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Anyone overwhelmed with dishes & pots & pans?
petb replied to patty's topic in Tourette Syndrome and Tics
LEODENN do you buy things from wholefoodfarmacy.com ? I have been looking at the site and wondered how the food is. Do you sell it also or just buy from them? Thanks PetB -
Could this be a big part of the picture for some tics?
petb replied to CarolynN's topic in Tourette Syndrome and Tics
Carolyn GREAT POST. I am also ALWAYS searching for that missing link with my son. My Intergrative dr does NMT. I know there was someone else on here that does that, was it you? can't find the post. Last appointment I asked my dr to check to see if he needed enzymes. We were testing for so many other things she forgot. He does take probiotics, but I think enzymes will definetly help. We added a liquid magnesium and I added mag/taurate. Things seem a little better. Thank You so much for sharing all of the info you have learned. I actually got very teary-eyed reading it. I hope it is your missing-link. I am going to give it a try. I do have Digestazon Plus from Amazon Herb Co. I have recently learned alot about enzymes in school. My blessing in disguise was my son getting a dx of Tourettes. I am now a Holistic Health Counselor (still in school) and I am now counseling others. So good things do come to us for all of the research that we do. Stay Healthy, PetB www.BrendaHealth.com -
Caryn, which celiac forum did you join? My son tested negative for glutten. so we have stopped wheat but not spelt;. He eats spelt bread a few times a week. It is hard to substitute bread. Lunch is my challange. But I do think if i cut all glutten out I would see more improvement. It seems so hard. But you mentioned a site that help teach you how, I would love to learn how. Thanks petb
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Thanks for saving me $40.00. I figured it was to good to be true. petb
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Hi Has anyone downloaded this E Book; The Root Cause. It is from the UK. I was wondering if it had any merit. Thanks PetB
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HI catjb We have been doing NMT treatments for about 1 year. I really believe it is what is helping my son. We he develops a tic for some reason, (food or environmental) she usually pins points the reason why and treats him for it and he gets better with in a day. How long have you been doing it? Interesting how you feel the acupucture helped more. My dr. does both but she never said he needed acupucture, only the NMT. It is hard to find someone else who is doing NMT also. I would love to chat more about it with you. PetB
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HI I finally got results for my son on his ASO titers. it was 361.9 it is above the 0 - 200.0 range. But it isn't that high. Should I be concerned? Thanks for your advise, petb
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HI I found this interesting info I wanted to share. Hope you enjoy it like I did. He touches alot of areas. Brenda http://www.eklhad.net/foods/index.html
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Hi, As we (east coast) heads into spring, I have been researching some pool cholrine alternatives. We got a pool last year and I am sure it added to my sons ticcing. For those of you that get Dr. Mercola's newletters, just lastweek he did a segment on cholrine in pools. He suggestes Oxidation. http://v.mercola.com/QA/Chlorine-Alternati...t-Tub-2880.aspx I also found this info on oxidation. http://swimming.about.com/od/allergyandast...l_problem_3.htm I also found this company EcoSmarte. http://www.ecosmarte.com/poolspa.html They use Copper Ionazation to filter the pool. My husband likes this better. He said the oxidation still uses some cholrine. Does anyone use any alternatives or have any suggestions? Thanks PetB
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Great Thanks, I just wanted to make sure.
