Ausclare
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Hi guys, I'm back!
I've just had the most amazing weekend retreat. I went on a macrobiotic weekend!
I don't know if I liked it or not!
Fri night we had a small cupful of brown rice with some special pickles and miso soup.
No food until Sat lunch which was small bowl of brown rice gruel, some bits of seaweed a, small bowel of vegetables . We could drink water if we were thirsty between getting up and lunch , but not too much.
Sat dinner- I couldn't eat, I managed 3 teaspoons of rice, but due to the massive detox of my body- from sugar, bread and a dash of alcohol! I developed a bad migraine and nausea. That night they offered us a dessert and I had to knock it back!
I was in bed from 5pm- 6am!, it was such a severe withdrawel, that I'm contemplating never eating sugar again! When I awoke, I felt like a new person even my tongue feels clean!.
Sun - No food until midday for lunch, then we had a nice soup, a buckwheat baked veg thing and a salad.
In between all that we did massage,yoga, meditation, bush walking and had lectures and cooking classes on the energy of food, which is changed with everything that is done to it. From where it is grown to how it is prepared, cooked and eaten. Fascinating.
The strangest part was that we had to eat in silence, and chew our mouthfuls 100 times.
It was truly amazing watching how people reacted to ridding themselves of physical and emotional problems bought on by diet. The chewing really helps. It is because if you chew your food to liquid in the mouth before swallowing, the digestive process is already started and the rest is done in the stomach, but not as harshly as usual, this is probably why we need to enzyme supplement, because we use ours up in this process when we don't chew properly.
I'm almost back to reality again! I had to pick the boys up from 3days at nan's and the allergy shiners one has got is unbelievable.
Tommorow we're back on failsafe. Which is completely at odds with macrobiotics, but the problem is my kids won't eat that type of food.
I learn't that even with the sensitivities, if they went macrobiotic for 1 month, they would be free of all the health issues. But trying to plan and cook those meals is a bit tricky when your working as well.
Plus if they don't eat them properly, they don't get all the nutrients.
So we'll just start with chewing for now!
On the subject of fluro lights
I've just replaced our globes with those long life globes, but we have covers over them. Is this the same as fluro's?
I know it is really stessful doing all that cooking Caz and Marina, but you are both such good mum's, you will be duley rewarded!!!!!!!!!!!!
We are moving soon, just up the road, so I hope the kids arn't intolerant to anything in the new house!
I can't wait as we've been living in a 2 bed small lounge for 3 yrs. This one has 4 bed 2 bath and huge lounge!
Come and visit one day, anyone!
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Hi Marina,
surprisingly, the teacher sent home a note yesterday, explaining that she had spokento the children when Connor was out the room and thinks she may have rectified the problem.
We'll see!
Thanks
Marina
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Hi Nessie,
I'm married to a Scotsman!
I cannot find any info on the Palm oil, but I'm sure I read somewhere that it is not great for sensitive people because it has to be really refined to be used.
I cannot for the life of me remember where I saw it. It might be the Dr Mercola site.
The Failsafe book that I have doesn't list it, try emailing Sue Dengate on her website.
www.fedupwithfoodadditives.info
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Hi Dylan,
Connor was really excited to get your email,
he will reply, but he's away for a few days. When all you guys start chatting you'll be able to learn heaps about geography!
I'm Connor's mum and I would also be interested to learn about Texas as I have a business trip coming up in February. I will need to know what sort of weather you will have then, so I can pack my clothes. It will be really hot in Australia at that time of year.
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Hi Marina, we bought a Phillips Lcd TV, thank goodness for Harvey Norman 24months interest free!
I had a disturbing conversation with Connor's teacher yesterday.
I went in to explain that he'd had 2 days off for his tics and I mentioned that I thought it might have had something to do with an incident last week when he was doing peer support.
This is when gr 6 kids come into the class and take groups in the lower classes for "Peer Support".
His teacher said yes, she was amazed at how upset he'd been that day as his normal gr 6er wasn't there and another one had taken the group. Connor had been laughing and was asked to leave the room by the older child. This is the 1st time ever he has been punished like this as he is so easy going and co operative in class, even his teacher expressed how surprised she was, although I don't know where she was at the time.
