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Posted

After on 4 caps a day(will reduce to 2 caps) today..my child's urine is very yellowish..

his tics seem worst..I have read in her site in statistic this is the case about getting worst..but I take no chance and reduced..

 

Why the urine is yellow though?

 

thanks

Posted

also 3 days on enzyme 3 times a day 1 chewable tab per meal started 3 days ago..

known to increase sensitivity for 1st 3 weeks..

this can be the cause of increase tics..

 

Zyme prime so far but will introduce AFP peptizyde in 3 days..

 

hope all goes well..

 

like allison said to me in a PM ..turtle wins the race..nice and slow

Posted

Hi Daniel, my experience with yellow urine after vitamins is that you are making expensive urine :o That is, your son is excreting what cannot be absorbed - vitamin A and the B's are usually the culprits of the yellow color. My son cannot absorb his B's properly and in the case of B6 has to take P5P in order to more readily get his B6. Also, yellow urine could be independant of vitamins in that your son hasn't taken in enough liquids. Are you doing any of this supplemenation under a knowledgeable doctor? Our DAN doctor and Environmental Doctor did lots of tests to see what and what not to give him, what to try and what to rule out. It was very informative and saved us huge amounts of time and money in the long run. For example we found out that Bonnie's vitamins were not good for him because he is over abundant in Folic Acid and any amount he gets makes him tic MORE. :wacko:

Good luck,

Giselle

Posted

Hi Daniel

it is good to see you back on the board.:wacko:

 

I think Giselle has a very important point there that so many folks have found with Bonnie's program...where her products are excellent, they just dont suit everyone because of the highly INDIVIDUAL supplement needs of different people and their unique metabolism. One more reason why it is so beneficial to be supplementing under the guidance of a physician.

 

and yes, malabsorption and/or dehydration can cause urine discoloration.....

Posted

All,

Thanks,

Reducing the dose from 4 to 2 has shown remarkedly improvement in his tics..

about 50% better..

will leave it at that till we find a doctor that can help.

 

FYI,

started on Houston Zymeprime 3 times a day, 1 per meal , culturelle, once and cod liver oil , and 2 capsules a day of bonnie.

 

Will start Houston Peptyzide once it comes.

 

Hopefully it will heal his gut somewhat..

Posted

Daniel,

 

You are using the chewables right? I think the chewables equal about 1/3 of a capsule? My youngest son could handle Peptizyde, 1/2 a capsule (I wish I would have ordered the chewables) to start with, with no problem but 1/2 zymeprime caused some stomach pain. The first 2 times he took the zymeprime he had the stomach ache, pretty intense, but it stopped as quickly as it started, thank goodness. It lasted about 10 to 15 minutes both times and it came about 2 hours after taking the enzyme. After that, I cut it back to about 1/3. So now he takes 1/2 Peptizyde and 1/3 to 1/2 Zymeprime with every meal, as I'm working back up, and I am starting to give with snacks. He is taking about 5 of Bonnies vits. 1 fish oil, and a little extra zinc. He has been doing excellent.

I do have to say though, we went to the mall this evening. The shoulder shrugging started in a BIG way. Probably the very worst I have ever seen him tic, with the exception of the Pac Man game on his birthday last fall. It was there while we were in the Mall, but in the parking lot, he did it so bad he was practically turning in a circle. I thought he was doing it to be funny, he wasn't. I think once we got outside, he just let it rip. He said it was the Smell of the Mall. This is the second time he has said that. I believe the other time was in the Dr. office.

 

Tonight was a baseball game for two of the leagues combined, sort of a "scrub

game" for fun. One of the Dad's had bought a really off brand of Soda (cheap). Youngest got a can of this before I got there. 50 mgs of sugar and art. color. He also had pretzels which I have not been letting him have. Pretzels are one of the things he could eat 1/2 a bag of and call it dinner, he didn't have any enzyme with this and I'm thinking a wheat sensitivity could definitly be a possibility with him. So, I will be waiting to see how things go tomorrow. I have to say right now that this child ran into a trigger in a big way.

 

The head shaking I mentioned a while back with oldest was sort of a flair. It has been the mildest he has ever had since this whole thing started. I started giving him the enzymes. I had not been giving them to him, as he has always been a great eater, seems to have a strong stomach, but I didn't think it could hurt as I really believe the gut issues and food sensitivities are a big part of this. The head shaking really seems to have improved to almost nonexistent, in only about 2 or 3 days of starting the enzymes. I saw him do it once today. I guess it could be a coincidence, but I am keeping him on the enzymes for a least a while. Then I may stop and see what happens. He has complained of an "acidy feeling" since starting the enzymes, however, this has been a complaint I have heard during head shaking flairs before. I always wondered if the violent head shakes caused him to throw acid into his esophagus, if that's possible. Since the head shaking this time around, has not been as frequent or violent, I'm just puzzled now. I have read where a lot of kids on the autism spectrum have low stomach acid, but I had always assumed oldest had high stomach acid, so don't really know. Also have read where stomach discomfort is not unusual when starting enzymes , and I may have given him too much too soon. I didn't go as low and slow with him as I did his brother. I am cutting his vits. back from 10 to 8 a day while he's taking these. Again, I have read where sometimes you are able to reduce the amount of other supplements, when using enzymes. Trial and error, we'll see.

