

Fixit
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We are patients of Scott Smith PA...out of same office. Scott is great, highly versed, always learning, helps you understand, and wonderful bedside manner. We have not used Dr N.
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make sure not rose hips...stimulating buffered or estered can be stimulating.
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Alot of my investigation for ds seems to be circular and currently has brought me back to adreanals. though ds' Pupils seemed to become regulated once i started his diet, they are actually quite dialated most of the time. THis is a link i posted some time ago. Seems very poinient as we had a marvelous visit with a new dr very close close to me (to do alcat, and needed someone guidance on figuring out diet and food allergy/extreme sensitivity)and he is the first one to mention/even notice that his eyes are like saucepans, without me asking about it/first. I am very concerned about this adrenal fitigue. Not a light or easy issue. It may be part of ds continual slumped posture, disinterest, thyroid, extreme allergies, food issues. I hope this gives someone a step in the right direction. http://www.suffernomore.com/Pain/AdrenalFatigue.htm
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Odd that you posted these 3. i have 3 pandas boys...ticcers...down on the list of concerns(because not AS hard to deal with(and so subtle), the tics are so overwhelming, but related. As you treat one condition sometimes the other subsides too. DS12 vision DS10 noise DS5 skin younger 2 in remission...oldest doing very well currently..(we need a knock on wood icon)(and a boot to the behind icon too)
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PANDAS Network.org listed on NORD
Fixit replied to thereishope's topic in PANS / PANDAS (Lyme included)
DITTO!!!!!! -
Significant improvement over night -
Fixit replied to momma2sethandjiji's topic in PANS / PANDAS (Lyme included)
Could be either. Or both. Maybe saturations point has been attiained with abx to fight infection and/or/antinflammatory response. I have had that happen with just abx and happen with just steroids. -
What a wonderful story of healing! Thanks for coming back and updating with the good news!
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I hope I don't regret posting this!?!
Fixit replied to Fixit's topic in PANS / PANDAS (Lyme included)
This is what I was told by a doctor: Stay on valacyclovir (valtrex) for 3 months then switch to valcyte for 3 months because viruses mutate around the antiviral. Check titers at the end of the 6 months. I asked about taking a break one day a week; the answer was no. Thanks I was just skipped this mornings dose. but continued tonight upon reading this post. It lead me to look at this a little closer. Found this interesting site. oddly it looks like the same dr treats hhv6 and thyoid issues...a good read on the thyroid thing. http://www.drpodell.org/alternative_thyroid_treatments.shtml http://www.drpodell.org/yeast-infection-treatments.shtml http://www.drpodell.org/chronic-fatigue-syndrome-hhv6.shtml I just asked ds if he feels like he has more energy.(not that he could run a marathon, but does he feel less sluggish) DS says he feels like he wants to do stuff now. He was always just slumped over. Never sat upright. Rested head on table at dinner. Looked/s like poor muscle tone. Now he seems more aware/active/engaged within the moment even if its' just by posture.(never seemed like depression, just poor muscle tone or tired) -
Every time we use Scram(the new name) by healthforce, we have only had postivie results. vEry gentle, but alot of pills. for ds12 i go up to 8 pills not 10 for the 18 days. but if we do the product again..i might go 10..we will see.. he is not quite 110lbs. it also detoxes and treats candida (so i always question is it the detox, candida, worms...or all of the above?)
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I hope I don't regret posting this!?!
Fixit replied to Fixit's topic in PANS / PANDAS (Lyme included)
Just replied to you on other board. I am glad you dr is on board with these numbers. My dr wants them smack in the middle..with only .25 variance either side. THANK you for such a wonderful compliment. As well as you and so many parents here!!!!! I have to say we do have gl about 2x a week...but whole grain,,,no enriched/or bleached. Also per other reply to you... this thread has not done DS in...he is still holding strong as he came in the door and all eveing!!!! he is also less slouchy and his eyes are no longer dialted...(i thought they were a bit the other day...and he was tudy then...but both have remitted) oh.i may have to pick your brain on under 1 thing... i have heard of that too! -
I hope I don't regret posting this!?!
