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Posted (edited)

Our LLMD prescribe Olive Leaf Extract for anti-viral protocol along with antibiotics. Hmmmm, never thought twice about giving it with antibiotics.

 

-Wendy

Edited by SF Mom
Posted (edited)

Yes, you might see all different kinds of rashes pop up as a result of bartonella treatment. Often it is the classic 'stretch mark' rash but there are others. I always take pictures if I see anything strange to show the Dr. at a later date. My daughter got what looked like a bug bit on her cheek and its been there since last October when we started treating for Lyme. It has not healed and often has skin discoloration like a classic EM rash. I have been treating it topically with herbs and our Dr. is watching it closely.

Edited by SF Mom
Posted (edited)

I have read time and again on the PANDAS board that olive leaf should not be taken w/abx, but I haven't done research as to why... perhaps they counteract or detox one another?

 

Milk thistle is support/detox for the liver and can be taken with anything.

 

Its imp to know that - Milk Thistle has several interactions with other herbs and cannot be taken with Rifampin and Erythromycin as it can interfere with their metabolism and keep them in circulation longer and greater chance of side effects/herx. Its a powerful herb which needs to be used cautiously especially for children who have phase 1 or phase 2 liver detox delays.

Detox PLUS drainage is the key. Liver plus kidney is imp. Bentonite is a binder/attractant for impurities/junk but it needs adequate drainage to move things forward to be flushed out. Alkaline body Ph, alkaline water is essential.Artesian water is best.

I've seen a lot of families go easy on the drainage part and have massive herxes. Its no big deal to stop all abx and detox and drain for a week even. Its better infact. One needs to see the child pee more ( not to the extent of PANDAS frequency) and good amounts,1st pee needs to be stinky and gross; good stinky, gross and fairly well formed stools are also a good indicator as we know already.

 

Mainstream docs LLMDs and otherwise have minimal time and/or understanding of this entire process and its up to us to maintain that. Failure to detox and drain leads to toxin build ups, herxs which get confused if they coincide with even a minor viral exposure. In my humble opinion I've seen several families panicking and going thru multiple IVIGs trying to "cure" this ramp up and the conventional medical docs are failing to understand the extreme importance of detox and drainage and binders and etc and multiple IVIGs are being attempted for children with active Lyme which is very hotly debatable at the moment. Its imp and very beneficial to our children to be self educated and informed.

Also herbal antimicrobials like OLE are fine as long as well spaced from regular allopathic antibiotics.Do count the herbs the same as ABx when calculating how much to detox and drain your child. Many people fail to realize how powerfully these herbs kill the microbes, some better than regular ABX.

Anyways, just my experience and opinion.

Jodie

Edited by sptcmom
Posted

Jodie,

anything you'd rec. for kidneys? I've read a bit on burbur, but am already having a hard time getting a liquid herb (A-Bart) into DS and can't see adding a second one. Any other ideas?

 

Thanks

Laura

Posted

Jodie,

anything you'd rec. for kidneys? I've read a bit on burbur, but am already having a hard time getting a liquid herb (A-Bart) into DS and can't see adding a second one. Any other ideas?

 

Thanks

Laura

ABart is stinky. You need odorless and tasteless remedies. Just PMed you back.

Jodie

Posted

Great info! Thank you! I think for now we will add the Burbur, and try to find ways to get her to drink more fluids, (somehow she swallows 5 or 6 large pills at a time with about 2 ounces of water). Ideas anyone? The things she likes have so much sugar...worrying about yeast, etc.

Dr. Jones said 1 - 3 years to cure. 2 months minimum beyond any symptoms. He also suggested a lotion made by Avon (think it is Expedition, but don't have my notes with me right now) that repels ticks similar to Deet in bug dope. We have to worry about re-exposure because lyme folks have some type of pheronome that attracts ticks. So everyone needs to be aware that they can still be exposed even while on abx. Fun...

Posted

Oops- I stand corrected! Sorry about that. I'll go back and edit! :wacko:

Posted (edited)

Great info! Thank you! I think for now we will add the Burbur, and try to find ways to get her to drink more fluids, (somehow she swallows 5 or 6 large pills at a time with about 2 ounces of water). Ideas anyone? The things she likes have so much sugar...worrying about yeast, etc.

Dr. Jones said 1 - 3 years to cure. 2 months minimum beyond any symptoms. He also suggested a lotion made by Avon (think it is Expedition, but don't have my notes with me right now) that repels ticks similar to Deet in bug dope. We have to worry about re-exposure because lyme folks have some type of pheronome that attracts ticks. So everyone needs to be aware that they can still be exposed even while on abx. Fun...

 

Product ADP from Biotics Research is great for yeast.

Thats not enough water for all those pills. They need to reach the small intestine as intact as possible to achieve therapeutic levels of absorption for treatment efficacy. You can try using watered down juice or lemon water if she'll take more of that.

Also remember when you start killing yeast, you will be releasing trapped metals (yeast binds metals and its the body's natural way of keeping heavy metals out of circulation). Add cilantro tincture to bind the released heavy metals.

