

ajcire
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Everything posted by ajcire
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The dr. said he suspected my pandas ds is a carrier... he is on antibiotics right now and likely will stay on them for a bit... he suspects that my ds is the one giving my dd the strep that she keeps getting (with sore throat symptoms). My son tests positive for strep with minor tics and behaviorial/mood issues as his symptoms... he has tested negative at times as well.. My mother asked me... if he is a carrier than why is he not like Typhoid Mary infecting everyone around him? I was wondering the same thing.. I mean my dd does get it... by wouldn't he be infecting everyone? I mean, sometimes I don't even know he has the strep and get him cultured until after my dd has the sore throat symptoms. I'm sure he has it sometimes when I don't catch it.
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Thanks..
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Where do you buy that?
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The people working there said that I was the 3rd person who was in today with their kids for this test. They asked if I would mind telling them what the purpose was... I was really brief as my kids wanted to get the heck out of there but I tried to explain the strep connection and why I was having it done.. obviously I don't know if that is the same reason as the others... I told them I suspected that they would be seeing a lot more of that test coming in although I know my ped could have done this in his office....
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PANDAS but memory like and elephant...
ajcire replied to earnestfamily7's topic in PANS / PANDAS (Lyme included)
So, out of curiosity, EarnestFamily and Ajcire, are your kids also better with "whole-to-part" conceptualizing than "part-to-whole"? In other words, if they're presented with a building project or a puzzle, and it's all in pieces from the very beginning, and they don't have access to a picture of it or have never seen it assembled, do they have trouble putting the pieces together in the right way? But if they come upon it whole, and then they or you dis-assemble it, they can put it back together, lickety-split? My son has never enjoyed standard puzzles, even the really simple ones as a very young kid. Originally I thought he was thinking, "What's the point?" But I eventually realized that if he had no idea what it was "supposed" to look like, he was reluctant to get started, much less complete it. But he could dis-assemble almost any mechanical object or toy . . . a robot, a vacuum cleaner, etc. . . . and then promptly put it back together, exactly as it was meant to be! Freed says this is another characteristic of "right-brained" kids. My son has always liked puzzles... not sure as to the different kinds.. I mean, I need to see what it should be too before I can do a puzzle. But this might be along the same lines... Legos.. my son loves legos but he really only likes them if he has a blueprint to follow.. it had to be exact to the picture.. If I told him to just build something, anything he was at a total loss and just had no interest. It is only now at the age of 7 that he is getting better at the abstract... he has always been so concrete. I can see it in his writing at school.... even with imaginative play he would create rules... couldn't just let it be. He's much improved in this area and at the age of 7 it doesn't really stand out but at the age of 3-4 it really stood out that he didn't play the same as other kids.... He would find patterns in things... a psychologist told me that I should stop worrying about his form of play because who is to say that playing with trains is the right kind and liking to do puzzle sheets is the wrong kind. Preschool was harder for him socially than second grade... because now other kids have grown into some of his interests and he is a little tiny bit more open to looking at their interests. -
PANDAS but memory like and elephant...
ajcire replied to earnestfamily7's topic in PANS / PANDAS (Lyme included)
Interesting...my ds started reading at the age of 3... he had some sight words at 2 1/2. He actually asked me at 2 1/2 when he would learn to read... I never expected the answer to be 3. It is like you described... he didn't go through the learning to read process that I was familiar with. It definitely has a lot to do with his memory. My mother was over the other day and my 2 1/2 year old was looking at books with her... I said to her, "Can you believe DS1 was just about starting to read at his age?" My mother said yeah and jokingly looked at my 2 year old and said, "Yeah, what's the matter with you?" He looked up and said, "Nothing" .... I looked at my mom and she knew what I was thinking... that with any luck there is nothing wrong with him and that is why he is NOT reading yet. -
PANDAS but memory like and elephant...
ajcire replied to earnestfamily7's topic in PANS / PANDAS (Lyme included)
Yep... his teacher said when she can't remember she just asks him. -
I don't see the harm in doing the aso titers on the family.... even if it was paranoia but I don't fully understand the whole thing. Even if yours came back elevated... doesn't that just tell you that at one point within the last year you had it? It doesn't mean you actually have strep currently right? I thought that most people would have at least slightly elevated titers if checked because of how common strep is? No?