Fixit replied to Fixit's topic in PANS / PANDAS (Lyme included)
Just replied to you on other board. I am glad you dr is on board with these numbers. My dr wants them smack in the middle..with only .25 variance either side. THANK you for such a wonderful compliment. As well as you and so many parents here!!!!! I have to say we do have gl about 2x a week...but whole grain,,,no enriched/or bleached. Also per other reply to you... this thread has not done DS in...he is still holding strong as he came in the door and all eveing!!!! he is also less slouchy and his eyes are no longer dialted...(i thought they were a bit the other day...and he was tudy then...but both have remitted) -
I hope I don't regret posting this!?!
Fixit replied to Fixit's topic in PANS / PANDAS (Lyme included)
Yes...it was me!!!!! i can't believe it either... i did use info from alot of parents/threads here, and friends of parents, to see what made sense... what their results might be form things they are doing like sal=free diets...kpu responses... then there is other information i had, but didn't know where to apply it.(like k2, upping dosages untill body fills its thirst then backing off) When the kids are so bad...and you add one thing..maybe one thing they definitly need...you can't see a difference because of so much interferance from other things that are knocked down. i think cleaning the diet..really cleaned the slate. i can really see if something is affecting him. we use samento, noni, apo=hepa. just started mimosa. the thing with our bodies is...you knock one domino over the the whole thing comes down. but you pick one up, then you have to manually pick up the other,,,then one falls back down, you pick it up, then try to grap another domino on the way up...much more difficult and trying to keep it in balance is hard. Starting to understand angonist/antagnost relationships a bit has i pull through this. http://www.fitday.com/fitness-articles/nutrition/vitamins-minerals/5-micronutrients-and-where-to-find-them.html#b even though there is no kpu problem..i think the b6(p5p)with zinc and mang will pull more copper....it's already low side...so i will supp with 2mg of cu a week and see how we go. I believe even llm is suppig with cu at this point. also i don't know where ds hhv6 was prior to this...did his load come down since we were on artemisin for several months prior to draw...and maybe if his other loads come/came down then he cant fight other stuff better. llmd and i believe he has some yeast going on...i mean it would be crazy if he weren't. using candicid forte...3x daily....in combo with a less wheat diet. i wonder if i stopped this if we would get 100..alot of salicylates in here...oregano, rosemary, ginger,(but i think thyroid is better!) note molyb is supposed to help with that too...caution not to od. ds responds really well to healthforce products...i believe they had to change to name to SCRAM. per some lymers and autisic parents, you need to hit parasites for many months as the populate different parts of your body. so will give break from alnia....(oh maybe that helped the hhv6/other as it is supposed to be anit viral too)..and do scram next round..then back to alinia...then back to scram....hope to be done. But that scarm product also helps with detox and yeast...so it really helps his system. garlic is one of the only herbs allowed on diet...so i use it alot...good for yeast, glutithione. speaking of glutithione....after showers/baths have kids do a cold water rinse. The shock makes the body produce its own glutithione. So that exlpains the polar bear club and the jacuzzi, cold water thing. Ds is doing it and i am doing it. Even if you just lower the water to where it is much cooler will help. i give 100bill probiotics nightly, rotating varieties, no sac, no fos's...has to do with amines, phenols. one day i susspect they will not be an issue.(though i can't say he has an issue with them....just being safe) I always hope i can help one more person or get one more piece of puzzle for someone.(before i run away and never look back!!!!) Julia...your son's dose for thryoid seems pretty high. i would definietly look into one of the drs listed on that site. also might need to combo thyroid meds, untll you figure things out. if his cholesertol is high that could be due to thyroid....(not just genetic or lymes) PS...this thread hasn't jinxed ds yet...still looking good, home from school!!!! oh he is a little less slouchy, eyes are no longer dialated..!!!!! -
I hope I don't regret posting this!?!
