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    Art, Music, Theology, Homeschooling, Pregnancy and Birth, Nutrition, Medical research (including PANDAS of course), travel

texascatholic's Achievements

  1. You have posted on my posts before and are from Texas like us. Just wondering if you have any more suggestions for doctors. We have been to see Dr. infante and Dr. Russell. Both are great and PANDAS friendly. I have heard mixed reviews about Dr. Roa. I am searching for a PANDAS doctor that is an expert on the treatment not just familiar and friendly to the treatment. Any ideas?

  2. Hi There... I haven't been reading or posting on this board for a long time, but just wanted to say that although my dd(11) still has PITANDS, we are still making good strides with homeopathy. I hope to be more often to catch up on the news of what's going on out there and to help others as I can. God bless you all... St. Therese the Little Flower, PRAY FOR US (she was thought to have suffered with PANDAS)
  3. Thanks so much for your update! Very encouraging as we are travelling the homeopathic highway as well. :-) God bless, Holly
  4. You could always try Joette Calabrese. We speak to her using Skype. She's located in upstate New York. God bless! Holly
  5. Hi there... We went the IVIG route (several times with DD10) but are now doing homeopathy and the GAPS diet. Our homeopath is Joette Calabrese (google her name for her website). We've had a lot of improvement even though we are still working through issues. For us the antibiotic usage wasn't accompanied by dramatic enough improvement to continue its use. Hope that helps! God bless, Holly
  6. Hope it goes well! God bless you and yours.... Holly
  7. I am glad you had a good visit with Dr. Rao. I've always felt that he has a good handle on the totality of the situation. We are working on getting a referral to go back to Dr. Infante for a check-up visit. Hoping the best for you all! Holly
  8. From what I can see you should get on to a good Vit. D. supplement. I've been thinking about you all and hoping you are doing well. We are supposed to go see Dr. Infante next week. Still trying the more naturopathic/homeopathic stuff which has its ups and downs, but seems to be improving things little by little. God bless! Holly
  9. Hi Julie! We were GF for a number of years but didn't make a dent in things for my daughter with PITANDS until we implemented the GAPS diet and started homeopathy. Our homeopath is Joette Calabrese and she's helped us a great deal. After day 3 on the intro for the GAPS diet I saw signifigant improvement in DD's handwriting. Now after a few months of homeopathy things are so much better! Very few tics and some liveable OCD, but the rages are SO reduced. Things are much more peaceful around here. We are all doing GAPS as a family because we are all gluten-intolerant. We've been on GAPS since last March. Full-GAPS is much easier than intro. I had the added bonus of not gaining as much weight as usual with baby #6 and he's gaining weight just fine while nursing with me doing GAPS. My daughter has gone through 6 rounds of IVIG (the last one was in May) and has been off of any antibiotics since March. We are very grateful! Just using probiotics, Omega 3s, Vit. D, Fermented Cod-Liver oil. I intend to continue to update the group on her progress. God bless, Holly
  10. I'd be interested in hearing about when the meetings take place! Although we may be moving from this area...however, not until summer, most likely. Thanks! Holly
  11. Still urging folks to give the GAPS diet and homeopathy a try! We've also done IVIG (6 times!), but have seen the most improvement with these other measures. Hoping everyone has a great day... God bless, Holly
  12. We use Theraneem Organix toothpaste which is cinnamon flavored and homeopathic friendly. Still seeing good results with PITANDS DD9 and homeopathy plus the GAPS diet. God bless, Holly PS - Just had baby #6 a few days ago! He's doing well.
  13. I've had some success with my PITAND DD9 lately. Working with classical homeopath Joette Calabrese. We are off of all antibiotics and our only supplements are BioKult probiotics, fermented CLO, EFAs, and the homeopathic preparations that she's been prescribed. Also doing the GAPS diet. Our home is a much more peaceful place. :-) God bless, Holly
  14. We did have off and on periods of die-off during the intro phase of the diet...oddly coupled with a drastic improvement in her handwriting. The results from the homeopathy have been more stunning than with the diet, though. Check out Joette Calabrese if you want to look into that modality of healing (www.homeopathyworks.net - I think that's the website). We do consultations through Skype. Still doing GAPS after 6 months, and plan to continue for at least 1.5 years. God bless! Holly
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