 

Kim

Posted

Kim

at the baseball field, in addition to the "junkfood' there may also have been pesticide/fertilizer exposure and at the mall, in addition to whatever he could sense as a smell (again may have been a pesticide, or other chemical eg cleaner, disinfectants or even just lots of perfumes etc) the fluorescent lighting may also have had an effect.........my son says for him at the mall it is the lights and the smell of perfume...on the people and in the stores

Posted

kim,

1 chewable equals to 1/2 capsule .

My child has same reaction going to mall, food shopping etc..

for him it is definitely nervousness..anxiety..and sensitivity..

I have started reading Karen' deflice's book..

great book..learned so much how our digestive system works..

how from protein(can be gluten) broken down into peptydes then amino acid..

but sometimes peptydes never get broken down..and enters our blood stream..via leaky gut causing igg antibodies to react..IGG antibodies is 75% of other 4 antibodies..IgE being one of them..which is the one that reacts in an allergic way such as peanut..

when that enters your system..the IgE antibodies..grabs a mast cell ..which release histamine ..and at the same time binds the histmaine to this foreign matter..I think..i might not remember correctly..

she is so funny..what u eat is not who u are..but who u are is how much u can absorb..

 

great book...her 2 sons matthew and jordan are on the cover..

 

sheila's book came out too..

Posted

update on enzyme

My child has been on zymprime for last 6 days now.

Just gave peptizyde on july 27 , 2 days ago.

on july 27 his tics were noticeably better.

then yesterday his tics were back again.

I took one peptizyde myself yesterday. I got gas the whole nite and a slight

migrane. However when I took zymeprime I get none of these reaction but felt

very hungry and salivating at nite.

Peptizyde is very strong I still feel it to this morning.

I am cutting down on peptizyde from 2 a day given at lunch and at dinner(bigger meal)

 

I have cut down from 2 bonnies to 1 bonnie supplement.

 

I just want to get a handle on enzyme first and see the reactions and instead of complicating it with bonnie.

 

still taking fish oil and culturelle

 

Dr Houston does talk about peptide withdrawl..I wonder what that is.

 

this morning I think he was crankier than usual too

 

daniel

Posted

hi Daniel :wacko:

 

sorry if I am asking a question to something you have already stated. but WHY do you have your son on the enzymes? has his tests shown that he is deficient in these enzymes and not metabolising correctly?

If his system doesnt need the extra enzymes then his metabolism could be being messed up by giving them to him. Enzymes are very beneficial, but ONLY when we need them.....if our own natural enzymes are functioning correctly, thenwe shouldnt supplement with extra ones, as then we are sure to start getting unwanted side effects and negative reactions.

 

same with all supplements........

Posted

Chemar,

started enzyme because we know that he is sensitive to gluten and caesin..per test

1 1/2 years ago..

always wanted to do GCGF diet but very difficult.

I have brought Karen Defelice's book and read up a lot on enzyme and feel

that the side affect is very short term usually 3 weeks and beneficial is trememdous..

especially for kids sensitive to food..or having problem of breaking down proteins and carbs.

Posted

We just ordered some enzymes from our doctor's office after having a phone conference. I am hoping that the enzymes will help repair my son's insides and then be used to help break down food's that right now are forbidden to him. It would be nice to change the elimination diet to a rotation diet down the road.

Posted

Andy,

 

Did your Dr. have any words of caution for you regarding the use of enzymes?

 

From everything I have read, there does not appear to be any downside risk to these. At worst they just will not help anything, and they have not been found to be toxic in any amount, this is my understanding. The question regarding your body not producing its own enzymes any longer due to supplementing, has been asked several times and from what I understand, this does not occur. http://www.enzymestuff.com/discussionsafety.htm

http://www.enzymestuff.com/faq.htm

 

As Daniel mentioned, the restrictive diets, especially when dealing with an extremely limited eater, is really hard, if not impossible with my youngest, however, I am very interested to hear any opinions on this subject. If there is one thing I have learned in the last 6 months or so, it's to look at everything from all directions, pros and cons, so far, I have just not been able to find any cons, and to get as many viewpoints as possible.

 

If you have the time to elaborate at all, it would be greatly appreciated.

 

Chemar, Could you tell me what kind of test your Dr.s did to determine the need for the use of enzymes?

 

Kim

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