Fixit replied to Fixit's topic in PANS / PANDAS (Lyme included)
Oh, I appreciate your question. That is kind of a part of my question. After stopping the abxs,,is it possible to rebound to a better place, than prior to beginning of abx(when thing were so bad while on them)? But I did stop the sals a day prior to stopping the abx. The night of stopping the 2 abx’s he seemed better Then better the next day…and we have just continued from there. ( I thought for sure it was a true kpu problem) I don’t know if ds’ journey is any 1 part. I think all things become/became super sensitized at some point I think myco p was the final trigger to this terrible episode. And I cannot believe that I NEVER checked his hhv6 until 4 weeks ago????? GO check your lab lists people!!! llmd still thinks babesia at play...maybe that's why not 100%? maybe thryoid not in balance yet? probably hhv6 and myco p have not come all the way down either? For ds his mouth would itch with eating certain fruits…or certain types of the same fruit, or the same fruit that one day is bad, one day is good? I asked every neuro, immune, ped, llmd about this and they just said, Will outgrow, Don’t eat that, Don’t eat it in a particular season, only in fall, winter???? So I thought there has got to be something to it. If I can get it past his lips w/o itching ,,,what is it doing internally, what is happening that I can’t see. But this diet is no way to live and he is a growing 12yr old, who is almost 5’8. What is causing this? His allergies and sal issue are worse than ever. One cool story. http://www.naturalthyroidchoices.com/MyKids.html on this site you can find a list of thyroid drs by state. http://www.thyroid-info.com/topdrs/index.htm I was happy to see that my dr was already on here. They believe the thyroid should be in the middle…not the fringes, or out at all. Ds used to be out…but last test he was just inside.(I had lowered the dose on my own…bad thing) Going to call my dr to up his dose and resched, a blood draw in a couple months. Oh forgot to mention that about 10 days ago I started to add l-glutaimine. Not nearly what sf uses. Just about 1/32 that’s right 1/32 of a tsp 3 x day. I’m hoping the dose is so small it’s getting absorbed in the intestins before it converts to glutamate in the brain. You can get the spoons at William Sonoma or other kitchen stores…a pinch, a dash, a smidge etc. Low and slow.. My goal is to get ALL or most of the foods a back in without overloading the system..but I hope the key is this thyroid…and then to manage it with supplements and a good diet. aNd hopefully he can have a cheat day for holidays and such. For thyroid per my dr,,,rye , millet,quinoa, aramyth and such are ok….just not “wheat”….but I am still limiting that. -
I hope I don't regret posting this!?!
Fixit replied to Fixit's topic in PANS / PANDAS (Lyme included)
PS meant to mention..i did do alinia again for 3 weeks covering the full moon. Next full moon I might do the other parasite cleanse by healthforce again, which Is a 3 week course. Or I might skip one cycle …so tired! -
I hope I don't regret posting this!?!
Fixit replied to Fixit's topic in PANS / PANDAS (Lyme included)
PS meant to mention..i did do alinia again for 3 weeks covering the full moon. Next full moon I might do the other parasite cleanse by healthforce again, which Is a 3 week course. Or I might skip one cycle …so tired! -
Things are going Very well. I almost don’t want to say anything..(but we are -95-98%(if we blip with allergy shot next week I will need some hand holding.!!!!!!!) Here is brief story if possible. Ds is 9-9.5 on tic scale the month of Sept…this is umpteenth time he is like this…(thinking his life will be sh^#t) I am crying my eyes out as some of you know! Sunday 9/24…stop all salicylates…stay on abx’s but take kpu test Monday 9/25 stop alinia, mepron, diflucan(continue herbs, cefdinar, Up zith to 500) Start giving 1 core and ½ k2 By evening tics down to 6-7 9/26 realize I need to watch anything going in mouth…ie toothpaste Started adding more zinc.. Friday 9/28 -9/29…things are down to a 5 or better. Sunday 9/30..add 50mg selenium Rotating in other forms of k2 ie mk4 vs mk7(only 2x a week) Added 2 drop iodine a couple days earlier. Ps..detoxing at least 1x daily..ie charcoal or drawing formula with zeolite. 10/1 heading into the 4 range.. We had a few infractions during week, a couple of blips ..but going into 3 range by 10/6 Saturday and up core to 2 on this day 10/9ish already heading into 2 range ,stop cefdinir..add magnesium taurate.. 