Guest daniel Posted May 6, 2005 Report Share Posted May 6, 2005 Andy, My prayers are with your son for a full recovery. Stuart H. Freedenfeld, M.D. > 56 So. Main Street > Stockton, NJ 08559 > tel: 609-397-8585 > fax: 609-397-9335 www.stocktonpd.com This was from the post you gave me. He is a DAN doc like u said that actually was a speaker at the conference. He currently uses creme on kids instead of IV. He has not seen kids with TS as patience but adult; his nurse says. I have not spoken to him yet. thanks daniel Link to comment Share on other sites More sharing options...
Andy Posted May 7, 2005 Author Report Share Posted May 7, 2005 Go for it Daniel and remember if you use DMSA, it is covered by most insurances where as DMPS is not. We use DMPS and are planning on adding DMSA this weekend as a 2 day on 5 day off thing. Hope my son goes for it and thanks for your prayers. Link to comment Share on other sites More sharing options...
Andy Posted May 9, 2005 Author Report Share Posted May 9, 2005 This is an update of the detox treatments. My son has finished his third once a month DMPS IV treatments and this past weekend he had two DMSA treatments. He will now have 5 days off until the next weekend treatments of DMSA. So far the improvements that we have seen is a new decrease of tics overall, none on Sunday and when he was ticing he was able to control it for hrs at a time. A first. His face looked relaxed this Sunday and Monday morning, a long time since that, and he watched 3 1/2 hrs of TV in a weeks period of time with no tics during or afterwards. A first. We believe that the whole TS thing is actually heavy metal poisoning and once we get out the heavy metals most if not all of the issues should be gone for good. I am posting this not to push the detox that we are doing but to encourage parents to get their kids tested for heavy metal posioning and then if needed to look at the many types of detoxing that are out there and have been tried and tested by DAN doctors and holistic practioners. Link to comment Share on other sites More sharing options...
Andy Posted May 15, 2005 Author Report Share Posted May 15, 2005 This is our second weekend with the DMSA treatments. My son went to a party today. He goes to alot of parties. We live in a wonderful part of the world were children still have childhoods. However, this was the first party that I could remember seeing him with no excitment induced tics. He also watched a hour of TV this morning as a postive reinforcement for taking the DMSA and this was the second weekend in a row of no TV induced tics. I have my fingers crossed for this is usually a very hard time of the year for him in the past and so far it is the best that he has been doing since I could remember. We are doing alot of other things besides the DMPS IV and the DMSA supposortories but I feel that the detoxing is really doing the job now and may be the missing piece I was looking for. I would like to point out that DMPS lotion has alot of great research results and fantastic parent responses and that NDF is something that should be looked at by those with no stomach issues. NDF, if it is the real thing, would be the best and safest detox out there. Link to comment Share on other sites More sharing options...
Andy Posted June 6, 2005 Author Report Share Posted June 6, 2005 Hello everyone. I have been quite busy lately so I have not been able to post but I have responded to all personal e-mails. Basically, we are going to South Beach in Miami for my son's fourth IV treatment this Thursday and this past weekend we finished our son's fifth weekend of DMSA supposortories. The results are pretty amazing. For example we returned this past Friday after spending three nights and four days in the theme parks of Orlando. My son's excitment level was off the roof never mind his exposure to screens, his lack of sleep in the hotel room, etc. Anyone who has been to Epcot will know what I am speaking of in terms of screens. His tics did return as low grade however after a weekend of DMSA they pretty much disappeared. Make your own conclusions but it seems to me that the excitment released mercury into the blood stream and the DMSA must have then removed it. Who knows all I know for sure was that he did not become a mess and the low grade tics that appeared for the most part have now disappeared. Anyway this Thursday is a big day and we hope all goes well. Right now I am thinking of doing six months of DMPS IV's with gluthione and then depending on test results either stopping altogether or switch to the DMPS cream. I hope by then most of the metals will be out. I realize that the kids who are labeled autistic have longer treatments but perhaps that is because they were exposed to higer levels either in the body, the brain or both and need a longer detox. In anycase we see what happens on Thursday. Link to comment Share on other sites More sharing options...
mmazz Posted June 7, 2005 Report Share Posted June 7, 2005 Andy; I am so happy for you. Your child is a very lucky boy, not all fathers would take a proactive role and blaze a trail like you have done. So if ever a pat on the back was so well deserved.. you have my respect. Please keep us posted. Marie Link to comment Share on other sites More sharing options...
kim Posted June 7, 2005 Report Share Posted June 7, 2005 Andy, Daniel and I were instant messaging today, and we were hoping we'd hear from you soon. This is really starting to look like a story with a happy ending. My prayers for a full recovery for your son will be on going. Thanks for the update. Kim Link to comment Share on other sites More sharing options...
