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lele

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Everything posted by lele

  1. Thanks God, my son's horrible tic getting much better, I will say thank you for all the friends in our forum. Here is the list I did to help him fight the sneezing tics, I know I should do one each time, but, you know an over worried mom can't wait. 1)Magnisum bath 2)quercetin 250mg/day 3) foot massage 4) Chinese cupping( chinese suction cup), this is so easy, eveyone can do it at home, just use vacuum cup, not the one with fire. if any one need the information, let me know. Aagin, can't tell which one work better, but his sneezing tic gone for 90%.
  2. We did the strep culture, titer and some antibodies check, all of them turned to negtive, no where to go for further check. I noticed one time when he ate eggroll, he has some sneezing tics, hopefully this is the reason and hopeflly this bad tic can go away soon. Thanks for you help, Chemar.
  3. Hi Lynn, I didn't try tried Benadryl yet, want the natural treat first. My son is 9.5, 80lbs, how much quercetin do you think I should try with my son. Start with the Benadryl is a good idea to see if this is allergy related. Thanks for you rkindly help. Lele
  4. Hi Pat, Thanks for helping me. I don't know if this is allergy induced or not, but one thing I can tell, after he came back from a party where he ate some eggrolls and Asian food, he got his mild sneezing tic flare up, this is a non stop breath in the air through the nose, and 5 times/second, does quercetin can help? Anyhow, I will go buy it and give a try. Lele
  5. My son is 9.5, had TS for 2 years. During the past 2 years, his tics are mild, but from last Sunday, he suddenly flares up with a borrible sneezing tic, 5 sneezes in a roll, with 2-3 seconds break then come back, non stop! Nothing could help to release this. I would appreciate any information you can give me. Thank you. Lele
  6. Hi, I know how you feel. I'm encouraged by these forums though and know we can get these things figured out, even if it's painfully slow at times. I wish I could snap my fingers and instantly understand all of our body's processes, what's needed for balance, foods, medicines, etc. But little by little...I know how you feel. My son was on Singulair and we took him off of it because we realized the chewable tablets contain aspartame(we've learned our son is sensitive to artificial colors/flavors/sweetners). Also, there has been literature that says the inhaled medicines do a better job at controlling asthma than Singulair. But then we saw the inhaled steroids caused severe reactions/tic'ing and have taken him off that too, gulp, his asthma can be severe. He has a cold now and his asthma is acting up, so now we're using Ventolin as needed and Resperactin Breathe Free Formula for Children (found at Health Food store). I'm not saying it will work for everyone, but so far he seems to be getting through this cold without the steroids and minimal use of Ventolin. I'm hoping this continues. Little by little.....
  7. Thanks Jan. It is so painful to deal with multi health condition with a kid. My son's tics getting worse when he started his asthma prevention grug, and the wheezing of asthma is still out of control.................. I don't even know where to seek help Lele
  8. That is what I am struggling with, my son's asthmas looks really out of control now, he is on singulair and he has a little bit weezing everyday, with some cough. Steroid is our last hope, but everyone knows how bad it effects tics. So hopeless
  9. Thanks for encouraging me, Pat. I am suffering your pain. Before my son has his first asthma attack, he is 95% free of TS, with the using of Singulair and the steroid nasal spray, his tisc start to flare up, more and more vocal tics come back, and more and more shruging, lifting arms........But I have nothing to do to help him. My heart was smeshed again.
  10. Finally, we decided no shot on him, several months of Waxing from tics will kill me.
  11. Hi Patty, We have never use intal before, since he had his first asthma attack on Sep. 20th, Dr. gave him Singulair. This is the 3rd week we put him on Singulair, hopefully by the end of this month we can see some improvment. By the way, is Intal a steriod drug? Thanks for sharing with us.God bless you. Lele
  12. what a hopeless and helpless mom I am! I am pretty sure the nasal spray and Singulair make his tics a lot worse, but I can't stop it since he has another asthma attack, and the only prevention drug we can use except singulair is steroid Can't do anything but crying................