10/13 Saturday, catching food infractions..Decide to stop Core and supplement individually as some ingredients might be stimulatory, some doses might be too high..adding key items eliminating others.(partially not sure how to dose) Some time in here, as I investigate Sal issue…I’ve come to realize how KEY the thyroid is. Possibly causing SAL issue…I had taken ds off thyroid med for a month to see where he was and at blood draw was at high end of normal. Started adding back and every 2 weeks upping dose..just getting to 75mcg ish this week(11/7/12). I will be posting a load of some interesting articles, leads that have put me where I am today on thinking. Please read all way through blogs, articles, studies, they pull you in different directions in same article but might be key for your kid. 10/14-10/19 Adj to individual supps. Get allergy shot 10/17/12. Trying to really watch gluten as my thyroid dr told me yrs ago how it effects thyroid.(even just for me). Trying to rotate diet with allowed foods. And trying to do no gluten days..eating clean and starving!!!! Continue blipping. 10/20/12 start valacyclovir as never realize ds hhv6 is crazy high. As per my post around this time..ds got so hyper, wrestling his younger brothers every 3 seconds…. 10/24/12..we have gone on/off ldn a couple times(no issue either way)..we tried going off of his 2mg dose this day..he was fine, but just a little more tudy(he’s a teen now), than I am used to and I didn’t feel like dealing..so added back 1 mg around 10/27/12..(I think it helped)(maybe all teens should be on 1 mg of LDN ) Found out NO KPU problem..but I think there are some key elements in there that are good for ticcers and allergies and thyroid. Also changed to artemsisnin liposomal…but fear dose is too low..only 1 pill bid..total 100mg daily? By 10/27/12….I think he might be better than the week before!!!!!??? Below 2 ???? 1ish…could it be!!! 10/28-11/3…I up magtuarate, up molyb to 75mcg, I up thyroid med By 11/3/12 Things are so good I thought I would be posting we are 100% Just looked closer at ds copper….in range but LOW(87—189)(ds 89)..these tests were all prior to starting any supps > There have been no supps for 4-6 months. 11/6/12 Just gave 1mg cu and gave other ½ today. Will do this only 1x weekly as it is only eliminated 10% over 72hrs…if I got that right. Copper also needed to maintain thyroid. NOW..mind you I am still on eggshells…and will forever be…..and afraid every time I test a food that might have sals…but hoping once thyroid is lifted and supported, the issue will be mute(or at least limited) I think all his baby teeth are out too!!! HERE IS MY QUESTION(S) MOST IMPORTANT This is ds 2nd 10day round of Val…. I am afraid to stop and afraid to continue. Should I take a week, 10days, 2 weeks off and then continue with another round? I have 2, 10day refills left. I think that the sal diet has been key! I think thyroid is the master key!(think of it as a form of methylation) I think that I got an extra boost and the last push from the VAL. Anyone think that I got a rebound by stopping alinia and mepron… I read couple posts that that said…they were worse on abxs but once stopped, they were better than before starting the particular abx? I am going for the 100% Great article on hhv6 and artemisinin http://naturheilpraxis-hollmann.de/HHV-6_Artesunate.pdf http://adhd-treatment-options.blogspot.com/2009/04/10-ways-zinc-can-combat-adhd.html http://www.healing-arts.org/children/ADHD/nutritional.htm manganese…read towards bottom (also talks about raging kids) http://immortalhair.forumandco.com/t3186-manganese-deficiency-and-hair-loss http://www.ncbi.nlm.nih.gov/pubmed/20415606 http://www.ncbi.nlm.nih.gov/pubmed/12796527 manganese…toward bottom talks about healing tardives… http://www.uofmhealth.org/health-library/hn-2881000#hn-2881000-uses Thyroid… Great stuff on Copper, read all the way to bottom…some great research http://www.health2us.com/zn_cu.htm http://www.anyvitamins.com/copper-info.htm long thread…continue on to 2nd page as well… talks of sal issue…going into poor thyroid..and then vitamins http://curezone.com/forums/am.asp?i=1755137 viruses, thyroid http://www.virologyj.com/content/6/1/5 thyroid, amines……also note threads on the right…especially one on adhd and thyroid. http://autoimmunethyroid.wordpress.com/2010/01/04/i-am-no-longer-sensitive-to-amines/ http://autoimmunethyroid.wordpress.com/2009/08/30/adhd-and-hypothyroidism/ also trying to keep selenium and iodine in balance.. moylbdenium…..candida… http://www.arthritistrust.org/Articles/Molybdenum%20for%20Candida%20albicans%20Patients.pdf molyb…chrones…other http://lpi.oregonstate.edu/infocenter/minerals/molybdenum/ http://www.livestrong.com/article/361012-what-are-the-health-benefits-of-molybdenum/ food allergies..sensitveiyyy.back to b6 zinc http://www.foodmatters.tv/articles-1/food-allergies-is-there-a-natural-cure
