IVIG yesterday and today for the first time

[texascatholic]

Hi All...

 

DD is currently at the hospital doing IVIG. Yesterday went OK except for chills and fever. Apparently (my husband is there with her today) she is having headaches and tics/jerks today. The great thing is that we ran into another member from the forums here yesterday and it was very encouraging! Hoping to post some good updates soon. We are still on Augmentin XR 1000 and I am unsure about sticking with it, although it does seem to have helped some...just worried about her digestive system being affected. Before PITANDS I was very reluctant to use

antibiotics unless it was a "life or death" situation...now it's all the time!

 

God blessings to you all,

Holly

[KaraM]

Holly,

 

I'll keep you all in my thoughts and hope for the best.

 

Kara

[Fixit]

Hi All...

 

DD is currently at the hospital doing IVIG. Yesterday went OK except for chills and fever. Apparently (my husband is there with her today) she is having headaches and tics/jerks today. The great thing is that we ran into another member from the forums here yesterday and it was very encouraging! Hoping to post some good updates soon. We are still on Augmentin XR 1000 and I am unsure about sticking with it, although it does seem to have helped some...just worried about her digestive system being affected. Before PITANDS I was very reluctant to use

antibiotics unless it was a "life or death" situation...now it's all the time!

 

God blessings to you all,

Holly

 

God Bless you and your dd too!!

Just said a couple of Hail Mary's for your dd and the other member there...

if i don't do them before i post...and i get pulled away, sometime don't return to them...that happens even with eating sometimes..

[texascatholic]

Wow, thanks for the Hail Marys! The Blessed Mother has had a hand in us

getting our diagnosis and treatment to be sure. And, of course, St. Therese!

 

May the Lord be with us and grant us His peace...

[T_Mom]

Thinking of you all and knowing you are in good hands-- thanks for letting us know, I will look forward to hearing more in the weeks ahead.

[texascatholic]

Went well, just dealing with headaches and minor stuff like that. We'll see what happens!

[PhillyPA]

Keep in mind that those body jerks and tics can get much much worse after IVIG. Be patient. They WILL go away. Took about 8 weeks.

[JAG10]

Holly, You and your dd are in my prayers. You are armed with faith and knowledge to see your family through this!