mandyknowles

Yea, I am working on that. I haven't contacted the school back yet, because I wanted to see how the IVIG goes before I do anything. But, she is not getting anything done schoolwise yet. We will see how it all goes before I decide on what to do.

See, I have asked for one of those, but they said no. That they dont do that. But, I have contacted numerous schools about this, and they said if we are in their district, they have to do what she needs.

well, I am so not sure what exactly I am facing here. She has had this thing since december. And as for the asthmatic thing, EXACTLY! What will they do for that(two of my children have this), and what would they do for a child who has epilepsy or cancer? they are labeling a sick child and I am not allowing that for my daughter. I have learned alot since she has been sick and one of those things are to not lay down and take BS...

ok, i understand that you wanted this for your child; BUT, I include my child in every decision. She is the type of child who will be destroyed! and i do mean completely. She is, and i say this with complete confidence, the smartest and brightest kid in her class. I agreee to an IEP, in fact I asked for one, but I want her education to be mainstreamed and not in a self contained setting. I have fought for my child for almost a year now, and if fighting her school is what it takes, then they can bring it on. She will never 'fail' a test for special ed. I know my child and i know how bright she is. she is the reason for my fight.

Wwll, another teacher has told me to break free all together and go the home school route...and i am seriously considering it, because like u said, it could sour the relationship with the school; and i have two other children in that school

Yea i know, i just wanted to explain how they are acting to us. It's just crazy

I am sure it does, but she has NO REASON to be in a special ed class where she cannot be with her friends. She is sick, not slow, not behavioral, but sick...I just cannot do that to her. We go for IVIG next week and I probably will do homebound until the nine weeks is up anyway, but the way they chose to come at me, does not fly right by me.

Exactly! They are trying to bully me and I am in no mood for it! I am so ready to take any steps i need to, to make them let her stay in her regular classes.

She has like 4 different teachers and this one is the only one who has said anything about it...and yea i am mad as heck too! the super, counselor and this teacher attacked me about it this morning. and thing is, its not like i asked them to do anything for her. I was there with her taking care of her if she needed me. i am so frustrated about this. i did home bound the entire last year with her, without a single piece of help from them and now this...ugh no i havent talked to him alone yet. i was so mad i was waiting on my husband to go with me because i fly off the handle sometimes. and this would have been one of the times had i stayed there any longer. but yea i have been doing a little research tonight and my mother in law is a teacher in a different district so i called her to get her to speak to their super to see if this was even legitimate...

She has like 4 different teachers and this one is the only one who has said anything about it...and yea i am mad as heck too! the super, counselor and this teacher attacked me about it this morning. and thing is, its not like i asked them to do anything for her. I was there with her taking care of her if she needed me. i am so frustrated about this. i did home bound the entire last year with her, without a single piece of help from them and now this...ugh

well, the only thing that happened was her chest spasms, which is where she stops breathing and i breath in her mouth and she goes on her merry way...she was participating in class and so forth...I didnt mind the IEP, in fact I asked for it, but they want to put her in a class where she does sit all day with other kids and does not go to her regular classes. They feel that her chest spasms tramatize the other children. That is why I got so upset and so did she. In her school, its not mainstream special ed. It's one class with all the kids who are special needs and I feel that she doesnt need that at this time. I am serious when I say that if I put her in homeschool she would graduate at least two years before her class. Her school knew about this before hand and let her come. One teacher complained, and she has never had her before and I guess she didnt want to deal with her.

ok so yesterday went good except for the few episodes in the afternoon. today we get to school and they want to put her in special ed. my child is the SMARTEST child in the entire 6th grade and because ONE teacher complains they want to do this? I DON'T THINK SO!

Thank You! Yea it is pretty scary...and yea she loved going back to school...jumped right back in there, and i was so glad!!

You know, I hadn;t thought of that, but it kinda makes sense to do it like that. It would make it easier for her and me as well..Thanks for the thought!

Well, my daughter finally went back to school today. I went to every class with her and sat and watched her. This is the first time she has been to school since september of 2009. It was great to see her with all her friends again; it was like she never missed a beat! Then came the class after lunch...She had at least 5 chest spasms and stopped breathing in this class...I am kind of thinking that the whole day is too much. So, we may switch off and go morning one day and afternoon the next and alternate; At least until next week when we go to IVIG..I am sooo hoping this helps her with these symptoms. We are starting paperwork on her IEP friday morning, because of her health reasons, and they told me she would be able to stay in her regular classes, they would just modify her work if needed. So, all in all we had a good experience today, but like i said just trying to decide what to do on all day or half day...

I just took my daughter back to school for the first time since last September. The lady who does IEP's came to me and we are doing one of these, for this reason. I am glad they came to me for this. They said it will help with alot of things.

Mine does. It was rather scary this week, because my daughter was just hanging out in Gma's room w/ the door closed. And the thing is, usually when she closes the door, it means she wants to get into something that she's not supposed to. But this time she wasn't. She was just laying on the bed, staring off into space. She would not come out to eat or anything. This child never sits still- never and a whole day of this was very spooky. I finally figured out that she was staring at this picture on the wall, a circular lacy thing, kinda like a snowflake design. Gma let her have the picture and she's been fixated on it for a couple of days, but at least now she's eating and active again- as long as she has that picture with her! This is completely new, but fixations on objects is not new. WOW, my daughter does kinda the same, althugh i never really thought of it as an OCD thing...the more i pay attention, the more i see differences in things she does, and its never the same thing for a long period of time either. like sometimes she might to the makeup and underwear thing, but before it was like the hair, and the toenails thing. idk but its wierd how things can change so fast. i get used to one thing and another comes along...

Sooo, what is it that your mom is waitng for?

Ok, so on top of the underwear thing where she wears them wrong side outward, my daughter has now started obsessing over lipstain...she has to apply it every 5 minutes when it dries or its gone. Does everyone children change their specifics?

WOW u guys! Thanks! Maybe she does have this problem. I will try those other places that dont have seams..

hi! we r doing two days straight of the high dose. they say its better to do it like that...

Ok, so the past few weeks my daughter has put her underwear wrong side outwards? I have no idea what the heck this means, and i hope its just an accident that she does this...But, everyday for the past 3 weeks????

YAy!! I am so happy for you!! We do IVIG on the 17th and 18th of Aug; I hope we get as good results as you have!!

Before we found out that my daughter had lyme, she had been in the hospital for a month and they couldnt find out what it was. by that time she had no control over her top portion of her body from her waist up. she couldnt sit up at all. they sent us home. two weeks later she passed out and then started having seizure like episodes that happened all the time. we JUST got a pandas diagnosis, but her infections are mostly gone except for her chest spasms and some other stuff...we are still doing IVIG though, because she also has an immune deficiency...so maybe like the same thing.

Ok Cool!! Mandy