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Posted

Hi, I have been a frequent poster in the past. Lately I've have been busy trying to figure out what is going wrong. My son was doing pretty good with his elimination diet and supplements and very limited TV, less then an hr a week. However, his tic freqency has increased drastically over the past two months. I was wondering if there is a test or assessment tool that one can use for salicyalte intolerance. We do not want to just elimated these foods for there is so little that he can eat now.

Guest Guest_Caz
Posted

The functional liver detoxification profile does test to see how the detox pathways are working. One of the test challenges is with asprin (salicylate acid) as well as caffeine and paracetamol. My sons test came back to say that he cannot detox salicylates, but prior to getting the test results we had eliminated all salycilates as per failsafe/fiengold really it made no difference - so how bizzare is that! ( we are still off all things artificial, but now include all fruit and vegies) 1My doctor said that he just needs more glycine to boost this pathway, and salycilates should not be a problem to him anymore. His amino acid profile suggested he was low in glycine anyway, so I am now giving this to him, amongst other liver enhancing things.

 

I know with the DAN protocol for ASD (of which Tics may be part or may not) they used to suggest lab tests for everything, now they say the child is the best lab, so if you do not want to part with $$$$ maybe just eliminate salicylates for 4 - 6 weeks, and see if it makes a difference. I have said before that i found the failsafe/fiengold diet hard, because you eliminate sooo much "good stuff" and to get the kids eating other stuff I found it was laden with sugar, which is also a no-no, and I believe this caused other problems with the tics for my son, so the challenge itself was hard work without giving difinitive answers.

 

Anyway, good luck. Knowing that you have had good results in the past, and that now things have flared up a little means you were at least heading in the right direction, even with this hiccup.

 

Caz

  • 5 years later...
Posted
The functional liver detoxification profile does test to see how the detox pathways are working. One of the test challenges is with asprin (salicylate acid) as well as caffeine and paracetamol. My sons test came back to say that he cannot detox salicylates, but prior to getting the test results we had eliminated all salycilates as per failsafe/fiengold really it made no difference - so how bizzare is that! ( we are still off all things artificial, but now include all fruit and vegies) 1My doctor said that he just needs more glycine to boost this pathway, and salycilates should not be a problem to him anymore. His amino acid profile suggested he was low in glycine anyway, so I am now giving this to him, amongst other liver enhancing things.

 

I know with the DAN protocol for ASD (of which Tics may be part or may not) they used to suggest lab tests for everything, now they say the child is the best lab, so if you do not want to part with $$$$ maybe just eliminate salicylates for 4 - 6 weeks, and see if it makes a difference. I have said before that i found the failsafe/fiengold diet hard, because you eliminate sooo much "good stuff" and to get the kids eating other stuff I found it was laden with sugar, which is also a no-no, and I believe this caused other problems with the tics for my son, so the challenge itself was hard work without giving difinitive answers.

 

Anyway, good luck. Knowing that you have had good results in the past, and that now things have flared up a little means you were at least heading in the right direction, even with this hiccup.

 

Caz

 

what supplement do you use that does not have salicylates? (glycine)

Posted

this thread is from 2004 so not sure if any of the original posters are still reading here footballguy

 

Andy checked in a few months back and I recall things were going better

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