 

I use Ultrathon spray for tick protection.

Jodie

Edited by sptcmom
Posted

I also understand Bartonella typically takes a good 6 months to treat. Look for those rashes to appear.

 

-Wendy

 

Wendy - when you say look for the rashes...are you saying that we might see a Bartonella rash appear after we've started Bartonella treatment (we started Bactrim and Zithro combo on Monday)? Do you mean the "stretch mark" rash or any type of rash? I get a little nervous about rashes, since my dd8 is allergic to amoxicillan. I know Bactrim is not in the same family, but get nervous nonetheless...

 

Would the rash be itchy? This morning, she was saying the back of her leg was itchy and felt something like a bug bite. There was a very small bite like lump. I don't think it's anything signficiant, but plan on checking later to see if it has turned into anything else.

 

Thanks for your help.

 

Kara

Take a picture. It is possible that the antibiotics are killing something at the site of a bite and that is what she is feeling.

Posted

Great info! Thank you! I think for now we will add the Burbur, and try to find ways to get her to drink more fluids, (somehow she swallows 5 or 6 large pills at a time with about 2 ounces of water). Ideas anyone? The things she likes have so much sugar...worrying about yeast, etc.

Dr. Jones said 1 - 3 years to cure. 2 months minimum beyond any symptoms. He also suggested a lotion made by Avon (think it is Expedition, but don't have my notes with me right now) that repels ticks similar to Deet in bug dope. We have to worry about re-exposure because lyme folks have some type of pheronome that attracts ticks. So everyone needs to be aware that they can still be exposed even while on abx. Fun...

Dr. J is a wonderful man for sure. He is just an amazing doctor.

Yes you are right that anybody can get lyme again and again. I wish you could get immunity after going through this. Dr. J told me that ticks don't like him so there is something to what you are saying about certain people attracting them. Worrying about it is enough to drive you crazy although (I have relaxed considerably now that my son and I are well). Now I know you can get well. Dr. J told me that the second time you get lyme it is not as bad b/c you know the symptoms and you hit it early if that is any comfort. He told us it would take about 2 years to get my son well and it was 2 years and 3 months. There is a natural tick repellent that is sold by avon that has picaridin in it and the Lyme Disease Solution book recommends it. (SKIN SO SOFT Bug Guard Plus Picaridin Towelettes) Thats what we use. Deet isn't necessary and will only add to the toxic load that a child is dealing with. Some think that deet may actually attract ticks. We never see ticks so I can't tell if it works but we use it anyway. I am sure the ticks are out there. I think our family could have gotten lyme from mosquitos b/c we only have had one person with one engorged tick in the family, EVER, but tons of mosquito bites. We will never know of course. Other things you can do include washing your hair in a shampoo that has a smell from lavender, peppermint or tea tree oil. If you ever go camping (like anyone wants to do that again :-))) you could use the lice shampoo from Whole Foods b/c it has a scent that would repel ticks from the scalp. I am told by serious campers that it works really well but you don't want to use it more than once a week apparently. I will never camp again after getting lyme on a one night trip. It is so not worth it but the schools keep pushing these 3 to 5 day camping trips in the outdoor education program. They go to tick infested locations near where we live. On the camping trip I went on where my son and I developed lyme six people out of about 35 kids and parents developed lyme within weeks of the trip! I called to warn the camp and was told that over half the camp counselors had had lyme at least once. CLUELESS! Yet they continue to host schools on that ground (it is near livestock in damp and dark woods with tons of leaf litter, log benches and very high grass. Could you imagine a more high risk place to sleep in civil war era tents with no screens?? The camp is on federal land by the CIA and although I tried repeatedly to get the govt's attention about this risk nobody responded to my letters or calls so I assume children are still sleeping in those woods. I called the Park Service and got addresses to write to people and sent letters but never got any response. I doubt they sprayed the area. I assume that tons of people have gotten lyme at this popular camp ground for school trips.

Posted (edited)

My son takes his pills with OJ in the morning and water at night but to change it up and get more fluids into him, he likes a splash of cranberry juice with seltzer. Gives it a soda like fizz but less sugar. You could add the seltzer to any kind of juice to lessen the sugar.

 

Great info! Thank you! I think for now we will add the Burbur, and try to find ways to get her to drink more fluids, (somehow she swallows 5 or 6 large pills at a time with about 2 ounces of water). Ideas anyone?

Edited by justinekno
Posted

Want to chime in on the rash....ds9 on Bartonella treatment and had flat mole looking things around his mouth and under his skin for 2 plus years. We were told they were warts by dermatologist and treated with sacacylic acid and some cream for weeks....no change. They would increase and then decrease in number for no reason. Started Bartonella treatment and they increased in number within 2 weeks....tons of them. THen they came above the skin and got red and irritated. I took pics and sent them in asking if lyme rash. Dr. J said he wasn't sure what it was but that it was nows caused by strep/staph. Cleared on it's own but thought all that interesting - esp since my ds9 is also PANDAS kid and had been symptomatic while broken out. So, you can take pics and send them in. I love that office....very caring and supportive!

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