Chemar Posted March 25, 2006 Report Share Posted March 25, 2006 Hi Carolina I have sent an email in response to yours. You are on the right track so try not to be scared. Your daughter will make it through all this just fine. God Bless Cheri PS thanks Kim Link to comment Share on other sites More sharing options...
Chemar Posted April 6, 2006 Report Share Posted April 6, 2006 bumping up for our new members Link to comment Share on other sites More sharing options...
Chemar Posted May 30, 2006 Report Share Posted May 30, 2006 bumping up for deagar Link to comment Share on other sites More sharing options...
Claire Posted July 10, 2006 Author Report Share Posted July 10, 2006 bumped for Azhorsegal. Claire Link to comment Share on other sites More sharing options...
jeanchan Posted July 11, 2006 Report Share Posted July 11, 2006 Hello Chemar and Claire. Thanks for bumping up the threads again. You know all who have contributed to this forum are like angels to me, because if not for your helpful tips and advise, my son will still be on medication - haldol. My son Jon is doing fine today, he still tics, but not as severe and frequent like before. At least now I dont have to worry and concern about him develope tardiv tics due to medication. I can never thank all of you enough.. My son is today a happier kid, although he doesnt like us to comment too much about his tics. So life is pretty normal for us. There is only one thing that is still bothering me. Jon has this habit of turning around whenever he is walking, like he is looking for something behind him. And sometimes he will just stare at an open space for a seconds, then look left to right a few times, before back to normal. It is quite a concern because he usually does this when we are outside the house, in the public. I am worried that he may bump into anyone, or injuries.. If I am not wrong, these actions are complex tics and I have been reading and researching a good supplement that is good for complex tics. Jon is currently taking a multi-gel, lecithin, primrose evening oil, vit B complex and magnesium. The previous hair analysis showed him quite high on calcium, but low on magnesium, so I did not follow the 2:1 calcium / magnesium - I hope I am doing this right. However I think there must be something missing because his complex tics does not seem to decrease.. I will be grateful if anyone can share any information pertaining to supplements for complex tics. Thanks! jeanchan Link to comment Share on other sites More sharing options...
Chemar Posted July 12, 2006 Report Share Posted July 12, 2006 Hello jeanchan as a mom who saw firsthand what nasty stuff haldol is and what it can do to a child...I am delighted that you were able to find info here to help your son get off it! Have you ever tried the magnesium taurate? Some people really do find this more beneficial than just plain magnesium, or you could try adding taurine with the magnesium ( if you see any negative impact it may be that your son is reactive to taurine and then you should no longer give it) Some people have found that carnitine is very helpful ...I have always heard acetyl-L-carnitine is best, but have also learned from some people with TS that they find the regular L-carnitine better so again it is something you would have to try to see which is best I notice that you mentioned evening primrose oil, which is good, but it is Omega6 whereas most beneficial re tics is Omega3...found in fishoil, flaxseed oil and borage oil...........some people cant tolerate the fishoil, and then flaxseed or borage (or preferably a combination of the two) work very well also jeanchan, it may still be good to supplement with a bit of calcium just to balance the extra magnesium...it doesnt have to be 2:1 also, there is a supplement called CARNOSINE (different from carnitine) which has shown a lot of promise for a variety of ailments, including tics. hope those ideas give you some things to try so that you can see if any of them help with the complex tics I would personally also add some zinc Link to comment Share on other sites More sharing options...
jeanchan Posted July 12, 2006 Report Share Posted July 12, 2006 My son has negative impact on fish oil and taurine, he tics more when he takes these. But will let him try on borage and flaxseed oil instead. Yes I should resume the calcium/mag with zinc for him too.. Never tried carnitine and carnosine before, no harm trying, one at a time. Thanks Chemar, for the details. Link to comment Share on other sites More sharing options...
Chemar Posted August 4, 2006 Report Share Posted August 4, 2006 bumping up for Jen Padgett Link to comment Share on other sites More sharing options...
Chemar Posted August 29, 2006 Report Share Posted August 29, 2006 bumping up for momto3ts and Kelly Link to comment Share on other sites More sharing options...
Claire Posted October 3, 2006 Author Report Share Posted October 3, 2006 bumped. Claire Link to comment Share on other sites More sharing options...
Chemar Posted October 14, 2006 Report Share Posted October 14, 2006 bumping up for hudsonsmom and others needing info Link to comment Share on other sites More sharing options...
Claire Posted October 21, 2006 Author Report Share Posted October 21, 2006 bumped. Link to comment Share on other sites More sharing options...
Claire Posted December 16, 2006 Author Report Share Posted December 16, 2006 bump. Link to comment Share on other sites More sharing options...
Chemar Posted February 24, 2008 Report Share Posted February 24, 2008 bumping up for newbies Link to comment Share on other sites More sharing options...
Chemar Posted March 4, 2008 Report Share Posted March 4, 2008 bumping up for newcomers Link to comment Share on other sites More sharing options...
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