OCD Monster

[Wilma Jenks]

I gave her bactrim, and lots of OCD went away, but others weird OCDish things popped up. I added in biaxin, and the OCD just seems to change form. Now we are trying the minocycline, and I am waiting to see what happens. Please tel me that you have seen this happen and will just take time. How many abx., are there to go through?

[philamom]

I gave her bactrim, and lots of OCD went away, but others weird OCDish things popped up. I added in biaxin, and the OCD just seems to change form. Now we are trying the minocycline, and I am waiting to see what happens. Please tel me that you have seen this happen and will just take time. How many abx., are there to go through?

Yes, and unfortunately, lyme treatment can be a slow process. Good luck with the Minocin!

[mommakath]

Hey....is it possible the increase in OCD is related to the cyst form of lyme being killed off? Wondering for myself as well....ds12 has kept all meds the same and has had an increase in symptoms since IVIG 4 weeks ago, plus headaches and tingling in feet. I am thinking it is the body finally beating the lyme OR the autoimmune inflammation of the brain from PANDAS. Logicially, and hopefully, I am hoping it's the lyme being dealt with. Oh how I wish there was so much more definitive about Lyme and bartonella! And, PANDAS!!

[Priscilla]

for us there was ALOT of morphing of the OCD. Sometimes week to week, sometimes day to day. even with a consistent abx. I think it is important to know that this is a VERY slow process. For us, changing things too quickly seemed to set us back and make it to hard to see what was going on. It was once I stopped changing things, and eliminated many variables that I was able to see what was really going on. It took several weeks to months to start seeing improvement with a consistent regimen. Noticed that the slipping was probably coming in cycles even though we were being consistent. Our best progress has come since december 2010 with a consistent dose of Augmentin XR and and addition of zith in Feb 2011. I have remained very consistent on these meds with some ups and downs. Just a few months ago I was able to see there was a flare pattern (before I was just frantic she was slipping and would think we weren't getting progress) I am going to dare to say it (hopefully without jinxing myself), she has been 110% consistently for about the last 4-6 weeks- NOTHING!!!!! from SEVERE OCD to absolutely normal! In January I was registering her for an intensive treatment program, now not only is she better, SHE IS AMAZING! She is such a pleasant child. I feel like the abx need patience and time, even with the right combo. At least a couple months.