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HI All, I have a recipes I wanted to try and it calls for Baking Soda. Do you use baking soda? I wasn't sure if there was a better alternative. Thanks so much, PetB
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I read this and this is all way over my head. My son is on amoxicillian and his tics have come back. The vocal is getting worse and he's doing eye rolling too. I can't believe this. We almost had this under control before this set back. But his face is getting better so yeah for that. I am giving him primadolphilius. It has NutraFlora in it only 1.8g. My doctor said he can't get enough of it. I have been giving him 2 tsp a day. Is there something better you think I should use? On a side note... Reading all the posts on PANDAS....i never had him tested for that. Wondering i I should to rule it out, Thanks PetB
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Thanks for that advice. My son does take some homeo from the dr. I always look at the homeopathic med in the health food store and I don't know anything about it. But I think I will do my research and try that next time something comes up. Thanks, PetB
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WOW What a morning.... I took my high-fevered daughter to the dr and she has strep. My son (who has TS) was with us bc he had a slight temp this morning. He looked at him and his face and said he has Impetigo. So that explaines his never ending lip liccing and picking his mouth. At least I have an answer. So they both have to go on Amoxilian. I am so nervous about giving him the antibiotic. This ped does not agree with our alternative plan and it killed me to go but I was desperate for my daughter. And he did help with my son now. I WILL not give motrin anymore. 1 dose-uggh. Do you use white willow bark? I was told to use that but not sure on how much for a child so I was just opening it and giving her half. It's when they get sick. I don't know what to do and tend to fall back on my old treatments..like tylenol, motrin etc... My son is also supose to put bactroban on his face too. The supplements we are on are mostly from my recommendations. The first dr we saw that did the IGG test came up with her plan on what he needed (also from my recommendations). Thanks to this forum and my own research. The NMT dr changed this around because of the way he tested for them. I know I am missing something and I am always tring to figure out what it is. It does drive me crazy that she doesn't know. I have learned to trust myself. I used to get really fustrated (and I still do) on not being able to count on a doctor, but with all these drs they just don't know the all answers. Every kid is different. I really think Inositol would help, but she said no, his body doens't need it. So I am listening to her. I feel the best I can do for him is build up his body by feeding him healthy. Have to tend to my sick kids PetB
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HI All, My son seems to be getting sick. He has a fever. What do you give your kids? My daughter has been sick, and white willow bark didn't seem to help her 102 temp. So I had to give her Motrin. I did found it without dyes. But it still had other stuff that wasn't good in it. Not sure if I should give this to my son. What is your opion? I do use Sambucal and give them vit c too. Thanks so much PetB
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Hi Patty, I found this NMT dr bc someone i know was seeing her for asthma. she is 4. and since she has finished her treatments she had only gets colds. and is off of her inhaler. Before her colds would go into athsma. After her treaments she was still getting sick. The dr finally figued out after a process of ellimiation, that it was the strawberries she was eating. Once treated for that...she is fine now. The women whose kids that is has also tried a number of different kinds of allternative therapies, and she said to me" try what you want but you will end up here" and I did. She also can't believe how good my son is doing. And it is because I watch his diet. The NMT dr also feels that way. He wears only 100% cotton, And I limit the TV and computer. No video games. He was also ticcing from playing legos. He was getting fustrated with them. So now those are limited to. But in time he will be able to go back to those things. Everything in moderation, food as well as activities is important. And let me tell you my son was so severe. He also still has some really bad days, i now think it could be bc we go to see her all the time. And it may be to much for his body. But I am so desperate. He's a tough kid so that helps. I do believe that these kids with neuro problems are usually highly-allergic kids. My son seems to have high sensitivities. (same thing). Over the summer when he got very severe it was probably the new pool we got. (great investment now). I believe once his body is strong again he will be able to handle the clorine. She works with his hormonal inbalance, the air he is breating in. he was breating in gas from my laundry room. The noise from the