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Everything posted by JennyC

  1. Isa is three and Id say her talents are in the arts, she loves to draw and even drew planktin from spongebob lol. I had a fabulous husband who has made it through 2 tours of war in the past couple of years , dedicated to our family and I adore him.
  2. Isa sees a pediatric neurologist and she has the same type of thing but its been going on for over a year, she keeps one main tic which is her arms but her other change form. The doc calls hers Chronic Multi Focal Tic disorder. Thats interesting that they have two different terms when they sound so similar, Im going to have to check that out, gotta love google.
  3. I find it funny that your pediatrician diagnosed it as a transient motor tic yet said he may have it for life. If your child has it for life than its not a transient tics, transient tics are the ones that go away hence the name-transient. If you arent happy with your childs doc then switch for sure!!
  4. Lucky enough for us we are already casein free so maybe it wont be so hard...crossing my fingers
  5. With Isa and dairy I saw changes within the first week I had her off of it. Her tics reduced dramatically and the purple circles were gone. The purple circles have come back but her tics are still less, I can tell when she has had something with a dairy product in it by how much she tics. If you havent seen any changes taking dairy away maybe dairy isnt his problem?
  6. My daughter has purple circles under her eyes that come and go but more often than not are there, she also has tics. She used to have really dark purple circles under her eyes ALL the time until we took her off of dairy, that helped her tics too.
  7. How many of you have your kids on this diet? Did it work? How long did it take for you to see results? What was your childs behavior like before the diet? After? Sorry to ask so many questions but Im trying to keep my kid from being pickled by all the meds that they want to put her on lol.
  8. I saw before someone asking about Botox to treat tics. Here is an article on yahoo today about children dying from it. http://news.yahoo.com/s/ap/20080208/ap_on_...t/botox_warning
  9. Dedee This drives me nuts because all I have read has also said it was a vocal tic but my daughters doc says he doesnt consider it one. I kinda wonder what makes him so special to be able to change the criteria.
  10. It sounds it to me but thats just my opinion. My daughter repeats what I say, for example she will ask me something and I will say no honey not today and she will say not today not today not today. Her neurologist (in whom I have very little confidence) says he doesnt consider it a vocal tic but from everything Ive read it is. So I guess it depends on the doc.
  11. If you are getting him off of foods with artificial colors, flavors and additives then it sounds like you are already starting to do an elimination diet Take him off of one thing at a time, if you take him off of a few different things at once and see a change in him you wont know exactly which of things was the problem in the first place. Also keep a diary of your childs behaviors, I didnt do this and find myself not remembering exactly how much she was tic ing or how her behavior was a month ago as compared to now, your mind kind of plays tricks on you. A lot of these ladies have far more
  12. Well I cant help you with the doc thing but no not all tics are TS. There are transient tics which go away, chronic tic disorder where they last more than 6 months and wax and wane, usually decreases as they enter adult hood. I think there is another kind too but I dont remember. To have TS you have to have at least 1 motor tic and 1 vocal tic (they dont have to happen at the same time) for at least a year although Ive read some info that has said 6 months. My daughter Isa was diagnosed with Chronic Multi focal Tic Disorder (so several different tics that are a chronic condition) back in
  13. Mary I wish I had some advice to give you, I just want to let you know that you arent alone. My daughter is almost 3 and has a tic disorder and she also suffers from nightmares or night terrors as some call them. She doesnt get up and walk around but she will sit up in her bed with her eyes wide open, sometimes pointing and she will just cry this terrified cry and nothing consoles her. Maybe the muscle twitches are his body trying to act out whatever he is dreaming when he is sleeping? I really wish I could be of help but I wanted to write to you because I know it feels frustrati
  14. AUGH its so hard with such a young child to decipher tics. If she already had a full diagnoses I really wouldnt be worried about what is a tic and what isnt. But right now she is diagnosed with just a tic disorder and the doc wanted us to let him know if she started with any vocal tics but gosh I cant figure out what is and what isnt. (as seen with my Beep Beep post) She has started blowing rapsberries which she used to do for fun or when she was mad but now she will be sitting quietly watching TV and suddenly blow a raspberry and then look at me and say sorry (cause she knows thats not pr
  15. Ive never even heard of DO, what does that mean?
  16. We see a neurologist her general practitioner is the one who referred us to him. We really dont have any other options. I can look into a DAN doctor with grants but we cant even afford a sliding scale. This sucks. Sorry if that offends anyone but it does.
  17. Yeah it was a good 6 months before I realized that she had been having tics, it took obvious tics to make me look back and see that she had been having other tics for longer than we thought. Good luck with our doc haha. I video taped her when she was having a bad bought of tics so I could show him (this was our first appt) She never did tic in his office and he didnt even care to see the video , just went on what he was asking and what I was answering, I actually had to make him watch the video. I had thought going in that a doctor would be very interested in actually seeing what was goin
  18. But how do you tell if its a tic or not? I have no experience with children other than my own.
  19. Yes she has been speaking in full sentences for a long time. I would actually say that her verbal skills are a little bit advanced but maybe you are right, maybe she is just getting lazy. Time will tell. Thanks for taking the time to answer!
  20. My daughter has started beeping at me. Im not sure if its a vocal tic or she is just being weird and its a kid thing (she is almost 3) she goes "beep beep" in a certain way when she wants to tell me something or wants to show me something. She says beep beep in a different, louder, more singing way when she is excited....what do you all think? Is it worth mentioning to the doc (she only has a tic disorder as of yet, not dx of Tourette's)
  21. Just so I know Ive understood what you are saying. You are saying if the dairy free is working dont go gluten free? I just had trouble interpretting your post and want to make sure Ive got it right.
  22. Its just hard because she is deprived of a lot of things, a lot of extra cost and time goes into it and if she doesnt truly need it then I dont want to do it. Ive seen no improvement, granted its only been a week but if anything she is more constipated and her behavior is the same.
  23. She has small tics now but nothing like she did when she came off of dairy, it only took about a week to see a huge reduction in tics. Yes I would describe her as hyperactive. No she doesnt get many processed foods, I love to cook so most of the stuff I make is from scratch. She does drink a lot of juice but they are 100% juice and I still water them down because she is so young and drinks so much. I have thought about seeing a DAN doctor but we are dead broke to be honest.
  24. Did anyone feel that way in the first week of the GF diet?? Seriously, Im wondering why am I doing this, am I doing it because Im going overboard, maybe I didnt really need to in the first place. Her tics were under control with casein out of her diet so why did I start this?? Her test came back negative, she is thriving, she isnt complaining of belly pain other than when she is constipated....should I just stop? Am I just getting carried away??
  25. Isa has been severely constipated ever since she was started on table food at about 9 months. She is growing just fine though. She does have a big bloated belly. She was always a really really unhappy baby, crying ALL the time! Finally this fall we went to see a gastroenterologist (cant spell that word!) and he tested her for a bunch of stuff. Celiac came back negative as well as food allergies but he asked us to take her off of milk and we did which did help a little but her tics drastically reduced so she stays off of dairy now. First they do a blood test and if that comes back positive
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