Phasmid Posted January 11, 2011 Report Share Posted January 11, 2011 Not getting too worked up, but for the first time in 7 years, my ds12 went to sleep on his own last night. He has always yelled for me to be in his room. He was terrified of being in his own room at night and could never fall asleep alone. Even now, living in a tiny house where the living room is just 15 feet from the bedroom! This behavior included him demanding that I tuck the covers for him and "fix" them if they weren't right. IVIg was four days ago! He did call me once, and I said my usual, "okay, in a while." But I didn't go in. Found him asleep (albeit with lights on) an hour later! Yay, him! Link to comment Share on other sites More sharing options...
momaine Posted January 11, 2011 Report Share Posted January 11, 2011 Not getting too worked up, but for the first time in 7 years, my ds12 went to sleep on his own last night. He has always yelled for me to be in his room. He was terrified of being in his own room at night and could never fall asleep alone. Even now, living in a tiny house where the living room is just 15 feet from the bedroom! This behavior included him demanding that I tuck the covers for him and "fix" them if they weren't right. IVIg was four days ago! He did call me once, and I said my usual, "okay, in a while." But I didn't go in. Found him asleep (albeit with lights on) an hour later! Yay, him! YAY! I got one night like that after IVIG number one. It wasn't until number 2 that she was able to sleep alone most nights. Best of luck for continued healing. Link to comment Share on other sites More sharing options...
Phasmid Posted January 11, 2011 Author Report Share Posted January 11, 2011 Excuse me, but that is so FREAKIN amazing!!!! Have you, yourself, learned to sleep normally yet? Wow. Link to comment Share on other sites More sharing options...
Megs_Mom Posted January 11, 2011 Report Share Posted January 11, 2011 Whohooooooooo!!! Good for him. You should have an ice cream party tonight. I still celebrate my own bed, over a year later. Link to comment Share on other sites More sharing options...
Fixit Posted January 11, 2011 Report Share Posted January 11, 2011 Great!!!...thanks for posting..so exciting after 4 days! Link to comment Share on other sites More sharing options...
nicklemama Posted January 11, 2011 Report Share Posted January 11, 2011 Wow, congrats!!!!!! DS7 needs me to be next to him every night while he goes to sleep. Not even melatonin will knock him out if I'm not lying next to him. He gets in our bed in the middle of the night, every night. No IVIG here, just abx. I'll live vicariously through all those who have reclaimed their beds! Link to comment Share on other sites More sharing options...
peglem Posted January 11, 2011 Report Share Posted January 11, 2011 That's fantastic!!! Even if it doesn't last, it still gives you a hopeful glimpse into future possibilities! Link to comment Share on other sites More sharing options...
momcap Posted January 11, 2011 Report Share Posted January 11, 2011 Yay! Link to comment Share on other sites More sharing options...
norcalmom Posted January 11, 2011 Report Share Posted January 11, 2011 That is great !!! Its a very good sign! I'm so happy for you and your son! Link to comment Share on other sites More sharing options...
SarahJane Posted January 12, 2011 Report Share Posted January 12, 2011 Congratulations! I'm glad you're seeing good results. Link to comment Share on other sites More sharing options...
kferricks Posted January 12, 2011 Report Share Posted January 12, 2011 .That is so great! Gives me hope, I dream of the day that I can have my own bed back (((hugs))) Link to comment Share on other sites More sharing options...
amyjoy Posted January 12, 2011 Report Share Posted January 12, 2011 That is so cool!! Congrats, Phasmid!! For us, 6 weeks post IVIG, my DS continues to mostly improve, but I notice I'm still kind of on night patrol. looking forward to that going away. Maybe IVIG would help ME??? Link to comment Share on other sites More sharing options...
Phasmid Posted January 12, 2011 Author Report Share Posted January 12, 2011 (edited) TWO NIGHTS IN A ROW!!! NOT A PEEP!!!! (However... he needed me to cover the pillow with a new pillowcase because without a pillowcase the pillow "has germs." Does the germ stuff go away?). Thanks everyone, for all your support and encouragement!! Edited January 12, 2011 by Phasmid Link to comment Share on other sites More sharing options...
NancyD Posted January 12, 2011 Report Share Posted January 12, 2011 I know exactly how you feel. My DD14 did the same thing at age 12 after our first HD IVIg infusion and it was such a relief to get her out of my bed for the first time in 10 years. I never thought it would happen. Enjoy!! Link to comment Share on other sites More sharing options...
Megs_Mom Posted January 12, 2011 Report Share Posted January 12, 2011 TWO NIGHTS IN A ROW!!! NOT A PEEP!!!! (However... he needed me to cover the pillow with a new pillowcase because without a pillowcase the pillow "has germs." Does the germ stuff go away?). Thanks everyone, for all your support and encouragement!! So cool! We found that we needed some ERP to get rid of the last vestiges of OCD (germ stuff and more), but we had it for so long untreated, that she had a lot of "habits". If your son is dropping things like sleeping with you so quickly, maybe you will not need much ERP. If you do, it may be mild enough that you can do it at home (use a book such as "what to do when your brain gets stuck"). Congrats! Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now