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Just an FYI reminder that, in addition to the main Latitudes/ACN website that is full of valuable info, Stop Tics Today is an excellent resource administered by Sheila Rogers, with a stellar advisory board.
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Hi there, my eight-year-old son has been ticking since he was two. We've tried some diet changes (gluten free, low sugar, only grass fed dairy) and some supplements. Sometimes these changes seem to work. Sometimes they don't. Can't find a decisive pattern. I've done a bit of research on TMJ doctors who have been able to stop or reduce tics on people with TS using a dental appliance. Jump on YouTube and you'll see for yourself. The main doctors posting on YouTube are Dr. Stack, Dr. Brown (they work together) and Dr. Sims, who per some posts on this forum, was trained by Dr. Garcia (third party account). I'm not advocating that this is going to work for everyone with TS, but I'd like to give it a shot with my kid. These three doctors are out of state. Dr. Garcia, however, works out of Tampa, Florida, which is 30 minutes from where we live. Wondering if anyone has had any personal experience with Dr. Garcia and the device he created. If you could share, I (and my son) would appreciate it very much. Please ping me personally here within the forum if you'd prefer. Thanks so much in advance, James -
I am so glad I found this forum. I hope someone can help me with my quiestions. My 7 yrs old son has tics. They started as blinking when he was in kindergarden. Then they stoped for a while and came back when he started school. We hoped they would go away again, but the opposite happened. He now has other tics. He opens his mouth a lot, nearly all of the time. He rises his eye-brown, does someting with his head/neck and he makes an r-sound. We are trying to be gluten and milk-free, not using artificial colouring etc. He takes vitamines, specially magnesium etc. It doesen`t seem to help. Not so far. We are waiting for appointment with a doctor. But these last weeks he has been complaining about pain in his mouth, neck and upper back. This pain is really troubling him. I ask him if it`s real pain or if it`s just that he feels uncomfortable. He says it`s pain. It makes him angry and easily irritated. We have almost stopped doing homework because it`s to hard for him. It may be he find it hard to explain exactly what he is feeling. But is it normal to have pain because of tics? Is pain normal for people with Tourette? I wil be thankfull for any advice and answere to my question. Anne Linn
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Hi I have a 7 year old. Last year in November, he developed some vocal tics. These eventually evolved into coprolalia. He was put on guanfacine, zolofot and risperdal. Ever since, he has been much better and the only thnig that remained were some grimaces. In an attempt to eliminate his tics and move away from these powerful drugs, we've tried a whole bunch of alternative treatements and dietary changes. - put him on a gluten free, dairy free, reduced sugar diet. - We have him on a bunch of supplements - Ca, Magnesium, Methionine,etc. - for a while, he was on a very strict, candida free diet and diflucan and probiotics Given that all of the above did not get rid of his grimaces, our suspicion turned to PANDAS. We spoke to a Pandas specialist and now have him on a dose of antibiotics with a steriod (prednisone). Three days into this treatment, we noticed a significant change in his behavior - a lot of rage and frustration. After about 5 days, we also noticed that his vocal tic had started to come back. Today is the 6th day, we've stopped prednison (after reading online that it is a significant tic triger). His grimaces are much reduced but his vocal tic is back and we are besides ourselves. The nightmare has returned. Has anyone experienced the above before? Are his vocal tics really prednisone or just a herx reaction - is this just a strep die-off?Could his tics be the antibiotics? Your help and advice is much appreciated.
