Jump to content
ACN Latitudes Forums

Spiderweb Rash- Questions and Photos

Recommended Posts

Pixie gets a spider-web like look to her skin quite often, usually on her trunk, but sometimes you can see it on her face a little. It's usually worse when she is cold. This was dramatically more noticeable and she was not cold at the time. I noticed her hands while we were eating dinner and I grabbed the camera. We watched in amazement as the "spider-webs" darkened almost to purple during about 20 minutes and then faded. She said she did not have any change in sensation during this time, no pain, itching, etc.


This was March 1. Today she still has a noticeable "rash" but her skin is also mottled like as if she has a million tiny bruises. I will try to get a photo this evening if it is still around- this morning was too chaotic with trying to get her to school.


Here are photos from two evenings ago:



Hopefully you can see the slideshow


So, the question is- what "rash" is this? Does anyone know a name for it, or what parasite it is associated with?

Edited by pixiesmommy

Share this post

Link to post
Share on other sites

So this is the same rash my twins have over their entire body all the way up to their cheeks. On their cheeks and back of arms also has a sandpapery feel when you rub your hand across it. This rash is present when they are cold or hot. Sometimes it has high contrast in color.... very purple. It is slowly getting better and almost resolved on one twins face. I will know my twins are better when it is fully gone.


Our older DS has just a little very faint on his cheeks and back of arm.


Hope that helps. If I remember correctly Pixie is positive for Bartonella.




Edit: Meant to say our LLMD believes it is from Bartonella. Like Michael states in his post too.

Edited by SF Mom

Share this post

Link to post
Share on other sites

That rash is most commonly associated with bartonella. I do hear some LLMD speakers say that with "lyme" you can have all kinds of rashes, not just the classic ones, so, I guess, perhaps, doesn't have to be bartonella.

Share this post

Link to post
Share on other sites

The first LLMD did not test her for co-infections and the second one says he believes she is actually truly negative for everything except those she tested positive for. I asked about her being on abx when testing and if we could get a false neg for any other reason and his answer was no. She tested pos only for Mycoplasma and HHV6 co-infection-wise. She has a lot of Babesia and Bartonella symptoms, however.


SFMOM- Hers is smooth, but she and I both get a very weird sandpaper rash on our cheeks when we are positive for strep. My 3 yr old daughter gets one single blistery-type pimple near her temple when she is positive for strep. I have heard that sandpapery rash on trunk is indicative for strep in a lot of children.

Share this post

Link to post
Share on other sites

That was the name I was thinking of! I was wondering if it was associated w/Lyme or not. It did seem like a herx, but I have no idea. I emailed it to the LLMD, even though he now does not reply and I get a canned message back- figured he could access it during our appt next week though.


She may have endocrine issues, so it could be that.

Share this post

Link to post
Share on other sites

DS, 11, has the same exact pattern on his legs. It is livedo reticulitis. It is caused by vasculitis in our case. The Lyme can cause an inflammation in the blood vessels, while the same Lyme can cause the red blood cells to be swollen. This prevents good oxygen supply to the extremities. In terms of Lyme, this could prevent the medicine from being distributed to the extremities and the Lyme could hang out there free from detection. Our doctor prescribed Heparin, which is an anticoagulant. This helps the blood to travel to more of the extremities. If you are prescribed heparin, see if you can have it compounded into a sublingual troche. The two a day would not be fun.


This would seem to be one more piece of the Lyme puzzle. I don't know if that is considered a herx, as my son had it before he started antibiotics.



Share this post

Link to post
Share on other sites

Yep, it's livedo reticulitis. Dr. T helped us figure this out. My dd11 had this all over her arms and legs. A year ago, Dr. T didn't think it was related to PANDAS. It completely went away with one HD IVIG in my dd, not that that makes it a PANDAS symptom, but heck, I'm just happy it's gone, call it whatever you want!

Share this post

Link to post
Share on other sites

My daughter has this also. She also has the red cheeks that sometimes feel like sandpaper. We are not pursuing the Lyme route although I will look into symptoms of Bartonella after reading this thread. Pixiesmommy, please update if your doctor has anything to add.

Share this post

Link to post
Share on other sites

Some Signs and Symptoms

of Possible Chronic Bartonella




All Psychiatric disorders

Bartonella Causes over 200 Body Problems and Can Harm Any Organ

But Some Patients Have No Clear Symptoms

Confusion and Cognitive Troubles

Depression and Anxiety


Dozens of Types of Rashes


Eye Disorders, e.g., Blurred Vision, Depth Perception, and Retinal Damage






Joint Pain

Kidney, Bladder, and Urogenital Disorders

Lumps in the Skin

Memory Problems


Muscle Spasms and/or Weakness

Numbness or Loss of Sensation

Oxygen Deprivation

Panic Attacks

Physically or Verbally Violent behavior

Polyps in or on Major Organs

Profound Sensitivity to Medications

Sleep Disorders

Treatment Resistant Addictions and Compulsions


Upper and Lower G.I. Tract Disorders



Share this post

Link to post
Share on other sites

Just received email response that LLMD would like to order a blood coagulation test for her. $600 out of pocket. WHEW!

Share this post

Link to post
Share on other sites

All 3 of my DSs get this when they are cold. DS7 never used to feel the cold, EVER. After the past few months of aggressive antibiotics, he now feels cold and gets the same mottled skin as his brothers. I also took pictures to bring along to our LLMD appointment in April. This is another puzzle piece pointing us towards lyme. Can April 5th come any faster?!!

Share this post

Link to post
Share on other sites

I'm afraid I don't have any answers for you, but perhaps another piece of the puzzle? We have been taking an herb called lomatium. We started taking it for a virus that just wouldn't seem to go away, but I noticed when I was looking at the info on it that it is used for Lyme as well.


After ~ a week on it, all 7 of us developed a rash very similar to German measles except that the spots started on the trunk & spread outward whereas rubella starts on the face & neck and spreads down. After the rash cleared, all of us, but ds18 & I in particular, were left with purple splotches that have gradually faded to the point that they look just like the pictures you have posted.


DS18 was positive for Lyme but negative for co-infections on the Igenex panel (His Cunningham results put him just below the median for PANDAS range. His main problems are tics triggered by compulsions and an attention deficit/difficulty focusing & remembering).


We continued to take the lomatium because it's advised to take it for 2 months, & after about 3 more wks, 4 of us started having signs of the rash again though on a much, much smaller scale - a few patches & a lot of itching. FWIW, I noticed that I seemed to be itching in places that hadn't been noticeably affected the first time.


I have also noticed that we are bruising easily & that some of my kids are having "blood freckles" when they cry unusually hard or, as in the case of the last 2 days with a stomach bug, they throw up. It's possible that it is acting as a blood thinner, but the vasculature definitely is being affected in some way by something.


Some additional detail - lomatium rash occurs in approx 1 in 200 people, but the woman I talked to at Barlow Herbal said that in autistic kids who use it, about 90% of them react. She said that she had never heard of an entire family reacting to it as we had - and repeats of lomatium rash are even rarer.


Which leaves me with a lot to ponder! Does bartonella or lyme or any of these bugs have a life cycle or stage consistent with the timing of our reactions?

Share this post

Link to post
Share on other sites

Well I thought I would chime in to say dd9 gets this too. I never thought of it as a rash before. She gets it on her arms and legs mostly. I have never seen it come or go as quickly as you describe but I've seen it and wondered what it is. It's not there all the time. I'll pay more attention now.



Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Announcements

    • Administrator

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:

      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic