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We recently had an OAT and IgG tests run for my 6 year old son who has Tourette’s (and OCD / Anxiety). OAT results showed elevated Arabinose, Lactic and Hydroxyhippuric. It also showed extremely low Ascorbic (vit C). The IgG test showed high sensitivity to Wheat. Wheat Gluten, Gliadin and Whey. With moderate sensitivity to Cassein, Cheese and cow’s milk. I would be really interested to hear if anyone who has done similar tests / had similar results and what you have done since them. I’ve not been able to find anyone in the UK who has much background in Tourette’s and the gut/brain connection, so feel we are doing this a bit blind. Our son is taking a magnesium and omega 3 supplement and are now starting a gluten free diet. A herbalist has given us an additional supplement for the yeast infection (using camomile and a few other herbs). I was interested in some of the posts on histamine – and looking at trying to decrease DAO, but don’t really know whether this is also something to try. Any advice, thoughts, input would be great.
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The results obtained from this study suggest that streptococcal infections can alter gut microbial communities leading to a pro-inflammatory state in the gut by selecting for specific bacterial strains that are normally associated with gut inflammation and activation of the immune response (Figure 7). This condition is likely maintained in patients, even after the infection itself has resolved. Moreover, an altered GM composition could have indirect effects by reducing the production of metabolites involved in important brain functions such as SCFA, D-alanine and tyrosine metabolism, and the dopamine pathway. Thus, the GM composition may possibly influence behavior, as clinically observed in PANS/PANDAS patients. https://www.frontiersin.org/articles/10.3389/fmicb.2018.00675/full
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This popped up in my Facebook feed this morning. Long suspected by many (if not most) autism families, but encouraging research nonetheless. http://www.ozy.com/fast-forward/autisms-gut-brain-connection/33302
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Hello, Our 7 year old PANDAS daughter is 6 days post IV ig and we are ready to begin addressing her diet. So much information out there on diet and PANDAS. What diets have you had success with?
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Although my dd has no stomach upset unless she is sick, I requested a H. Pylori test and it was positive. (I requested this after reading about H.Pylori causing psychiatric issues.) Like many of you, she tends to test positive for all kinds of stuff, although is asymptomatic physically and suffers mentally. I'm guessing the H. Pylori and other gut issues are causing her autoimmune issues and food sensitivities. My questions would be - have any of you treated for H.Pylori and seen diminishment of intrusive thoughts or OCD? (She has multiple other problems, but just wondering if anyone had seen progress with H. Pylori treatment.) Should the whole family be tested? I've had IBS my whole life, and a "pre-ulcer" when I was in my 20's, but no one tested me for anything. Now I'm wondering if it was actually H. Pylori.
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Hello - My DD age 12 has TS, including a screaming tic. Confirmed malabsorption and gut issues. We seem to be having some success with a regimen of 100% Gluten-free, 90% dairy free, moving toward GAPS diet, non-GMO, Young Living essential oils (massage and diffuser), 500 mg of Taurine, Therbiotic Probiotic and digestive enzymes with some meals. My problem is she dislikes taking any supplements - even chewables. The probiotic and enzymes are chewables that she will only take mixed with yogurt - which is dairy and sugar! She will not swallow pills. Does anyone have a probiotic and/or digestive enzyme that they recommend that is either a liquid or some other form? Also I have not explored taking something to combat candida/yeast which she does have. Any recommendations? I have been adding one thing at a time because her anxiety increases with each additional "thing" she must take. Thank you ALL - this forum has been a lifesaver.