He was so upset that his teacher ended up taking him to the staffroom to console him and stated to him that "boy his tic was really bad at this time".
I could not believe that she did not contact me to tell me of the incident, knowing full well how stress can affect the tics. On top of this on the same day, because his vocal tics were really bad, another child kept turning around to glare at him, which of course made things worse.
I was not informed of any of this until yesterday. When I bought it up.
Connor then told me this morning that he and another girl felt sick at school all day yesterday and that the teacher they had was an emergency teacher, he said it was the perfume that the teacher was wearing, that made them unwell.
When is society going to realise that it is unacceptable to have someone wearing strong perfumes in confined places.
In the Melbourne Child mag last month, they had an article on kids with death causing nut allergies. It was very informative and I thanked God we were not in that boat. This month there was a letter in this issue, from a parent complaining of the restrictions put on her child at school because they were unable to take nut products in their lunch and their child was a vegetarian. Fair enough, but no child ever died in a school yard due to vegetarianism.
Where is the common sense?
Sorry I'll hop off my soapbox!
Connor is back at school today, his tic is reducing since we talked abut things last night. So Stress does play a major part with these kids.
Marina have you got one twin that tics and one that doesn't?
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Lyn,
did your boy have all his immunisations?
If so, you could get your local GP- not the specialist as he seems to be one of those (threatened) Drs I told you about
to order a blood test for heavy metals.This would at least rule out one thing and in Australia you need a Drs signature to order this, I'm not sure about Singapore.
I will try and find what info I can on alternative medical practitioners over there.
Good luck.
Clare
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Hi Claire
our Summer starts on 1st Dec, So yes we are still in spring and the pharmacutical companies are making millions on hayfever stuff!
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The more I read Mercola, he more suss I get.
Did you see how he gradually moved the conversation from apples and their benefits to his new book and then went on to talk about something completely different with fish oils?
The failsafe diet does not ban apples completely, but they suggest after the elimination test, that you try the low salycilate Golden Delicious apples to see if there is a reaction.
This way you will not neeedlessly remove apples totally from your diet.
Unless the apples are truley organic and well washed, you are more likely to consume insecticides and other chemicals anyway, which will contribute to cancer causing problems. The Mercola article fails to explain this. Rats and other animal test subjects do not have the same DNA as humans therefore, even though some test results look good on paper, they are not 100% true in relation to the results on humans.
So I have to agree with Heather's comments, that parents with children with sensitivities to salycilates ((and amines)- my comment) have a hard time not to feel guilty about depriving our children of "healthy food" unfortunately in this case it is more detrimental to give it to them.
We are lucky that we have the option to supplement if we feel the need, but look at all the people in the world who don't have fresh fruit and veges every day/ or every 2nd day for that matter and still go through life not contracting cancer or showing tic symptoms.
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The more I read Mercola, he more suss I get.
Did you see how he gradually moved the conversation from apples and their benefits to his new book and then went on to talk about something completely different with fish oils?
The failsafe diet does not ban apples completely, but they suggest after the elimination test, that you try the low salycilate Golden Delicious apples to see if there is a reaction.
This way you will not neeedlessly remove apples totally from your diet.
Unless the apples are truley organic and well washed, you are more likely to consume insecticides and other chemicals anyway, which will contribute to cancer causing problems. The Mercola article fails to explain this. Rats and other animal test subjects do not have the same DNA as humans therefore, even though some test results look good on paper, they are not 100% true in relation to the results on humans.
So I have to agree with Heather's comments, that parents with children with sensitivities to salycilates ((and amines)- my comment) have a hard time not to feel guilty about depriving our children of "healthy food" unfortunately in this case it is more detrimental to give it to them.
We are lucky that we have the option to supplement if we feel the need, but look at all the people in the world who don't have fresh fruit and veges every day/ or every 2nd day for that matter and still go through life not contracting cancer or showing tic symptoms.
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Lyn,
Please seek a 2nd opinion for you son, if you can, try to find a dr that has an interest in natural therapy or a naturopath. If the neurologist has done all the tests and is only offering traditional medical drugs, he will try to tell you that that is the only thing that will work. We have all been there.
