Hi everyone.
I have been reading the postings in this forum for the past four months, but never had to courage to post. I am so frighten by my son's tics that I cannot talk or write about it without having an emotional breakdown. It has been about 6 months, I have finally start to realized my son's tics may be more than a simple childhood tic.
Shortly after my son turned 6, he had a sudden onset of acute head nodding tic. It was jerky, frequent and in multiple. The head tic lasted all day, regardless of what he was doing. It was worse when he is eating, doing reading, doing homework and at night. He also fridgeted alot, like he couldn't be still. About 3 weeks later, he started a vocal tic, "huh". He did that thru out the day and most noticeable while eating, watching TV and reading to him. In the meantime, I also noted some jumping, but that only lasted about a few days. Then shoulder shrugs developed and lasted for about 2/3 weeks.
My son's ped and neurologist both advised me to ignore the tics. If it becomes bothersome and painful, we can try Guanficine to reduce the symptoms. I didn't do it becasue the unpleasant side effects may follow.
Unfortunately, my son's head nodding was giving him headache and neck pain due to the intensity and frequency. So I decided to try alternative treatments instead of Guanficine. So we started acunpuncture to relax his nervous system, chiropractic to reduce pain and to realign his neck and craniosacral therapy all at the same time.
About 2 weeks into the above treatment plan, we start to see some improvement with the head tic and his body was more stable, but the vocal remained.
A month later, I decided to consult my son's Chinese doctor regarding his tics since he treated my son for his asthma and allergy and we had great results. The Chinese doctor recommended B1 & B12 and a month on the Chinese herb.
At this time, about 3 months later, the motor and vocal tics were slowly improving, that's when I read Tics and Tourette's by Sheila Rogers and wanted to see if there is a link between my son's allergy and his tics. Also, during this last 3 weeks, everytime he takes 5 steps forward, he takes 5 steps back. With summer approaching, I thought it would be a good idea to see a naturalpathic doctor along with a NAET doctor to desensitize his allergies.
We spent our summer treating wheat, gluten, oat, oat bran, brown and white rice, milk, casein, yogurt, cheeze, eggs and chicken. It was such an exhausting process! If anyone out there have tried the NAET treatment, you know what I mean!! In the meantime, the naturalpathic doctor put my son on 3 different unda numbers to detox him, which induced more symptoms. For example, increased head nods, increased facial tics that I haven't seen before. We managed to finished the first set of Unda #s. The 2nd set of Unda #s caused an explosion of head nods and jumping off his feet. We stopped and tried a 3rd set of Unda #s and again increased symptoms. So I finanlly stop all Unda #s. When my son's symptoms subsided, the naturalpathic dr. recommended giving him probiotic. We did and again, increased my son's tics. So now my son started school, I decided to take a couple of months off from all treatments and evaluate if all this is helping my son.
Sorry for being so detailed and long.
Anyways, here are my questions:
Any advice on what to do next?
Anyone have tried NAET and helped with tic?
Anyone have seen increased symptoms using a naturalpathic doctor?
Please help, any advice is welcome!
Patty