kimballot Posted July 16, 2011 Report Share Posted July 16, 2011 It has been 5 months since DS14 had his first HD IVIG after major and minor PANDAS attacks since he was a baby. I have been posting updates each month as he had a major exacerbation that began 2 weeks after IVIG, and has slowly recovered beginning about 10 weeks after IVIG (http://www.latitudes.org/forums/index.php?showtopic=14025&st=0&p=115367&fromsearch=1entry115367). He has been receiving HDIVIG about every 8 weeks, and has now had 3 total. This month has been amazing. Every week he is more calm and more cooperative, though some days are better than othrs. He decided to take summer school classes in an effort to get into high school after missing so much o 8th grade. He is doing well in the classes and seems to enjoy them. I can almost see his brain trying to overcome OCD thoughts as he gets ready for school in the morning and then starts to give up when something does not go perfectly well (eg: we are out of the food he wants for breakfast, his favorite pants are not clean, or his hair is not perfect). A month ago, ANY of those would have been a reason to go back to bed and skip school for the day. Now he pushes past it. Still seeing rituals, but he has had them his whole life so I really think it will take lots of work to undo these. We see Dr. M in Florida soon and I am hoping she can help us now to understand these and work through them. The best part is NO ILLNESS really since IVIG. A couple of small colds that lasted a couple of days, but no sinus infections, no respiratory infections, and allergies are even better (though we are very careful with those). I am keeping my fingers crossed!! Link to comment Share on other sites More sharing options...
SSS Posted July 16, 2011 Report Share Posted July 16, 2011 GREAT news! Very happy for you :-) :-) Link to comment Share on other sites More sharing options...
3boysmom Posted July 16, 2011 Report Share Posted July 16, 2011 Yea!!! Kimballot, I have been away from the forum for a few months but yours is a name I remember. We joined the forum around the same time. We are preparing for our first of possibly 3 IVIG's with Dr. B. #1 is next week. Please advise on what we should do to prepare. Drink lots of water and what else?? please read my latest post or just advise off of this one. I pray that all continues to improve for you all!! Linda Link to comment Share on other sites More sharing options...
ziva Posted July 16, 2011 Report Share Posted July 16, 2011 Great news, and sooooo good to hear of kids getting better Link to comment Share on other sites More sharing options...
LNN Posted July 16, 2011 Report Share Posted July 16, 2011 Where is that LIKE button when you need it? So very very happy for your whole family! Link to comment Share on other sites More sharing options...
philamom Posted July 16, 2011 Report Share Posted July 16, 2011 Ditto for the like button...so happy for you! Link to comment Share on other sites More sharing options...
hawks Posted July 16, 2011 Report Share Posted July 16, 2011 Great News. So happy for you all too! Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted July 16, 2011 Report Share Posted July 16, 2011 WHOOOO HOOOO!!! This is what we want to hear from EVERY family here one day! Great going! Enjoy the rest of your summer! Link to comment Share on other sites More sharing options...
peglem Posted July 17, 2011 Report Share Posted July 17, 2011 I'm so happy to hear this wonderful news! Link to comment Share on other sites More sharing options...
Mary M Posted July 18, 2011 Report Share Posted July 18, 2011 Can I just sit here and cry...this is such wonderful news. May the progress continue and may your whole family continue on a positive path toward health and function, Mary from Michigan Link to comment Share on other sites More sharing options...
mkur Posted July 18, 2011 Report Share Posted July 18, 2011 I am keeping my fingers crossed!! I always have mine crossed. Great news! So happy for you! Link to comment Share on other sites More sharing options...
tpotter Posted July 18, 2011 Report Share Posted July 18, 2011 I am so happy for you. That is great news. Link to comment Share on other sites More sharing options...
JAG10 Posted July 18, 2011 Report Share Posted July 18, 2011 Kim, This is fabulous and encouraging for so many. I always feel an extra special tingle when one of our older kids is making substantial headway. Is there another IVIG scheduled? My girl is having another the end of Aug which really gives me some peace. Last year, after her first ivig in May, she was bombarded the end of Aug through mid Oct with one immune challenge after another. If you look back over the history of this forum, we see "exposure explosion" come in waves usually 4-6 weeks around winter changing to spring & 4-6 weeks summer changing to fall. So, I feel at ease she will have a fresh infusion to help armor her against that battle period. Best wishes continuing to trend forward Link to comment Share on other sites More sharing options...
nicklemama Posted July 18, 2011 Report Share Posted July 18, 2011 Great news!!!!!! Link to comment Share on other sites More sharing options...
jenbug Posted July 19, 2011 Report Share Posted July 19, 2011 Yay Kim! I am so happy to hear this! What an inspiration Link to comment Share on other sites More sharing options...
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