Jump to content
ACN Latitudes Forums

Fixit

Members
  • Content Count

    2,122
  • Joined

  • Last visited

Everything posted by Fixit

  1. We are patients of Scott Smith PA...out of same office. Scott is great, highly versed, always learning, helps you understand, and wonderful bedside manner. We have not used Dr N.
  2. make sure not rose hips...stimulating buffered or estered can be stimulating.
  3. Alot of my investigation for ds seems to be circular and currently has brought me back to adreanals. though ds' Pupils seemed to become regulated once i started his diet, they are actually quite dialated most of the time. THis is a link i posted some time ago. Seems very poinient as we had a marvelous visit with a new dr very close close to me (to do alcat, and needed someone guidance on figuring out diet and food allergy/extreme sensitivity)and he is the first one to mention/even notice that his eyes are like saucepans, without me asking about it/first. I am very concerned about this adre
  4. Odd that you posted these 3. i have 3 pandas boys...ticcers...down on the list of concerns(because not AS hard to deal with(and so subtle), the tics are so overwhelming, but related. As you treat one condition sometimes the other subsides too. DS12 vision DS10 noise DS5 skin younger 2 in remission...oldest doing very well currently..(we need a knock on wood icon)(and a boot to the behind icon too)
  5. Could be either. Or both. Maybe saturations point has been attiained with abx to fight infection and/or/antinflammatory response. I have had that happen with just abx and happen with just steroids.
  6. What a wonderful story of healing! Thanks for coming back and updating with the good news!
  7. This is what I was told by a doctor: Stay on valacyclovir (valtrex) for 3 months then switch to valcyte for 3 months because viruses mutate around the antiviral. Check titers at the end of the 6 months. I asked about taking a break one day a week; the answer was no. Thanks I was just skipped this mornings dose. but continued tonight upon reading this post. It lead me to look at this a little closer. Found this interesting site. oddly it looks like the same dr treats hhv6 and thyoid issues...a good read on the thyroid thing. http://www.drpodell.org/alternative_thyroid_tre
  8. Every time we use Scram(the new name) by healthforce, we have only had postivie results. vEry gentle, but alot of pills. for ds12 i go up to 8 pills not 10 for the 18 days. but if we do the product again..i might go 10..we will see.. he is not quite 110lbs. it also detoxes and treats candida (so i always question is it the detox, candida, worms...or all of the above?)
  9. Just replied to you on other board. I am glad you dr is on board with these numbers. My dr wants them smack in the middle..with only .25 variance either side. THANK you for such a wonderful compliment. As well as you and so many parents here!!!!! I have to say we do have gl about 2x a week...but whole grain,,,no enriched/or bleached. Also per other reply to you... this thread has not done DS in...he is still holding strong as he came in the door and all eveing!!!! he is also less slouchy and his eyes are no longer dialted...(i thought they were a bit the other day...a
  10. Just replied to you on other board. I am glad you dr is on board with these numbers. My dr wants them smack in the middle..with only .25 variance either side. THANK you for such a wonderful compliment. As well as you and so many parents here!!!!! I have to say we do have gl about 2x a week...but whole grain,,,no enriched/or bleached. Also per other reply to you... this thread has not done DS in...he is still holding strong as he came in the door and all eveing!!!! he is also less slouchy and his eyes are no longer dialted...(i thought they were a bit the other day...a
  11. Yes...it was me!!!!! i can't believe it either... i did use info from alot of parents/threads here, and friends of parents, to see what made sense... what their results might be form things they are doing like sal=free diets...kpu responses... then there is other information i had, but didn't know where to apply it.(like k2, upping dosages untill body fills its thirst then backing off) When the kids are so bad...and you add one thing..maybe one thing they definitly need...you can't see a difference because of so much interferance from other things that are knocked down. i think cleanin