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Things are going Very well. I almost don’t want to say anything..(but we are -95-98%(if we blip with allergy shot next week I will need some hand holding.!!!!!!!) Here is brief story if that is possible. Ds is 9-9.5 on tic scale the month of Sept…this is umpteenth time he is like this…(thinking his life will be sh^#t)cyring my eyes out. Sunday 9/24…stop all salicylates…stay on abx’s but take kpu test Monday 9/25 stop alinia, mepron, diflucan(continue herbs, cefdinar, Up zith to 500) Start giving 1 core and ½ k2 By evening tics down to 6-7 9/26 realize I need to watch anything going in mouth…ie toothpaste Started adding more zinc.. Friday 9/28 -9/29…things are down to a 5 or better. Sunday 9/30..add 50mg selenium Rotating in other forms of k2 ie mk4 vs mk7(only 2x a week) Added 2 drop iodine a couple days earlier. Ps..detoxing at least 1x daily..ie charcoal or drawing formula with zeolite. 10/1 heading into the 4 range.. We had a few infractions during week, a couple of blips ..but going into 3 range by 10/6 Saturday and up core to 2 on this day 10/9ish already heading into 2 range ,stop cefdinir..add magnesium taurate.. 10/13 Saturday, catching food infractions..Decide to stop Core and supplement individually as some ingredients might be stimulatory, some doses might be too high..adding key items eliminating others.(partially not sure how to dose) Some time in here, as I investigate Sal issue…I’ve come to realize how KEY the thyroid is. Possibly causing SAL issue…I had taken ds off thyroid med for a month to see where he was and at blood draw was at high end of normal. Started adding back and every 2 weeks upping dose..just getting to 75mcg ish this week(11/7/12). I will be posting a load of some interesting articles, leads that have put me where I am today on thinking. Please read all way through blogs, articles, studies, they pull you in different directions in same article but might be key for your kid. 10/14-10/19 Adj to individual supps. Get allergy shot 10/17/12. Trying to really watch gluten as my thyroid dr told me yrs ago how it effects thyroid.(even just for me). Trying to rotate diet with allowed foods. And trying to do no gluten days..eating clean and starving!!!! Continue blipping. 10/20/12 start valacyclovir as never realize ds hhv6 is crazy high. As per my post around this time..ds got so hyper, wrestling his younger brothers every 3 seconds…. 10/24/12..we have gone on/off ldn a couple times(no issue either way)..we tried going off of his 2mg dose this day..he was fine, but just a little more tudy(he’s a teen now), than I am used to and I didn’t feel like dealing..so added back 1 mg around 10/27/12..(I think it helped)(maybe all teens should be on 1 mg of LDN ) Found out NO KPU problem..but I think there are some key elements in there that are good for ticcers and allergies and thyroid. Also changed to artemsisnin liposomal…but fear dose is too low..only 1 pill bid..total 100mg daily? By 10/27/12….I think he might be better than the week before!!!!!??? Below 2 ???? 1ish…could it be!!! 10/28-11/3…I up magtuarate, up molyb to 75mcg, I up thyroid med By 11/3/12 Things are so good I thought I would be posting we are 100% Just looked closer at ds copper….in range but LOW(87—189)(ds 89)..these tests were all prior to starting any supps > There have been no supps for 4-6 months. 11/6/12 Just gave 1mg cu and gave other ½ today. Will do this only 1x weekly as it is only eliminated 10% over 72hrs…if I got that right. Copper also needed to maintain thyroid. NOW..mind you I am still on eggshells…and will forever be…..and afraid every time I test a food that might have sals…but hoping once thyroid is lifted and supported, the issue will be mute(or at least limited) I think all his baby teeth are out too!!! HERE IS MY QUESTION(S) MOST IMPORTANT This is ds 2nd 10day round of Val…. I am afraid to stop and afraid to continue. Should I take a week, 10days, 2 weeks off and then continue with another round? I have 2, 10day refills left. I think that the sal diet has been key! I think thyroid is the master key!