  13. Massage from reflex areas 1-6, massage with thumb for 100 times Massage from reflex areas 1-6, massage with thumb for 100 times reflex areas 1 - is the parathyroid gland, which is reflex zone for Seizures, massage on the big toe, from tip to the heel reflex areas 2 - is the thyroid gland: massage with thumb for 100 times reflex areas 3 - stomach and pancreas area, from the center of the foot to lateral of the foot direction; reflex areas 4 - and neck area from little toe to index toe reflex areas 5 - cerebellum and brainstem areas, from the toes to the center of the lateral direction 100 times reflex areas V6 - sinus area, grasp five toes in one hand rub the five toes in a circle clockwise, 100 times by the other hand I wish I could label on the picture.
  14. http://photo.blog.sina.com.cn/list/blogpic.php?pid=47ddf199t81fed6c84b4c&bid=47ddf1990100h45v&uid=1205727641 check this link, and open the image
  15. Please read this link first: http://en.wikipedia.org/wiki/Reflexology It is talking about the zone therapy, which is the fundation of this foot massage: Reflexology (zone therapy) is an alternative medicine, complementary, or integrated medicine method of treatment involving the physical act of applying pressure to the feet and hand with specific thumb, finger and hand techniques without the use of oil or lotion. It is based on what reflexologists claim to be a system of zones and reflex areas that they say reflect an image of the body on the feet and hands, with the premise that such work effects a physical change to the body.[1] A 2009 systematic review of randomised controlled trials concluded that the latest available evidence does not show that reflexology is an effective treatment for any medical condition. From wikipedia
  16. For his tics, I learned this from a chinese TS forum, let me try to translate it.
  17. Hi Christy, We must be strong since we are moms. I will get my own shot too, at least we will not get sick and deliver the virus to our kids. I am still holding him from the shot, hopefully we are right, can't face the fact that the shot flares up his tics for months. There must be some other way to build up kids immune system other than a shot. God bless them. Lele
  18. By the way, we do foot massage every night for him by ourself, looks like it works. But it is so hard to explain it. If any one interested, I will try to describe it.
  19. Thanks Megan, I want to try some NIN JIOM on him, I know I love that. My son was always prone to chronic bronchitis and pneumonia too, whenever he got cold, it started with horrible coughing, I still need to talk with the doctor about what is the risk if he get flu, it is so painful to make decision!!! Lele Lele
  20. I go kack and forth on my son's flu shot too since this is his first flu season with asthma, it is soooooooo painful to make decision. Lele
  21. Hi cidermill , Another struggling mom is here, I am conserning the same problem now, my 8 years old has mild tics with vocal and got his first asthma attack last month, he is taking Singulair now. I am worrying on flu shot too. take care. Lele
  22. Hi Bonnie, "Try researching the NAC, it's really been a lifesaver for us regarding congestion and coughs", that is really what we are looking for! My son always has a chear throat type tic, and coupled with a little bit mucous, I don't eaven know it is vocal tic or allergy. By the way, what is NAC? N-ACETYL CYSTEINE (NAC) ? which brand do you suggest? Thanks a lot for helping me. Lele Hi Lele, We use just about any brand as long as it's capsules that can be open. I usually mix the NAC(yes, N Acetyl Cysteine) with juice for ds. Hi Bonnie, We will give him some for try, tahnks for your kindly help. Lele
  23. Thank you so much for helping me, Chris, Megan, Trish and Molly. I am still worrying about the flu shot and tics, but my ds has asthma, that will be another story if he knocked down by the flu. We never took flu shot for him, and he was fine before, but now, can’t take the risk. It is so hard to make decision…………Hopefully we can find some way to increase his immune system. Lele
  24. Hi Bonnie, "Try researching the NAC, it's really been a lifesaver for us regarding congestion and coughs", that is really what we are looking for! My son always has a chear throat type tic, and coupled with a little bit mucous, I don't eaven know it is vocal tic or allergy. By the way, what is NAC? N-ACETYL CYSTEINE (NAC) ? which brand do you suggest? Thanks a lot for helping me. Lele
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