BoyIowa
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Posts
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BoyIowa's Achievements
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I'm a Civil Engineer.
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Any info is appreciated. We tried removal diets for tummy pains with no substantial results. Now attempting Prilosec. Next step is testing; probably endoscopy. Trial off abx to heal gut - PANS symptoms have been manageable so far. Ds just wants it all to go away.
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My ds was diagnosed with this in utero. He had to be checked every year. The year before his onset, we received confirmation that the hydronephrosis was gone. I wonder if it could come back. We are having GI issues now.
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Have you ever tried weaning off antibiotics?
BoyIowa replied to MamaOnAMission's topic in PANS / PANDAS (Lyme included)
We were just in the process. Dropped the last abx and about 3-4 days and ds got sick. Dd brought something home and is sick too. We hoped it would pass - bodies reaction to no abx. To the ped today - back on augmentin for sinus infection and possible Myco P. lower dose augmentin than ds was on, so hoping it works. Fingers crossed. -
Anyone else find magnesium makes you tired?
BoyIowa replied to lismom's topic in PANS / PANDAS (Lyme included)
My dd and ds both take magnesium before bed. Dd, 5, magnesium citrate and ds, 9, magnesium Glycinate. -
What's scary is that the doctor "is reviewing old cases and has discovered the strain in other patients who were undiagnosed."
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My dd, 5 with PANDAS for less than a year, got the nasty flu this year (and shared it with me). Fever spiked at 102.5 and she slept a lot. As the fever came down and she was up and about, she was so caring and sweet and no screaming or crying or anxiety and everything didn't have to be a certain way.
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Good luck, praying for you.
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Did they look like these? http://www.pansawareness.org/Downloads.php
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Yeah--the yucky sexual misconduct with a female patient is not going to go over well, especially with his past hx before the board. The added a bunch of "treating chronic Lyme" junk, that others say is the way they go after the docs. Using IV abx, not reporting lyme to state, CDC stds, record keeping...The behavior crap ticks me off. Trying to stay thru the end of the year. Then IL on...
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What? We have an appointment next week!
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We live in Central IA just off I-35 near AMEs & DM (Huxley). Where do you live? We were able to have IVIG done at Mercy Infusion Center with Dr. P's script for IVIG. Our son is getting a high dose at 1.5g/kg--same as we got when we went to Chicago twice. We have settled into an 8 week interval. We fought & fought with BCBS, but ended up getting IVIG covered for a year. PM me. Dawn