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Posted

Crap. My dd7 has been doing so well but it's back.

 

Tonight, out of the blue, she said "Can black widows live inside the house? And do you think snakes can get inside?" She always talks about black widows and snakes when her pandas starts up. Earlier today she asked me if I thought she was fat because she thought she was. She's super skinny and her OCD usually presents in food restriction and food hoarding. She's been worried that she's spoiled and worrying about what I eat.

 

I'm increasing her zithromax today. Calling the ped. neuro on Monday. I don't know what he will decide to do. Her sister is getting IVIG's. Doc's just been watching dd7 so far.

 

The only good sign today is that she ate my homemade soup. Normally she won't eat soup since the food is all mixed up together and includes veggies.

 

Susan

Posted

Crap indeed. It's always so hard when stuff strikes on a Saturday and you can't reach anyone right away. I hope that it's one of those things that just passes...good sign that she ate the soup.

 

Funny about the black widow thing. We had the exact same thing before. Where we live, black widows do get into people's houses all the time, and we get rattlers, too. So those questions aren't altogether unreasonable, but back in the day, it occasionally did keep my kids up at night.

 

Hoping that a good night's sleep takes care of it...

Posted

Wow...this sounds like my dd7 almost exactly...black widows, snakes, food restriction. We've been on the fence about her...but this convinces me more and more. I hope increasing her Zithromax helps!!

Posted

Sorry to hear that your daughter is in a flare-up. My dd12 does has the same issues black widows, snakes, and BEES. She restricts eating and starts hiding/hoarding food. Extreme frustration and anxiety usually accompany. I move into my "whatever works mode" that includes chocolate anything (milk shakes, pudding) because she loves chocolate; magnesium bath or massage with magnesium cream; sometimes homeopathic belledonna (found at whole foods) because the tablets are lactose and sweet she will take. Whew. Hope she is feeling better.

Posted

My son is having a severe fear of bees now and he would not swim in the lake this weekend because he was afriad of leeches. We are waiting for our IVIG approval but needed it yesterday. It is so sad to see them miss out on so much due to these irrational fears.

Posted

My daughter has a severe fear of Tsunami's, anything related with allergies, spiders, and sneezes in movies/tv shows. In her first & second episode she had a severe fear of bees...in third episode it was stink bugs. Before major onset...no fears at all! Ugggh!

Posted

After almost 1 week with increase of abx from 250 mgs of zith 3 times a week to daily, no more talk of black widows or snakes or of being fat. But she is overly concerned about whether I spend any money and will avoid even grocery shopping if she can talk me out of it so we don't spend anything. She has birthday money and she's crying that she's waiting for the perfect thing (she'll probably not spend it for a long time).

 

Tonight, both girls have tummyaches and sore throats and don't feel well in ways that are not the usual. There are stories of kids throwing up at school. I'm worried about what the weekend holds. I'm worried about the winter months.

 

Susan

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