Jetocurly4
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Everything posted by Jetocurly4
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Thinking about you. I remember when this all started with my son the roller coaster ride we took as well As parents we get in this mission to figure out why this happened to our kid, how and what to do. We also have zero history in our families. My sons started younger, he was two when signs came out, he's 9 now. In my heart I felt vaccines triggered them! I could be wrong but its what I believe. I stat away from those, went totally organic, give him magnesium and extra B vitamins, no dyes or candle scents, always prepare him because of excitement, keep him active, he took karate for years and got his black belt, now he stays active with other sports. We have our UPS and downs but overall thank god, he is doing good! Magnesium really helps. He also grew up with lots of croup and upper respiratory infections. He also needed a urology surgery ( I always look for relations). Keep the faith, things will work out. I joined some great Facebook groups too, support is helpful, most people who have not experienced a tic kid don't understand so getvsupport, it helps! Big hugs!
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Question on MAGNESIUM introduction
Jetocurly4 replied to kptrsn's topic in Tourette Syndrome and Tics
Do you know the type of magnesium they are using and what brand vitamins? Does he take baths? Epson salt baths are good too. Magnesium has really helped us, we go through our uos and downs sure,and usually when we go through a bump I increase magnesium. Typically any excitemnet like video games will set them off. Without streessi g him out try and limit. Exercise type activities help calm the tucs. If he has an Xbox 360 or Wii maybe try a game to get him moving an active vs Minecraft for example. Xbox has great sports kinnect games. -
Masking Magnesium? Any advice?
Jetocurly4 replied to pasquale61's topic in Tourette Syndrome and Tics
I totally understand what you are going through. I did lots of research and drove myself crazy because I needed to get that magnesium in my son but didn't want to fight him. I found that organic lemonaid, comes in a glass bottle will mask the kids natural calm quite well. Another thing I do is buy capsules of magnesium, one is brain something the other by solaway! My son drinks tons of water a day so I sprinkle the capsule in his waterbottke and he actually has no idea. Aw found the Epson salt lotion but the smell bothered him. He isn't into baths anymore but when he was the salts helped. Hope that helps. -
Improvements shown:-) still more need to be done.
Jetocurly4 replied to hkginger's topic in Tourette Syndrome and Tics
Thank you for the good ideas -
Essential Oils and KST chiropractor care
Jetocurly4 replied to Jetocurly4's topic in Tourette Syndrome and Tics
Thank you! -
Essential Oils and KST chiropractor care
Jetocurly4 replied to Jetocurly4's topic in Tourette Syndrome and Tics
Thank you so much Chemar. I am going to look into NUCCA as well and thanks for the Jasmine information, I will be sure to order that one. -
Wondering if anyone has tried essential oils to help relax and reduce tics. In addition chiropractor care specifically KST method. Thanks
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New and Overwhelmed! Where do I start to help?
Jetocurly4 replied to Momof3nyc's topic in Tourette Syndrome and Tics
I agree its a great book. We found out my son had food allergies and deficiencies after he was DX. Magnesium is important for tics, there are many options out there for internal use and soaking in epson salt. We avoid dyes, nitrates and have gone organic free as well. We just started KST therapy, a form if chiropractic. I try all natural approaches and refuse to medicate. He's gone months free of tics but as school approached they came back full force. Any questions we all are here for you -
For my son when he was tested, we had two sets of lab work done from two different labs at my request. Also the ped suggested next time he was sick, to have him tested at that time too so we did that.
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My son was two and the same thing happened, the tics often changes and the docs kept saying it will go away and if it doesn't after a year then we will look at it, well they never did go away and he is now 7. They are on and off. The docs wanted to medicate him after a confirmed dx but I am trying all natural aspects that I can. We tested for PANDAS it was negative, tested twice actually. WE only use organic, no dyes, no smells, no preservatives and found out he had food allergies so stop eating those of course. Also stopped vaccinating and increased magnesium. It's on and off, sometimes they go away for months then they come back and they are always different. Follow your heart, look into options, research. We also got my son into Karate, it has helped as well!
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I believe food allergies that are unknown along with vaccines could trigger. I remember my son had a bad reaction to vaccines and then these came out so young, I blame them.
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What vitamins and suppliments help your tic child?
Jetocurly4 replied to Jetocurly4's topic in Tourette Syndrome and Tics
Thank you all so much. I am going to research everything you said. I appreciate it so much! -
What vitamins and suppliments help your tic child?
Jetocurly4 replied to Jetocurly4's topic in Tourette Syndrome and Tics
Chemar, I read through your post with the list of things that have helped your son, but I am so confused. How do I get that all in him. Is there one vitamin or do you buy them all separate? Is there a certain brand you use? What if my little one cant swallow pills and hates the taste of liquids? Do you have an exact list of brands that you buy? -
Thank you all so much for the responses. I have been doing no nitrates, no dyes, no preservatives and only organic for some time. Recently we tried gluten free but we didn't last. My son is already very picky and underweight and this just made it worse for him and I felt it stressed him out more and in addition he can't afford to loose weight. I do gave Magnesium and tons of vitamins packed with Bs. We have had him allergy tested and celiac tested often, he is allergic to soy and fish. I bought tic tamer too, and tried just about everything. He was in a what I call remission for about a year but then they came back full force and its just been hard, I think more so for me then him. He has had them since he was 2 and he just turned 7. Thinking about everything and sending good thoughts....I wish I could come up with a magic potion to take them away.
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Thank you so so much!
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Curious if anyone out there has a child with Tourette and decided to try a gluten free diet and if they noticed any change. Any information is appreciated. Thanks!