dut Posted August 11, 2010 Report Posted August 11, 2010 Hello I was wondering if anybody knows of any good lyme literate drs in the UK? Re-reading all the lyme stuff again, makes me wonder about my brother-in-law to be. He had acute brachial neuritis a few years ago that has never resolved and he still has use of only 1 arm. This was followed a year or so later by central retinal vein occlusion. He has also suffered low energy. They live in the woods with lots of deer and he is always outside. Thanks for any ideas.. I imagine getting good dx, tx will be harder in the uk. Is it possible to do an Igenex test from there.. does the sample degrade, I'm assuming it does. Is there an equivalently, trustworthy lab in the uk? Sorry, I know this isn't a PANDAS question but there's been so much lyme talk recently.. forgive me.. thanks..
EAMom Posted August 11, 2010 Report Posted August 11, 2010 He could probably just google around. Here's one site http://www.wadhurst.demon.co.uk/lyme/
dut Posted August 11, 2010 Author Report Posted August 11, 2010 thanks.. that's a good site. I did some googling myself but just couldn't find much re drs.. even the uk's lyme action site had no references that I could see. I suspect he'll just have to go through the normal routes.. coming from the uk I know how unsatisfactory that can be, especially with unconventional diseases such as PANDAS or lyme.. I was hoping someone might know an inside track....
Fixit Posted August 31, 2010 Report Posted August 31, 2010 (edited) was just trying to find some stuff..and i saw this.... another friend just asked me what i know about myco p..in relation to something similar... i'm sure you saw this...could this be another possiblity http://www.turkishjournalpediatrics.org/?fullTextId=585〈=eng sorry about a day late and dollar short... Edited August 31, 2010 by Fixit
dut Posted August 31, 2010 Author Report Posted August 31, 2010 thanks for posting that, fixit. I hadn't seen it before.. I'll do some more googling and let him know what you found..
mama2alex Posted August 31, 2010 Report Posted August 31, 2010 (edited) I just sent an email to ILADS to ask if they can recommend a LLMD in the UK. I'll post on this thread if they get back to me with a name. Edited August 31, 2010 by mama2alex
mama2alex Posted August 31, 2010 Report Posted August 31, 2010 ILADS just emailed me the following website for a practice in Hertfordshire: http://www.breakspearmedical.com/ Hope this helps!
Fixit Posted August 31, 2010 Report Posted August 31, 2010 (edited) Question about moving thread????? this is where the problem lyes(sp)..... though i appauled ACN in adding the lymes site..if i weren't fishing for something else.. i wouldn't have seen this...and thought he asked about maybe it might have a strange relation the same question someelse just asked me about myco p.... i guess we will see if it works...the split seems a little counter productive JMHO PS or is it possible to share 2 sites??? Edited August 31, 2010 by Fixit
dut Posted August 31, 2010 Author Report Posted August 31, 2010 mama2alex - thanks so much for that. i've just rung my b-in-l and told him :-)
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