(think of it as a from of methylation) I think that I got an extra boost and the last push from the VAL. Anyone think that I got a rebound by stopping alinia and mepron… I read couple posts that that said…they were worse on abxs but once stopped, they were better than before starting the particular abx? I am going for the 100% Great article on hhv6 and artemisinin http://naturheilpraxis-hollmann.de/HHV-6_Artesunate.pdf http://adhd-treatment-options.blogspot.com/2009/04/10-ways-zinc-can-combat-adhd.html http://www.healing-arts.org/children/ADHD/nutritional.htm manganese…read towards bottom (also talks about raging kids) http://immortalhair.forumandco.com/t3186-manganese-deficiency-and-hair-loss http://www.ncbi.nlm.nih.gov/pubmed/20415606 http://www.ncbi.nlm.nih.gov/pubmed/12796527 manganese…toward bottom talks about healing tardives… http://www.uofmhealth.org/health-library/hn-2881000#hn-2881000-uses Thyroid… Great stuff on Copper, read all the way to bottom…some great research http://www.health2us.com/zn_cu.htm http://www.anyvitamins.com/copper-info.htm long thread…continue on to 2nd page as well… talks of sal issue…going into poor thyroid..and then vitamins http://curezone.com/forums/am.asp?i=1755137 viruses, thyroid http://www.virologyj.com/content/6/1/5 thyroid, amines……also note threads on the right…especially one on adhd and thyroid. http://autoimmunethyroid.wordpress.com/2010/01/04/i-am-no-longer-sensitive-to-amines/ http://autoimmunethyroid.wordpress.com/2009/08/30/adhd-and-hypothyroidism/ also trying to keep selenium and iodine in balance.. moylbdenium…..candida… http://www.arthritistrust.org/Articles/Molybdenum%20for%20Candida%20albicans%20Patients.pdf molyb…chrones…other http://lpi.oregonstate.edu/infocenter/minerals/molybdenum/ http://www.livestrong.com/article/361012-what-are-the-health-benefits-of-molybdenum/ food allergies..sensitveiyyy.back to b6 zinc http://www.foodmatters.tv/articles-1/food-allergies-is-there-a-natural-cure
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What wonderful news!!!!
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Interesting. NOw that everything i read over the years ago..have put me into an AH-ha place..i see how the 3 together have a relationship. you know...how you read, and read, and get it..but don't...and try things, and they work, but not really, but something else is worse....to get to a bit of an awakening is good.
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KO...not that you have to share with us... BUt i would no let them go with "big signs of infection" i would insist on copies of the labs.
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Just my 2 cents. I am a mom of 3 pandas kids(main, or sole symptom tics)(yah disgraphia...gets an occasional mood, but if you are constantly ticcing or have an infection, you tend to get cranky...((i do as an adult when i just get a little run down)) With this 3+yrs episode we have had trichatelanamia, one run of bed wetting,...but disgraphia is the next next worse symptom There is really more to say than that, but to get the influctuation, and all the subtleties out is difficult to type. Let me say there is a lot of info to reseach. ds12 did pex and got worse. i believe there was and infection that didn't clear prior to it as he had an a salvaary gland infection that came back 2x's and we just stopped the abx for that 1 week prior to pex. Also just found out, other than some lyme indicators, he has a VERY high viral load...so there are a couple of other reasons why pex may not have worked, other than overshoot. We have not done ivig. 1...keep the apt with dr....you will have it done...get his point of view...chew on the info he presents. You don't have to do any of it. 2...salicylates really affect my ds12 ...over the years it has gotten worse...and no dr seems think it an issue. i just stopped all, about 5 weeks ago and life is better. 3..slowly adding key vitamins. 4 ...ds has other terrible pollen allergies that are crippling. he has been on allergyshots for 2 years. this is scary to start..but for us may be the right thing so far....not to say i won't pull them if i feel that is what is holding him back. 5...per sal issue...i keep coming to thyroid issue....at 5yrs he tested out of range...drs didn't want to do anytying????..if there is a scale and you don't follow it...why do you measure???? at 9 when the sh(*&* really hit fan(we had 13-15 strep/tic epsisodes prior with complete remission), i took him to my thyroid guy and put him on meds. now that i know more...i may have to increase dose> I am getting info that suggests that some sal issues are tied to poor thyroid....needs to be dead center of scale. But poor thyroid may be due to candida and too much glutin...(attacKs thyroid) 6 then look into aminos 7...THIS REALLY SHOULD BE HIGHER ON THIS LIST...CHECK FOR ALL/ANY INFECTIONS...THERE IS A LONG LIST.