A lot of the people on this forum have given accounts of what the drugs did to their children, try to read them so that you can make an informed decision. Knowledge and education are empowering. You will get plenty of support from this site if you need it.
Look into how many food additives are in his diet, this includes colours, preservatives and flavours. If you take these out straight away, I'm sure you will see a big improvement. If he has had tics as long as you say, you will notice what works and what doesn't.. Trust your instincts, Dr's don't know the answer to everything, and they feel threatened when parents offer them information that hasn't been technically researched.
There is no evidence to suggest that taking supplements like Vit C will cause the colds to become worse, if anything it helps to relieve them due to the antioxident value.
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Hi Guys,
I haven't logged on for a couple of days (sorry)
Glad to see your back Marina- did they win?
Stop stressing about the tics, its the time of the year. Connors tics have just become so bad in the last week that I've kept him home from school the last 2 days.
This is the kid that I got down to 1% tics.
My boys have been having a lot of sleepovers at their nana's the last couple of weeks, this entails watching copious amounts of TV and playing bonkhead on grandpa's computer for the rest of the day and nana loves to give them homecooked corned silverside (which the butcher assures her has nothing nasty in it, not even salt!). One day I'll have her educated!
They haven't been sticking to the diet either.
I always find that the tics increase for Connor in the 4th term of school anyway, maybe bacause they are getting tired now closer to the end of the year. Plus with the daylight savings changover their body clocks are out of whack.
I know that Connor had some issue with a child at school last week and I think the tic started midly then, but became worse over the week because another kid he was sitting behind would turn around and glare at him for making noises. This of course stressed him out more, so he ticced more.
I have run out of the formula six tablets for the last 3 weeks. So I think this has exacerbated the problem.
I think it was Chemar that mentioned the waxing and waning of the tics at certain times of the year/month and moon phase. Hopefully she'll read this and add to it.
I'm starting the failsafe diet full on again next week, when I've caught up on the cooking!
Caz did you try the yum balls in the failsafe cookbook, they are delicious!
It did take me a good three weeks to get good results last time.
Marina,
maybe you could take the stress off him by telling him he only has to try it for a month. That way it may not seem like such a big deal to him and could relieve some stress.
Caz, I'm glad your seeing the difference in your daughter, it sounds like she had some classic Sue Dengate symptoms with the dreamyness.
Claire, I bought an LCD tv today, I'll let you know if it helps after I detox them from Nana's tv!
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Claire, he was pretty rapped that he could finally get on the computer!
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Hi Carolyn,
Did they take a blood test to determine this?
I've never heard of a test that can do this. Any information on the test would be apprieciated.
Thanks
Clare
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Hi I'm connor
it is embarrasing during school-time when I tic.
when I take the vitamins I know that they stop my tic.
how one day I took the vitamins and my tic stopped for six week's.
TV make's my TS worse.
I would like it if other kid's wrote back to me
from connor
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Hi Caz, did you say the test was only available in the West?
How much was the actual test?
Does the normal GP do it or was it a specialist?
Thanks
Clare.
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Hi Joy,
I think Claire would be the best person to answer your query.
Claire has had a lot of success with her son and special screens.
How old is your son?
Clare
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Hi Caz,
I printed off the flyer from the website and am giving it to all the health food shops around plus the natural therapy practitioners, most of whom don't know a thing about it.
I am sticking them up wherever I can.
I also emailed the website to all my friends and told them how important it was, most of them take supplements.
I wouldn't be surprised if the multi national pharmacutical companies are behind things.
I met a family a couple of weeks ago, who have had a nightmare time with Dr's and dept of child protection in NSW.
When I first read their story I couldn't understand why the Traditional medical Dr went to the lengths he did.
Then it turned out that if the child survived with the natural therapies, it would make people question the chemo.
Less money for guess who.
When I met the child's parents last week the truth came out which wasn't written in the story.
The little one passed away last week, two days after I saw her parents. I tell you, I have never been so devestated in my life.
If you want to read the story its on
www.evehillary.org and the childs story is under sarah westley.
I advise a box of tissues.
