I have just been thinking about all the awareness that we families are trying to get out there and in support of the Wray family and others, why don't we come up with ideas like the rubber bracelets or things to make this more public. Since it is Breast Cancer Awareness month it got me thinking about the bracelet idea.
We could do some kind of black and white theme (Panda colors)or any thing else.
Anybody have any ideas? We need to make this more known to the public. The people I have talked to are amazed when I tell them what we have experienced. If this became known to more people maybe these doctors would quit fighting us and telling us this disorder does not exist.
The Wray family is a perfect example of the support and information that needs to get out in this world. I am still fighting our own battle with my son and have a great doctor now, but we went down that road of no one understanding and it is horrible. My heart is breaking for the Wray family and I wish there was more we could do. We have the power of each other and we need to use that.
Any ideas, please let me know.
Linda
