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Chemar

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Chemar last won the day on September 14 2017

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  1. Hi wonderfulmom I am on my way out so can't post much, but did want to welcome you to the forum, tho sorry to hear of the reason that brings you here. If I can encourage you....persevere! If you find things that are helping, follow the clues. Same for things making tics worse. Keeping a journal, and noting these potential tic triggers was very beneficial for us. Do take a look at the pinned posts at the top of the forum as lots of helpful info there to.
  2. Chemar

    Incense & Incense Smoke

    Hi Martin I don't know if it was the smoke or the fragrance in it, but my son has never been able to tolerate incense He is very sensitive to perfumes etc and has a MCS (Multiple Chemical Sensitivity) diagnosis
  3. Chemar

    Looking for Insight

    You are very welcome Sarah. I know it doesn't solve the very real issues you are dealing with, but it certainly helped me have support from other parents who understood. I also wanted to point you to our "Useful Threads" pinned at the top of the forum, as you had mentioned wanting to gather some info when you see the neurologist. You may find some helpful ideas there. Our personal experience with conventional docs was sadly only prescriptions, and that really didn't benefit my son in the long run. It wasn't till I found ACN/Latitudes and started a different type of approach that we saw relief and improvement. Also do be sure to check the excellent resources on the main website here http://www.latitudes.org
  4. There are also numerous other resources on the Main ACN Latitudes website https://latitudes.org/
  5. Sheila Rogers has written another excellent resource book: Tourette Syndrome: Stop Your Tics by Learning What Triggers Them https://latitudes.org/store/tourette-syndrome-triggers-book/
  6. Chemar

    Looking for Insight

    Hi Sarotchka I just wanted to let you know I doubt there is a parent here who has not experienced the heart wrenching you are experiencing. It is one of the hardest things to feel helpless when we see something is wrong with our child. If I can encourage you...my son was just 10 when his tics, OCD etc exploded with such severity that it was causing him injury, followed by him being put on a medication that made things so much worse that he ended up in hospital. However, things did improve even though yes, it was a long and hard road to walk with him, especially to control my own fears and stresses and just let him BE. But he is almost 30 now, and a wonderful young man who faces life head on, filled with great compassion for others who struggle in any way. To try to answer your questions It's always possible that there might be a PANS connection, but if his bloodwork and symptoms don't match, likely not. However you might also want to ask on the PANS forum to see what the more experienced parents suggest. Yes, low magnesium can play a part in tics. We noticed a remarkable improvement when we began supplementing my son's magnesium, along with the Epsom baths. Do note that magnesium oxide (found most frequently in supplements) is near to useless as it is very poorly absorbed. As far as your own stress goes....phew! As In mentioned above, we all know how hard that is to control. But we also know it is very important for a child with tics not to feel like they are constantly under a microscope as it definitely makes it worse for them when we are focused on their tics. It takes a lot of self control, and sometimes you just need to go for a walk or do something just for you to be able to decompress. I am a person who believes in the power of prayer, so for me that was a major "go to"! Also being able to talk to others who understood, even though their situations might not have been exactly the same. I was part of a Mom's group for kids with special needs and that really helped me a lot. Here is something written by my friend Lara that helped me put things into perspective. I hope it helps a bit for you too. ♥
  7. I am so thankful to see this policy statement from the AAP on the dangers of not only Food Additives, but the plastics etc that food comes in contact with! http://pediatrics.aappublications.org/content/early/2018/07/19/peds.2018-1408
  8. Chinese cupping is also used for detox, and there are other detox herbal & juice remedies and treatments available. Drinking warm fresh lemon juice water is one of the simplest (hot water with juice of a small lemon or 1/2 large one) Add a spoon or 2 of honey if needed, but plain is best imo
  9. Chemar

    L-Glutamine for Children

    Just a quick reminder that antibiotics are not considered a standard treatment for all kids who have tics. They are specifically used for kids who have tics related to PANS/PANDAS
  10. I am sorry I don't understand the question re "combinations"? Although the areas of expertise may vary, the essence of Integrative medical practice is the same ie to adopt a more holistic method than conventional medicine does, and to consider allopathic & naturopathic approaches to treatment. Some are also trained in homeopathic medicine, or other "complimentary" treatments. Often Integrative doctors will have different members in the practice that specialize in these. As with all physicians, there are some that are better than others, and so making sure they have experience in treating what you need is important. I have always asked a lot of questions when first contacting a physician's office to be sure they are what I am looking for. Hope that helps
  11. Hi mlee We have always tried to use Integrative doctors ie those fully qualified as MD or DO, but also with training in naturopathic/complimentary medicine. They just seem to have a more balanced view and that imo translates to a better form of healthcare. Thankfully there are growing numbers of Integrative physicians.
  12. Chemar

    Bad tics

    Hi Shelly I noticed you mentioned the underbite issue and wonder if you have looked into the tics that some kids have caused by TMJ problems. There are some threads on the forum related to a mouthpiece that seems to help some kids who have TMJ related tics. Try doing a forum search for keywords like TMJ mouthpiece tics or transmandibular joint and see if some of those posts sound like what you might be seeing with your child,
  13. Chemar

    Tic disorder with outbursts

    Hi Have you taken him to a doctor to see if there is any physical ailment that could be causing this? eg appendicitis or a possible digestive disorder? Even a food allergy eg to dairy or gluten intolerance or sensitivity reaction to something else could be causing it (environmental allergy?) I would definitely have his doctor check him out as this may be unrelated to the tic disorder and something that may need medical attention If you suspect PANS, here's the forum https://latitudes.org/forums/forum/17-pans-pandas-lyme-included/
  14. Hi If you may be dealing with PANS where autoimmune issues can be underlying, then things that "boost" the immune system could possibly be causing that reaction? The fact that antimicrobials are reducing your tics might be indicative of an underlying PANS situation. Also, there are the flare ups associated with herxing/die off reactions. You may want to also ask on the PANS forum. https://latitudes.org/forums/forum/17-pans-pandas-lyme-included/
  15. Hi Patty, Sorry to hear this reaction. I have no personal knowledge on TB skin test triggering something like this. I'll alert Sheila to your post as she may have info for you. It's good to see you again, tho sorry it is under this situation.
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