There is also a story about the natural therapy Dr Eckard Roehrich(MD) who was deregistered for trying to help her. That story also has chilling implications for people like us, who need these people to support us in our searches for TS help.
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Hi efgh,
As far as I can tell, it's not genetic, but most of our families are overseas and no one ever mentioned the symptoms.
I don't believe they are genetic from a TS point of view, however I do think the intolerance's are genetic, as my husbands family suffer a lot with hayfever, asthma and dairy intol. And I do not fair well with strong perfumes or airfreshners which is a salycilate response.
My boys symptoms clear up almost completely with the failsafe diet and supplements. If we deviate to much, the symptoms return.
They were all BF at some stage.
Cheers
Clare
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Dara, I would be really surprised if it is the sugar that is the problem.
After reading the Failsafe diet, it is probaly something the sugar is mixed with.
Keep us up with your results, its really interesting hearing other peoples experiences.
Clare
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Hi Caz,
I did a cooking course a few months ago on no meat, dairy, wheat or sugar.
it was very informative and tasty! Absolutely not failsafe.
But the woman who ran it promoted probiotic, enzymes and minerals through seaweed products.
She recommended a company called GNLD- Golden Neo-life Diamite it is an American multi level marketing company.
I didn't try the products but I was really interested in the
Enzyme digestive aid
which is a broad spectrum pH activated proteases, lipases and amylases + bile salts.
I reckon this one might contain animal stuff in it.
But wait there's more!
Betaine Digestive Aid
which is a natural digestive enzyme sourced from beets.
the website is
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Hi guys,
hate to rain on the parade,but...............
I breastfed all mine, switched to soy formula when the oldest was 6months, he has tics .
The middle one had really bad reflux, eczema, colic and didn't sleep, every time I offered him the breast, he would scream more. I persisted for 5months until I found a paediatrition that finally diagnosed food allergies.
He was intolarent to breast milk, soy milk and cows milk. As soon as he was put on Neocate formula, everything settled. The eczema disappeared in a week, he stopped the projectile vomiting and started to sleep. He could only stay on that formula until he was two, then he went onto oat milk.
He tics when stressed, but is mostly under control with diet. Can now tolerate little bit of cows milk and soy.
The third one was BF for a year and went onto soy milk, he is now 5yrs and has started to have a slight leg tic. This is controlled with diet and supplements.
I am a great advocate for BF and would encourage anyone to do it, but I also now see that as odd as it seems, my childs health would have deteriorated without the special formula. Apparently there is some sort of amino acid present in all those milks that was causing the problem. I never did find out which one it was.
If I had have known about the Sue Dengate failsafe diet, I would have followed it while pregnant, it is supposed to reduce the food intolerances for when they are born.
Hope this helps
Clare
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Hi Caz,
I feel for ya! The blood tests are really horrid for all concerned!
I was thinking the same thing about the liver .
I read Dr Sandra Cabot's- Liver and Bowel book ,
Ian Gawler - You Can Heal Your Life
Phillip Day - Health Wars and I read some stuff on the Gerson Clinic in Mexico.
All these books are really big on Pancreatic enzymes and liver detox.
They all say the same thing about the liver being the most important organ in the body for getting rid of toxins.
If that is in ship shape, then all the other problems should resolve.
The formula I worked out for us was a water filter.
On rising take 1 glass of water with lemon juice
I take Barley grass powder + 100mg powder of Calcium ascorbate (vit C)
after the lemon drink.
Then I take an organic mineral supplement, Sandra Cabots Livertone plus and a combo tablet of Vit A, C and E.
When they run out I'll switch bak to Phillip Alexanders Formula Six Multi's.
As well as that I drink Dandelion root tea in the morning.
I had really bad skin with acne all the time, and was very hormonal no matter what time of the month. Since I've been taking these about 2 months, my skin is so different that everybody notices and comments, (Boy it must have been worse then I thought!)
I no longer have the mood swings and I'm gradually losing weight (need to get rid of about 8kg). Slowly but surely, so hopefully it will stay off this time. I also use EFT therapy which I feel helps almost instantly with emotional issues.
I haven't started the enzymes yet, but they are supposed to be vital especially for meat eaters.
