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Agnes26

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Everything posted by Agnes26

  1. 1. How long were you there? 3 weeks 2. Where did you stay? 1 week RMDH/2 week at private condo 3. Are you with your child during therapies? Yes 4. Is it a full day (9am to 5pm)? No. Just one hour. 5. Was there therapy over the weekend? Nope 6. How did your child feel about the process? Reluctant at first, but after a few days, after she warmed up to Dr. Rahman and realized it was helping, she was totally on board. 7. Did you meet with Dr. Storch? Dr. Murphy? Dr. Rahman for ERP and consulted with Dr. Murphy. 8. Costs at USF? Don't know. We had met our deductible, so it was covered 100 percent. Dr. Storch will tell you what out of pocket costs are. He's great. 93. Would you recommend doing this? ABSOLUTELY. The best thing we've ever done. It gave me my DD back. @ DCMom. Wasn't Dr. Rahman the best? I wanted to pack him in my suitcase and bring him home.
  2. My daughter is recovering and does go to school. Occasionally, she will flare in social situations. I'm pretty sure it's because there's a strep carrier present. It seems to happen around the same people. She becomes hypermotoric, nonsensical and sometimes emotionally irrational/angry. There is no teaching her how to handle this because I truly believe she is out of her mind when this is happening. It stops soon after we remove her from the situation. Not sure if this is what's happening with your child, but perhaps keep tabs on whose around and see if there are any patterns to when the behavior happens.
  3. We're about 10 days into Influenza A. DD, DH and I all swabbed positive. DD is on Augmentin and has been for the past six months. So far, she seems ok. She did have one really rough day were her OCD seemed to come back (clothing refusal + checking/reassurance), but that went away. We were doing ibuprofen. I have no idea if that helped. I've attempted to contact Dr. Murphy, our doctor, without much success. Apparently, she doesn't answer e-mails anymore + my phone call got returned by the nurse, who left me a vm to check with out pediatrician about Tamiflu. So, not helpful. I'm a little worried that the other shoe will drop in a week or so.
  4. This was my daughter. She was diagnosed with SPD three years ago. We did OT, Wilbarger, Sensory diet, etc. Nothing worked. Turns out her sensory defensiveness was actually "just right" OCD. ERP at FSU knocked it out.
  5. The author is going to be on NPR's Fresh Air tomorrow. Apparently, PEX and steriods fixed her autoimmune/brain issues.
  6. My daughter improved significantly on the 14-day trial of Augmentin (no steriod burst), but the day after the "trial" ended she started a backslide of epic proportions because she was, of course, being exposed to strep at school. To this day, I still don't understand why she was given such a short course of abx (and a wimpy dose at that!) and then left unprotected for another infection. I'd say if the dose of Augmentin didn't work, ask for a higher dose, and if that still doesn't work, try something else and try it for at least 30 days. We've had great success with Augmentin 600 ES. DD, 7, has been on it for about 4 months.
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