lunch room and school bus. ( I was driving him to school and now He started taking the bus in afternoon home.) The lists is long. We have gotten fast results because I go all the time. She original said he needed 33 treatments. I think we past that. Only because sometimes he didn't clear something and we had to do it again. And since she changed the original supplements that we started with from a Natural Doctor, he is better. I have been seeing her since Nov. Before I tried different approaches. A Nero-chiro had a different way of treating him. BBVP He explained that with these kids have a certain part of the brain didn't develop yet. And we were working on stimulating that part of the brain with eye exercises. That was alot of work on me too. There are NMT closer to me, in the same state..lol But you can read their credentials and my doctor seems like the best around here. I can email you her site (i feel funny to post it). Just so you can see the other things she does and it explains NMT pretty good. She does do NAET. But the dr that came up with NMT combines NAET and along with other therapies. So for us it is a 4 hour day. But its worth it. I would do anything to get my son better. She can treat 3 things in a day, it takes 24 hours to clear and then you can do another 3. I didn't get what she was doing at first. But now I get it. I went to the consult. and thought she was crazy...went to the Nat. dr did the blood and hair tests, spent $2,000 with a chiro....then decided to invest my money into her. If you can try NMT I would reconmend it. My dr doesn't talk much so I feel I have to do alot of work on my own. We also see a therapist. My email is petb26@aol.com Thanks for listening... PetB
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This is the info I printed and presented it to the teachers, principal, nurse and my sons reading teacher. I would give info to anyone that your child deals with. I met with each teacher and presented it in a nicely laminated booklet. It looks professional and that you mean business. They all were so greatful. Tourette's is new to them too so this gave them a reference that they could turn to. You can print the pages you feel relate to you. http://www.buildasitefactory.com/index.php?id=1002 This is the booklet I gave to the teacher to read to the class the first day of school. http://www.hbofamily.com/programs/whole_family/Tourette.pdf This site has more printable info http://www.tourettesyndrome.net/education.htm Hope this helps you out. PetB
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You guys are funny... After most of the treatments he does get worse before getting better until he clears them. Sometimes he didn't clear them and had to get treated again. I think it depends on what the dr is treating him for and how strong his body is at the time. I didn't add any other minerals after the bath. Just told to drink alot of water. His baths now don't let out to much. I have cellfood. Someone told me to buy it. Used it only a couple of times. I have so many different supplements. that people and even doctors have told me to buy. petb
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Do you mean most of his ticcing is under control since you did this desensitizing? Please forgive me for asking same questions more than once, but I am feeling quite depressed at the moment. -- C.P., thanks, Yes I definetely feel everything we are doing has helped him tremendously. I also go through days of feeling depressed and helpless. And those days I think he senses and tics more. So I am trying to stay more positive and supported. Which is easier said then done. I will post of the info I gave to the school. I feel that really help him. I am very on top of things and they know it so I think they are more sensitive to him. They understand I am doing everything I could possible do. I am not just sending him in to school with meds and tell them to take care of him, like most women do that don't even try anything alternative. Hope you have a better day...
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Hi C.P., I love sharing all that I have done so don't feel funny to ask me anything. That is how I get strenght too, by sharing it helps all of us. Sorry to hear about how your son reacted. I guess that is why we all react differently to each supplement. And that is why she tests him. The foot bath is called Ionic Foot Bath. She has one in her office. It does cost like 2,000 or so. His body tested that he only needed 20 min once a month. It pulls out the toxins. The color of the water changes depending on what you are detoxing. I was in there and saw a pretty sick man pass alot of guck. I never tried it yet. I am spending all my money on him right now. A muscle resistent test is similar to NAET. she does that too but NMT is supose to be better then NAET more advanced. I am still learning how to read the resistence. You need to do it to another person. Your child has to hold their arm out. and you lightly push on his wrist. And then he holds something in his other hand it will loose resistance or stay strong. It takes a while to get the hang of