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Betty04

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  1. Thanks again for all the help! I just gave my son about 25 mg of niacinamide - will post an update on his tics. So appreciate all the advice!
  2. LLM- does the niacin just counteract the B12 or the methyl folate as well? I doubt the B12 was the problem since he took a high dose in the past via injection and the oral form is poorly absorbed. Big mighty- the empirical labels product looks very interesting- hopefully someone can comment on the lab or product. Thanks everyone for the input- Lots to think about.....
  3. Thanks- I suspect the B6 is the problem and not B12. We did b12 injections with no adverse reaction many years ago but B6 or P-5-P always results in an increase in tics. Any suggestions on a good brand to get for B12? I have Metagenics methylfolate alone but don't want to try it without the B12 on board. I am waiting though the weekend to see if things calm down off the methylfolate and then I'll think about trying a different combination. Thanks again for all the help!
  4. Thanks so much for the response. I thought I was going slow since I cut one capsule into 5 doses so that would be about 200mcg daily. My son is also 60 lbs so LLM's daughters dose of 67 mcg every other day puts that in perspective! This was the product recommended by our doctor but I am questioning the additional B's. It seems both of you supplement with B12- is that bc it is necessary with the methylfolate or you are using B12 to address other issues. My son has always had an increase in tics each time I have tried B6 or P-5-P so I was hesitant to use this product since it has a high dose of this B as well - but I thought maybe the combination would prove helpful. So I guess I'm not sure if its a dose issues or a problem with all the B's combined. Can I just use plain methylfolate or is it necessary to have other B's on board? Thanks so much for all the help!
  5. Hi My son tested homozygous for MTHFR C677. I started a very low dose of Methyl Guard from Thorne Research and after 1 week his tics are significantly worse. This follows a dramatic improvement after taking liposomal glutathione. Any Methyl "experts" have any insight into why the increase? I stopped it yesterday but the tics are still bad. Any way to reverse it? I was thinking of giving Enhansa? The product I gave had the following ingredients: (I used one capsule over 5 days- so the dose was not as high as below) Three Capsules Contain: Riboflavin (as Riboflavin 5'-Phosphate Sodium) 90 mg Vitamin B6 (as Pyridoxal 5'-Phosphate) 45 mg Folate (as L-5-Methyltetrahydrofolate from L-5-Methyltetrahydrofolic Acid, Glucosamine Salt) 3 mg Vitamin B12 (as Methylcobalamin) 3 mg Betaine Anhydrous (Trimethylglycine) 1.8 g Thanks so much for any help!
  6. My DS8 is being treated for the last year for Lyme, Bart and babesia. We have made no progress and a times are at a worse point. 3 years ago when diagnosed with PANDAS he had 2 days of HD IVIG 2kg/g. His response was very negative and continued to be so for months after. He is IgA and IgG deficient. Discussed the pros and cons with our LLMD today about trying IVIG again as he stated others have had a positive response. Would love to hear from those who have had a positive and sustained response. Thanks for any feedback!
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