You can eat half a pinapple a day to get the same amount of enzymes needed, but I'm not big on pineapple!
Haven't had my kids tested as they have been through enough, but they are Ok with most of thesupplements.
See ya
Clare
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I have just found out about the European Union Directive on dietary supplements.
It will affect all of us and our childrens health if we don't help with this cause.
This directive, which is part of a larger form of legislation called Codex Alimentarius, severley restricts access to natural health produts in Europe.
This also affects the US and Australia because of pre existing international agreements.
The media in both countries has chosen not to report on the directive, so most of the population are unaware of the magnitude of the situation.
5000 products are set to disappear because the EU directive classifies vitamins and mineral supplements as "Medical Drugs" rather than dietary supplements which means that they will be subject to government regulation in terms of dosage and availability.
There are many nutrients known to be vital to optimal health that are not on the government's RDA list including Chromium picolinate, lysine and selenium. Under the directive, these types of supplements are banned from over the counter sale.
It will be illegal to buy them without a perscription.
The supplements that will be available will be restricted to multi vitamins containing no more than 100% of established RDA amounts, which are usually useless, trivial quantities- and they will be far more expensive then what we have now. Plus the directive only allows supplements to be made froma list of 15 minerals and 13 vitamins. That leaves out 40 minerals important to the human body.
So, for instance, a middle aged woman in England, who has a dangerously elevated homocysteine level, will no longer have the option of reducing her risk of heart disease with a vitamin B dosage of her own choosing. If she is currently taking 5mg of folic acid daily, under the new directive she will be legally restricted to a prescription of 1mg per day.
If she is taking a 100-mg dose of B6, she'll be restricted to 10mg. And her pantothenic acid (B5) intake of 500mg will drop to 200mg. These maximum dosage levels have been chosen to "protect" her (so we're told) when in fact the protection she needs the most will be unavailable.
In addition to these essential B vitamins, low maximum dose levels have also been set for Vitamin C, niacin and Vitamin E.
Approx 350 supplement ingredients are missing from th list. If they are not added to the list by June 2005 they will be deemed illegal throughout the European Union.
There is more to the article which I have quoted from the Living Now November issue. The author is Jonathon V. Wright. M.D.
His website is http://www.paradigm-changes.com
I would also urge you to check this site for the updated info on the court case
www.alliance-natural-health.org
the other link I found was
http://www.alliance-natural-health.org/doc...UDirectives.doc
this is really important if you want to have freedom of choice over your health.
If this bill gets through no-one will be able to manufacture vitamins or minerals in the needed doses. Papers like Living Now will be unable to advertise the benefits of any alternative therapies including shiatsu and kinesiology and the massive pharmacutical company's will have free rein.
Please read this and let other people know about it. The more publicity the better. If you can donate any cash it would be helpful, the case is going through the courts really soon.
I apologise if this is an inappropriate article for this forum, but my kids health depends on this directive not getting through. How would I be able to megadose my child with his theraputic vitamins/minerals after school camps to return him to from 100% tics to less then 1% if it gets through?
Then the Drs would be able to prescibe the other meds that some of you guys have tried with the bad side effects, I would have no choice.
Thanks
Clare
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Claire,
I just read your post about the enzymes on the Pfeiffer results thread, I think it would be helpful to those reading this post if it were on here. Is there anyway you could copy it over?
That way it would all be in one spot.
Thanks
Me!
to order a blood test for heavy metals.
Connor's thoughts on TS
in Tourette Syndrome and Tics
Posted
Hi Dylan
My name is connor, I am 9 years old.
My favourite game is soccer too.
In Australia it is spring.
My best friend is Stephen, he is on my team too.
My favourite colour is red, blue and purple.
I take vitamins too. they also help my ts to.
I am also on a diet too, the only fruit I am allowed is pears.
TV makes my ts worse too.
my name is spelt C o n n o r.
Australia is a BIG country with a big desert.
Do you have any brothers or sisters?
I have two brothers that are younger then me.
Do you like school?
I only like school if we are going on an field trip, like our camp trip for 5days and another camp for 2 days.
Hope to hear from you soon