  12. Oh, I appreciate your question. That is kind of a part of my question. After stopping the abxs,,is it possible to rebound to a better place, than prior to beginning of abx(when thing were so bad while on them)? But I did stop the sals a day prior to stopping the abx. The night of stopping the 2 abx’s he seemed better Then better the next day…and we have just continued from there. ( I thought for sure it was a true kpu problem) I don’t know if ds’ journey is any 1 part. I think all things become/became super sensitized at some point I think myco p was the final trigger to this terrib
  13. PS meant to mention..i did do alinia again for 3 weeks covering the full moon. Next full moon I might do the other parasite cleanse by healthforce again, which Is a 3 week course. Or I might skip one cycle …so tired!
  14. PS meant to mention..i did do alinia again for 3 weeks covering the full moon. Next full moon I might do the other parasite cleanse by healthforce again, which Is a 3 week course. Or I might skip one cycle …so tired!
  15. Things are going Very well. I almost don’t want to say anything..(but we are -95-98%(if we blip with allergy shot next week I will need some hand holding.!!!!!!!) Here is brief story if possible. Ds is 9-9.5 on tic scale the month of Sept…this is umpteenth time he is like this…(thinking his life will be sh^#t) I am crying my eyes out as some of you know! Sunday 9/24…stop all salicylates…stay on abx’s but take kpu test Monday 9/25 stop alinia, mepron, diflucan(continue herbs, cefdinar, Up zith to 500) Start giving 1 core and ½ k2 By evening tics down to 6-7 9/26 realize I need
  16. Things are going Very well. I almost don’t want to say anything..(but we are -95-98%(if we blip with allergy shot next week I will need some hand holding.!!!!!!!) Here is brief story if that is possible. Ds is 9-9.5 on tic scale the month of Sept…this is umpteenth time he is like this…(thinking his life will be sh^#t)cyring my eyes out. Sunday 9/24…stop all salicylates…stay on abx’s but take kpu test Monday 9/25 stop alinia, mepron, diflucan(continue herbs, cefdinar, Up zith to 500) Start giving 1 core and ½ k2 By evening tics down to 6-7 9/26 realize I need to watch anything g
  17. Interesting. NOw that everything i read over the years ago..have put me into an AH-ha place..i see how the 3 together have a relationship. you know...how you read, and read, and get it..but don't...and try things, and they work, but not really, but something else is worse....to get to a bit of an awakening is good.
  18. KO...not that you have to share with us... BUt i would no let them go with "big signs of infection" i would insist on copies of the labs.
  19. Just my 2 cents. I am a mom of 3 pandas kids(main, or sole symptom tics)(yah disgraphia...gets an occasional mood, but if you are constantly ticcing or have an infection, you tend to get cranky...((i do as an adult when i just get a little run down)) With this 3+yrs episode we have had trichatelanamia, one run of bed wetting,...but disgraphia is the next next worse symptom There is really more to say than that, but to get the influctuation, and all the subtleties out is difficult to type. Let me say there is a lot of info to reseach. ds12 did pex and got worse. i believe there was
  20. My son regularly chews shirt. Sopping sometimes Tic?..Surpression of a different Tic? anxiety? i think sf mentioned to me parasites? Ds used to grind teeth to the gum line prior to adult teeth. If you are asking about today specifically?...because i was going to ask if any other kids are worse today as it is a full moon night. But i too started a new form of liposomal artiminson(sp)today. we are also 10days into valacyloveir. i let him have a glass of A2 (jersey) cow milk today...
  21. Yes, AND i was wondering if myco p was an issue too and they were seeing a link to a cycle with that.
  22. Being that we are attempting to stay on a failsafe diet, it is leading me to other things. THe manager from the "organic food"section at my local kroger and i have become friends over the last 6 yrs. we update each other on new info and he is a kind ear as i have shopped there many a time with tearful eyes trying to read ingredients. Unrelated, i'm developing a pstd for this store. I like it better than a store closer to me(publix, more expensive anyway)that i have already find i avoid do to pstd. Back to the story..the manager told me he watched documentary by coast to coast about
  23. Can you ask your friend if the 28 days revolved around the full moon? Or no correlation? Thanks
×
×
  • Create New...