Spring Posted June 7, 2005 Report Share Posted June 7, 2005 Hi Andy, Thanks for the sharing! So glad to hear the good news. I hope he'll have further improvement with the current treatment. I believe that heavy metal toxcity plays a big role in our kids' problem. In February, my son's lab report showed that he's high on mercury, cadmium and antimony. We took the "nature chelating(??)" - Using vitamins and other supplements - the same protocol as Clare's. My son has been on the supplements for about 2 months, his toluene to TV seems improved. His tics are very mild (or not show in some days). He probably will have a follow up test in a month, and we’ll see what his heavy metal level will be… Jean Link to comment Share on other sites More sharing options...
quan_daniel Posted June 7, 2005 Report Share Posted June 7, 2005 Andy,Spring, Andy, We are so glad and happy that things are so going great. My prayer is with you family. Spring, I too want to hear more from you about the natural chelating. What general supplements are considered natural chelator. Wow..somedays your son has no tics at all!!! I will search thorugh your post for further info. thanks daniel quan Link to comment Share on other sites More sharing options...
kim Posted June 7, 2005 Report Share Posted June 7, 2005 This is a link that talks about the metals and their effects and suggestions for chelating them. I found this on the Autism/Enzyme web site. I'm not really sure who Dana is, but she replies to questions there often. http://www.danasview.net/metals.htm Link to comment Share on other sites More sharing options...
KJS Posted June 7, 2005 Report Share Posted June 7, 2005 re: May 6, 2005 posting on Dr. Freedenfeld. The correct web address for Stockton Family Practice is www.stocktonfp.com Link to comment Share on other sites More sharing options...
quan_daniel Posted June 7, 2005 Report Share Posted June 7, 2005 Kim, great link.. Seems mag/calc/zinc.. calc and zinc there is toxity.. but not on mag.. that is not true.. I though high mag can caused kidney damage..or is it mag aluminum in pepto bismal.. Please check thanks Link to comment Share on other sites More sharing options...
Spring Posted June 7, 2005 Report Share Posted June 7, 2005 Hi quan_daniel, Here is a quick overview of my son’s history. He started his tics (not TS) about 2 years ago (at age 7). We found out TV/flashes/Computers are his big triggers. He’s been avoided his triggers since then. He had heavy metal hair analysis that time, and it came out negative. Meanwhile, he’s under naturopathic treatment (with homeopathic remedies) for a year. His symptoms were under control then. In the beginning of this year, his tics were triggered GREATLY by an astronomy show that heavily involved flashes, lightings, and fast moving actions. The homeopathic remedies didn’t seem to work effectively as they used to be. He got more sensitive to lights, electronic games, TV, etc. After we read Claire’s posting, we decided to see a DAN doctor. He had Spectracell blood test (for vitamin deficiencies) and Great Smokies blood test elemental analysis (for heavy metals) in February of this year. The lab test showed he’s high on mercury, cadmium, antimony, low antioxidant level, low glutathione, and quite few nutrition deficiencies. Our DAN doctor wanted to correct my son’s nutrition deficiency first before going through the chelating. He said for some kids, once the deficiencies are corrected, and the antioxidant level is raised, the metals may be removed as well. My son started the treatment in March. Although we had difficult time to start with each new supplement, we’ve seen some progress after 2 months. Currently his tics are very mild (or almost disappear). He watched TV 5 times at school (each time for ½ - 1 hr) in the past two weeks. Although he said that he rolled his eyes in the begining of the program, we didn’t notice the difference afterwards. We believe this is just the beginning…. We’ll be more interested in seeing his next test results. I suggest reading the following thread. I learned a lot from there. My DAN doctor uses the same protocol to treat my son currently: http://www.latitudes.org/forums/index.php?...t%20doctor&st=0 Re: natural chelating - as my understanding, Selenium, C, E, and Glutathione remove the metals. Jean Link to comment Share on other sites More sharing options...
quan_daniel Posted June 7, 2005 Report Share Posted June 7, 2005 wow...thanks.. my son has ts..because at one time he has vocal..not anymore.. but I am not sure if that really matters..sometime people with allergies to milk will have vocals..I still believe it is a old style of differentiating ticcing people..not much more.. what do u think...? last two months must be great for u guys.. so his supplement is mostly Selenium, C, E, and Glutathione any mag/cal/zinc..omega 3.. how did our son's allergy got improved so much that he is off medication..!! wow!! I have so much to learn from you.. thanks daniel quan Link to comment Share on other sites More sharing options...
Spring Posted June 7, 2005 Report Share Posted June 7, 2005 Hi Daniel, Due to my son’s nutrition deficiencies, he’s currently taking Vit. C powder (buffered with cal/mag), E, Selenium, Mol, P5P, B1, Folic Acid. There’re more to be added on, but we have to take a slow process as my son almost reacts to each new supplement. My son has asthma and allergy. He’s been on allergy and asthma medicine since he’s 2. Now he’s no longer taking them. He takes Querceton for his allergy. It works fine for him: http://www.myvits.com/products/proddesc.as...nk=productlist% If it’s possible, you may want to run some tests before adding supplements. Most of supplements that my son takes are in high dosage, it'll be save to under a doctor's guidence. Jean Link to comment Share on other sites More sharing options...
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