Sorry Luckyone.
I agree with you that ability to participate in normal activities should not be hinged on your personal medical decisions; and also our adult children get to make their own choices whether we agree with them or not, and they get the natural consequences as well.
Just to share, I have been here for a very very long time going through Pandas and Lyme etc. We FINALLY hit on our proper diagnosis of functional B12 deficiency probably due to a genetic factor of Transcobalomin 2 deficiency. It is insane that "I" had to figure this out through my own research and can't even get proper medical documentation, never mind treatment, for this "known by the medical community" type of problem.
And yes, my daughter's issues started with a vaccine as well. Mercury, (removed from most vaccines in 2000) probably caused her primary deficiency and she has not caught up since. (She is 23). We finally are treating her properly. READ Could it be B!2? By Sally Pochalak