(so you do need dr's to start) 8..check for all dysbiios,,,methylyization, candida, thyroid,ect. per many very smart people including amy yasko, bonnie grimalrdli and others..quite a few here on this board....strep does something, not only to the brain....but the gut... So here is some old stuff from Bonnie Grimaldi The following addresses TS/OCD/ADD. The diagnosis would lie in the degree of vitamin B6 dependency/deficiency, and how long the person has been in this state. Carl Hansen, Jr. M.D. of Minneapolis describes celiac disease in several of his TS patients. This could be a pathway to vitamin B6 deficiency via malabsorption. Streptococcal infections have also been associated with TS. This could be a combination of the hyaluronidase's (an enzyme produced by the hemolytic strep that depolymerizes the ground substance of tissue) or streptokinase's actions on the blood brain barrier, the drain of vitamin B6 from the bacteria's own useage, the body's requirement of B6 for immunity, and the antibiotic's B6 antagonistic properties. A pre-exising B6 dependency/deficiency could be uncovered. Then a bit later in the same article I solidified my theory on the premise that Jason is probably mildly vitamin B6 dependent. He was either born requiring high amounts of B6, and/or B6 antagonists attacked early in his first year of life. B6 antagonists are hydrazines (plant growth regulators, tartrazine, etc), DOPA found in certain beans, penicillinamine, antioxidants in petroleum, many drugs including penicillin, erythromycin, phenobarbital, tetracycline, corticosteroids, sulfamethoxazole, etc. Amino acids began building up in his system, from decreased transamination, etc. Serotonin became decreased from tryptophan not being able to be utilized. Allergies developed (which is in association with low B6), I believe allergy produces swings in histamine levels which causes a constant fluctuation in neurotransmitters capable of producing mood swings and rages. The conservation of vitamin B6 (when not abundantly available) causes it to be used by the prevailing neurotransmitter system at any given time, leaving other neurotransmitter systems less than optimally functional. Histamine receptors have been found to trigger dopamine receptors directly. Histamine is also a neurotransmitter affected by deficient vitamin B6. Its receptor sites are probably increased to compensate. Kinins released into the body's tissues in response to immune complexes can damage the blood brain barrier, thus altering the sensitivity of brain cells to acetylcholine, serotonin, dopamine, histamine, epineprine and norepineprine. http://www.bio.net/bionet/mm/neur-sci/1996-February/022416.html http://gordonresearch.com/articles_autism/role_of_excitotoxins.html
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My son regularly chews shirt. Sopping sometimes Tic?..Surpression of a different Tic? anxiety? i think sf mentioned to me parasites? Ds used to grind teeth to the gum line prior to adult teeth. If you are asking about today specifically?...because i was going to ask if any other kids are worse today as it is a full moon night. But i too started a new form of liposomal artiminson(sp)today. we are also 10days into valacyloveir. i let him have a glass of A2 (jersey) cow milk today...
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Tick recurring fever - my friend had great success with Doxy
Fixit replied to Hopeny's topic in PANS / PANDAS (Lyme included)
Yes, AND i was wondering if myco p was an issue too and they were seeing a link to a cycle with that. -
article looking at GMOs and their effect on gut bacteria
Fixit replied to dut's topic in PANS / PANDAS (Lyme included)
Being that we are attempting to stay on a failsafe diet, it is leading me to other things. THe manager from the "organic food"section at my local kroger and i have become friends over the last 6 yrs. we update each other on new info and he is a kind ear as i have shopped there many a time with tearful eyes trying to read ingredients. Unrelated, i'm developing a pstd for this store. I like it better than a store closer to me(publix, more expensive anyway)that i have already find i avoid do to pstd. Back to the story..the manager told me he watched documentary by coast to coast about gmos...now he will not buy anything, even occasionally, that is not non-GMO. Best i could find so far. http://www.coasttocoastam.com/show/2012/09/12 ps..not sure how this will effect quality...but kellogs has bought kashi and Gmills has bought cascadian -
Tick recurring fever - my friend had great success with Doxy
Fixit replied to Hopeny's topic in PANS / PANDAS (Lyme included)
Can you ask your friend if the 28 days revolved around the full moon? Or no correlation? Thanks