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SmartyJones, I do think our kids sound similar in this way. I totally get what you are saying. I know if my son had the episode you described that it would not have been about going to someone else's house or what not but strictly about the fact that what was supposed to happen didn't. This happens all time for us if he is in that mode. His reactions are not as strong as your ds's were and I think in the end my son would have gone rather than to give up the playdate but it would have been a big battle first. Some of my son's little episodes of those types things could really be ones that any child might have but he takes it farther and gets really stuck at it. It's not always what he is reacting to that stands out to me but the way he reacts to it and how he can't get himself back together again. I can have the same exact thing happen and get 2 totally different responses from him depending on when. Meg'sMom, you should so totally open a practice to work with parents and caregivers of children with ocd!! You really have such an amazing grasp on it.
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I am always reminding my son that sometimes plans change and it is nobody's fault... things happen. He only has problems with this when everything else is off for him too.
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With my son it is that cut and dry....if he tells me he will do something after a certain demand is met, he will do it. It's as if nothing ever happened and he's fine... It's beyond him being a brat and just wanting to get his own way though. He truly can't get himself together until it's done. I never thought of it as ocd with him but more as an inflexibility but I don't know.
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That scene is so similar to something my son might do. He gets stuck on things and then makes demands though.. and until his demand or until he snaps out of it he is completely irrational and unreasonable to talk to. I always considered my son mild and now I wonder if I have just gotten so used to it that I think it's mild... I can tell when it is going to happen with my son though... everything changes, his tone, the look in his eye, his body language.
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Am I the only one who doesn't get the science?
ajcire replied to ajcire's topic in PANS / PANDAS (Lyme included)
Michael, I double checked on my coolness too so don't feel bad. Seriously though, while I don't get the technical stuff I do have you guys to thank for me at least getting the jist of it. -
Am I the only one who doesn't get the science?
ajcire replied to ajcire's topic in PANS / PANDAS (Lyme included)
I dunno, but is anyone else here jealous of their 'sexy' relationship? ............... ................ Faith, nothing would be a bigger turn on for me than for my dh to at least make an attempt at getting this all... he has no idea how lucky he would be if he did -
Am I the only one who doesn't get the science?
ajcire replied to ajcire's topic in PANS / PANDAS (Lyme included)
Glad to see I am in good company -
New childhood vaccines schedules released
ajcire replied to thereishope's topic in PANS / PANDAS (Lyme included)
Yeah, that was the reason they gave me for why they wanted to jab my 1 day old with the Hep B vaccine... because people don't come back for it.... as if my 1 day old was at high risk for Hep B. -
Am I the only one who doesn't get the science?
ajcire replied to ajcire's topic in PANS / PANDAS (Lyme included)
Phew. That's what I was hoping. That there were others of me out there. I am in awe of their conversations. -
I wish I had good input but I don't... just hugs because that must have been a heartbreaking decision to make. Take comfort in knowing you are doing what you need to do for your son's health and safety. I hope that you encounter the right people to help him have a quick recovery.
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I consider myself to be fairly intelligent but I have a confession... so many of these posts, articles and what not are going right over me. I was just curious if it is just me or if it's just that a lot of you have a science/medical background or just that you have been forced to understand the science out of a need to help your child? I feel thankful right now that my ds is mild because the science part of this is just so beyond me. Mostly I just want someone to tell me I am not the only one.... so please someone.. tell me that you don't understand either cause it seems so many of you are able to carry on what appear to be extremely intelligent conversations regarding this all.