybe they just keep churning and churning out antibodies? OR, maybe it's like strep, where the infection is cleared, but the antibodies continue to rise for a period of time aftere......like ASO vs. antiDNAseB (which I understand can remain elevated in school age kids....likely just from exposure....and in "normal kids" I would say elevated titers in response to even exposure is a "good" thing, right?

[norcalmom]

I've read that Doxy is preffered from mycoplasma, and it could take 9 months of treatment to see it subside if it is a chronic infection. Also, its treated a little like Lyme with antibiotics cycled off for a couple weeks after 4-6 weeks on.

 

High IgM means it is active, recent infection- I gG can stay high for long periods of time after an infection has subsided. BUT, that IgM is not likely to rise AT ALL on subsequent infections. So an IgG that is trending upwards would indicate the infection may still be active. I don't know how much of a raise would indicate that I'm sure there is some allowable delta for samle/daily fluctuations. Your sons look like they are going up steadily.

 

Kimballot is right - Mycoplasma is a Lyme co-infection, but its also "walking pnemonia" - its everywhere.

 

I did a bunch of research on this after I found my son's IgG was 25,000, IgM normal. YOu will find conflicting data and opinions. Doctors are taught to look for the IgM - but I've read at least one study that found that IgM usually only goes up the begining of the FIRST time you contract it.

 

Does your son have any "regular" symtoms (upper respiratory infection, persistent dry croupy-like cough?)

 

DUT- I didn't know that about selenium - very interesting!

[Dedee]

We are currently treating both my son and daughter for myco p. Both have elevated IgG and IgM. Our doctoc added Rifampin to their antibiotics because he said this helped the original antibiotic work better and that Rifampin would cross the blood brain barrier. My son is on Zith but we switched my daughter to Biaxin because she didn't seem to get much from the Zith. Both also take Rifampin as well. We just tried to take my son off his antibiotic after a three month treatment. It lasted 4 days and all of his symptoms have come flooding back. I just finished sending a message to his doctor. Hopefully we can get him back on something soon. This bug really hangs on...Sick of it already.......

 

Dedee

Edited September 26, 2011 by Dedee

[JuliaFaith]

Another option, from the natureopathic side, is putting 3-4 drops iodine in nebulizer once a day (night) for one year. My son has been doing this for 11 months and his lungs are improving and showing signs of recovery. He was also diagnosed with Chlya pneu as well. Great improvement and hope to be done in another month.