it. Another way to practice this is to put your opposite hand above his head ...flat side down should give you strenght and back side down to his head will give you resistence. Sorry if that sounds confussing. You can practice this on anyone. I would NEVER do this to test him for supplements. I did it with hard things like clay. She tests him for foods but it has to be in a glass vile. This is NOT something I regulary do. The very first dr I found did a Bi-Digital_o-Ring test. And it was very similar to that. This stuff may seem pretty out there but it does work. I didn't believe it at first. That is why I did the blood test. I needed hard evidence. We went through Immino Labs. I was making milk and doing a rotation diet for like 3 weeks. Talk about depressed and crazy. I couldn't do it anymore. So I decided to give her a try and it is my answer. She has freeded him of most of his sensitivities. He can now eat eggs and rice and oats, rotated of course. One day wheat in moderation can't wait until that. We don't go to restaurants anymore. He brings lunch and snacks everywhere he goes. No extra food at all. He has become fine with it. He knows how bad he was when he ate those foods and his tics were worse. For his birthday we found an organic restaurant and he had a hotdog and some of the roll. I just wanted him to feel normal again. and the roll set us back 2 weeks of vocal again. I have now replaced all of his favorite foods with foods he can eat. It was challenging but I am determined to get him better. Or at least under control. I food shop alot. I can't wait until I finish school and can give a lecture to the school on how the school foods and parents are polluting our kids. PetB
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Thanks Carolyn, We do do epson salt baths but only everyother day. He's a typical little boy not wanting to stay in the tub to long either. But that could very well be what is happening. The baths did help in the begining when he was bitting his upper mouth back in sept. PetB
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Hi Faith, The webkinz thing was crazy. I guess he had an allergic reaction to it. The fibers in it. Yes the tic was from that. He slept with it for 1 week till we figured it out, when we took it away it took like 3 days to stop. He always sleeps with stuffed animals but I found one that is all cotton and we can wash it. She did test him for a bunch of his animals and most of them he had a problem with. Do you do muscle testing? You can try it yourself. I do and he has a problem with playdoh and molding clay. He has become so sensitive to everything. One tic acted up bc we went into an old museum that used to make clay and the air in it made him start vocal tics. When he has a vocal I go crazy inside. I can't take it. We had to leave the movies a couple times becaue he was getting louder then the movie. His vocal builds up till it gets really loud. His sensitivies are environmental too. His history is this... I took him to a neuro is summer of '05 for pretty bad tics -jumping. He stoppped so i didn't think it was anything. Well it came back really severe sumer of '06. Went back to nero and he wanted to put him on tenex right away. He was jumping and vocal probably like 5-6 things all together and like 30 x a min. it was so no-stop. It was so scary. I can't even tell you how bad it really was. We didnt go out at all. I kept him away from everybody. When we were out people would look and say things to him. You could imagine how I was. This was 2 weeks before school started. First grade. I was a wreck. He was not going to be able to sit in a classroom. We were looking into home schooling him. I decided the med was not the way I wanted to go. I called the principal and met with her and his teachers and nurse and gave them nicely laminated booklets explaining what tourettes is and how to deal with it. I will look up the site and post it. It had a page on a speach to read to the class. The have been so helpful. His teacher sends me home everyday a sheet that she marks through the day on his tics. 5 different areas (sniffing/vocal, facial/eyes, upperbody/head, lower body/legs, entire body) and she tracts him 4x a day. She came up with this. It has helped me so much. We are our childrens advocates. It is our job to be sure they are safe and happy. I tell everyone I know how I have helped him. The more people know the more care he gets. He has an IEP now. So i researched and researched found this amazing site and found there is another answer. We dramaticially changed his diet and the most of the tics stopped within 3-4 days. He used to eat a "normal" kids diet. full of dairy and wheat. I through all of our food out and replaced it with healthier versions. Before school started he food shopped with me everyday. The closed whole foods is 40 min away. I go there regularly. So he is very educated on what he can and can't eat. And tells others how bad their food is too. Now we are all organic and I cook all the time (never really did before). I educated myself so fast and I am so proud of what I have learned I am now enrolled to become