saidie10 Posted September 2, 2010 Report Posted September 2, 2010 Hello all! Our Immunologist in San Antonio who Dr. M.C. calls a "very fine pediatrician and immunologist" is steadily working with his team on a protocol for treating PANDAS patients which will include if necessary IVIG and PEX. Dr. M.C. is heading to San Antonio in February to discuss the work they are doing with our Dr. and his team. Very exciting stuff! Our experience with his team was great, so PM me if you want his name and number. He is very serious about defining a good, safe, realistic approach to treating PANDAS children and I know if you are looking for a Dr. in this area he would be a good choice. Cindy
texascatholic Posted September 2, 2010 Report Posted September 2, 2010 Can't wait for our visit with him! Thanks again for the heads up. Holly
P_Mom Posted September 2, 2010 Report Posted September 2, 2010 You are sooooo fortunate to find a doc in your area! Way to go!!!!
chodnett Posted September 9, 2010 Report Posted September 9, 2010 have had our 2nd IVIG with Dr.B. Really need closer doctor for my daughter. We are in Fort Worth but have family in san antonio. Very interested in talking to Dr. in SA!! please pass info. Thanks
lss Posted September 9, 2010 Report Posted September 9, 2010 Chodnett, There is a doctor in Plano who does IVIG for Pandas, would be even closer than San Antonio or Conn. He is following Dr. K's protocol. PM me for his info. Linda
saidie10 Posted September 9, 2010 Author Report Posted September 9, 2010 We have seen the doctor in Plano too and had a great experience! If you still want the info for the doctor in San Antonio please let me know!
texascatholic Posted September 10, 2010 Report Posted September 10, 2010 Yes, Dr. Rao in Plano is very nice. We are going to see the San Antonio guys on Sept. 16 and I am excited for that. God bless, Holly
chodnett Posted September 24, 2010 Report Posted September 24, 2010 Yes, who is doctor in SA that treats. Is he immunologist? Does he treat with IVIG and does he follow the Dr.K/Dr.B protocol?
pamsboy Posted September 24, 2010 Report Posted September 24, 2010 Would Dr B be the best doctor to see if we live in NY? thanks,Pam
chodnett Posted September 24, 2010 Report Posted September 24, 2010 I would say Yes. He understands all of it! He is an incredible doctor who has changed our lives and my daughters too!
pamsboy Posted September 25, 2010 Report Posted September 25, 2010 Thanks! We are seeing him in October..can you be more specific in how he has helped you?
momaine Posted September 25, 2010 Report Posted September 25, 2010 On 9/25/2010 at 12:52 AM, pamsboy said: Thanks! We are seeing him in October..can you be more specific in how he has helped you? This wasn't posted to me but I'd like to add my two cents worth. Dr. B figured out my daughter has allergies that make her sinuses a great place for infection to grow. He diagnosed her with a sinus infection on our first visit despite 6 months of doubled up antibiotics. It wasn't until we used his protocal that the infection abated. (allergy meds, sinus rinses and sprays, combined with the antibiotics) He did a vast amount of testing and figured out she has no antibodies to fight strep and he got our insurance to cover IVIG (1.5g/kg), which was badly needed. After the first IVIG she improved at least 70%. After the second one she got another sinus infection and backslid a bit but we quickly figured out what the problem was and treated it aggressively and she's back on the rebound and things are moving in the right direction again. Now if we can just prevent her from getting another one, we'll be doing well. She is scheduled for another IVIG in mid-Oct. and I feel confident that it is a good choice for her under the circumstances.
chodnett Posted September 26, 2010 Report Posted September 26, 2010 Who is the Doctor who does IVIG in PLANO?
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