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  1. Hello everyone, my 21-year-old brother was diagnosed with PANDAS shortly before his 18th birthday, and he also has a past history of Lyme disease. He has been in and out of the hospital and psych wards over the past several years and often unable to care for himself and in a psychotic state. I know that there is toxic mold in the home where he has lived his entire life and recently he went to stay with his older sister for a week and saw some small improvements (was able to eat, carry on some conversation, etc.) but when he returned to his home with my parents and two other brothers he grew in
  2. My Question- can anyone who has removed mold from their home or moved to a mold free environment respond to tell me what the affect was on your PANS child, if any? We recently learned we have a very bad mold problem in our home. Our PANS daughter was diagnosed 2 years ago, but we moved into the moldy house 4 years ago, and don't recall any symptoms or problems associated with moving in here 4 years ago. No one in the home has the classic symptoms of "mold illness", only PANS. Im conflicted because on the one hand I have our PANS doc saying the mold in our environment is fine and mo
  3. For anyone looking into mold illness, I just came across a paper written by an integrative doctor in Park Ridge, IL. It's completely based on Dr. Ritchie Shoemaker's work, but it's the most clear and concise explanation of the diagnosis and treatment of mold illness I've ever read. http://www.survivingmold.com/docs/Berndtson_essay_2_CIRS.pdf
  4. The Chronic Lyme Disease Summit http://chroniclymediseasesummit.com/ is a free online conference starting today. There are many great speakers and topics lined up, and I encourage anyone still looking for answers, even if you've ruled out Lyme or don't think it's a possibility, to check it out. Much of it will be relevant to PANDAS/PANS, whether or not Lyme is involved. Speakers include Dr. Horowitz, Lee Cowden, Scott Forsgren (Better Health Guy), Kenneth Stoller, and Joseph Mercola, just to name a few. Topics include mitochondrial dysfunction, brain conditions, stress and emotiona
  5. Our doctor has put my son on a gluten-free diet as part of the Shoemaker protocol for treating mold toxicity. Five weeks in, I've come to realize that he's not sticking to the diet whenever he's out with friends. Every time I catch him, he promises he'll stick to it moving forward, but its not happening. I've given him good food that he likes, including spending a lot on sushi for lunch occasionally, going to the GF bakery for sandwiches, but this hasn't been enough. He's a kid who definitely has food addictions (sugar/carbs) and who resists change or doing anything uncomfortable unless he
  6. This has nothing to do with Pandas/Pans directly, but I know that many of our kiddos have mold sensitivity issues, so I had to share. One of the chambers in ur Select Comfort bed has been deflating and losing too much air for a long time. I finally got around to replacing the air chamber today, and I took the mattress apart to do it, and I could NOT BELIEVE what I found-- the entire bottom of the eggshell foam inside the mattress was full of mold. I am so disgusted! There was no indication of any issues from looking at the outside if the mattress, and I keep not one, but TWO mattress cover
  7. My dd did the VCS eye test on Shoemaker's site. Here's the weird thing: One eye passed and one eye failed! Does anyone have a clue what that could mean?
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