an Intergrative Health Counselor. Talk about a blessing-in-disguise...this was for me. It was the best thing that could of happened to me and my family. I am a changed person. I run a food co-op at my house suppling families with organic fruits and vegs. I can't preach enough how important the food we eat is. My son never ate like this and you should see how he eats now. I did get his IGG and found he had 12 sensitivities. I found a ped that did that test for me. His reg ped doesn't agree with what we are doing. Talk about ignorant doctors. The doctor we found now is in PA I live in NJ. She is just an intergrative dr. She has helped freeing him of his sensitivies. But she isn't the only answer. I do alot of things to help him too. He sees a therapist. And do Reiki on him. I feel alot of this stems from anxiety. I believe keeping his diet clean helps him get better quicker. I bring her the supplements I think he needs. We go all the time to her. We have just started to cut back. I am thinking going all the time probably wasn't good for his body. But I am desperate to get results. She has an article out on how she cured a girl from a severe peanut allergy. Now he is not tic free. There always seems to be something. It gets worse sometimes. But he is in a classroom. Has friends. And is reading. So I couldn't have asked for more. He has some dyslexia too and OCD, ADHD. But he is getting pulled out for help reading. There were so many signs that I didn't see before he was dx that I see now that he had growing up. Our eating habits were so toxic. Sorry to ramble but I am so proud of how far he has come in such a short time. I am so proud of him. He never complains on taking all the supplements or going to so many different doctors all the time. I have a 10 yr old daughter too and this has been hard on all of us. I hope that may have helped you a little bit. My prays go out to all of us to find the strength to get up through everyday. PetB
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Hi C.P, My son has been on Cataprex G for 1 1/2 months and i think he is doing fine on it. What was your sons reaction? He is also on Cataprex B12 & Cataprex B. Along with a Omega combo that is hers too. And taurine. We stopped his multi. He was bouncing off the walls and when we stopped them he calmed down. She does a muscle test to see how much he needs. I did give him 1 (500mg) of carnintine and 1/2 (250mg) in the afternoon and he seemed hyper from it so I am just doing 1 in the am even though she said his body needs 2. She does NMT and is treating him for alot of things that need balancing in his body. She said she gets 100% results from tourette's so I am just waiting and praying. She is 1 1/2 hours from me and we go once or twice a week. He needs so many treatments so I go as much as I can to get them over with. We also do ionic cleanse foot baths to help detox him. Around christmas time he started doing a really bad neck tic, he was in so much pain I had to take him to the chiropractor. She figured out it was a webkinz he got as a gift and he was sleeping with it. As soon as we took it away he stopped. That was amazing to me that she figured that out. Just by a muscle test. Sounds crazy - right? He does get worse after a treatment before he gets better so he could be going through a deotx now. His face is so bad right now with alot of blisters on it from licking around his mouth. This comes and goes too. I keep thinking we are missing something and I just can't figure it out. Thanks PetB
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Hi Faith, my sons vocal was so bad for about a month. very disturbing in school. He slowly stoped and it probably took about 2 weeks. He was making a load hummm noise. I do see an intergrative doctor. I am always bringing her supplements that i think he needs and she tests his body with a muscle resistence to see if he needs it. I did bring her Inositol but she gave me Cataplex G. her products are from Standard Process Inc. it has a como of Niacin, B6 and it does have some p-5-p. She felt he needed 1,000 mg of Carnintine but I am only giving him 500mg. I feel that is high, he is only 7. We were dx 6 months ago and he has made such great progress. somedays harder then others. but definately more good days then bad. PetB
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Hi All, My son has been doing so good lately. But his only thing is that he has been licking his lips. He has always done this on and off. I have writtin in about this before. But it is so bad now, he has such soars all around his mouth, not his lips. They scab and then he picks at them and it is never ending. I am afraid he is going to be left with some bad scars. I put Colloidol Silver on it. Not sure what else to put on it. Any suggestions? He is on supplements: Vit. B (B12, B combo) cal/mag fish oil/evening primrose combo taurine L-Carnitine We do see an intergrative doctor but she didn't give me any advise on this. Is there something we are missing that could help this? Not sure if this is a tic or ocd. ps the L-Carnitine helped his vocal go away. What a relief for that. Thanks PetB