DOES IVIG REALLY EVEN WORK?

[MomWithOCDSon]

We have BC/BS of Illinois PPO also and our consultations with Dr K were covered too. We are a little over 5 weeks post IVIG and just got one of our EOB's back from Dr K's submission- they are agreeing to pay 400 of the 2400 fee. I am going to wait about a week to see if we get EOB's back from Oakbrook and for the medicine ( that will be the big one) and see what they are going to pay or deny - I can let you know where we get with BC/BS if you'd like MomWithOCDSon?

Thank you! Please do! That would be awesome! Feel free to PM me if you would prefer. Much appreciated!

[MomWithOCDSon]

We saw Dr. K. a few weeks ago, and he is one of the providers included within our BCBS of Illinois PPO. So, the consultation was covered. Dr. K. has said, however, that notwithstanding a documented immune deficiency, BCBS will not cover IVIG for PANDAS. Our testing came back indicating no deficiencies . . . just high titers . . . so I guess we'll be on our own if we have to go the IVIG route.

 

Even without an official listing in the DXR, will Dr. K. and Swedo's presentation of their new PANDAS paper, which I understand will set IVIG as a primary treatment protocol, in July in Washington, D.C. put IVIG on the "map" with respect to the remaining insurance companies that don't yet recognize it? If not, I wouldn't even know where to begin to get some forward momentum on that! We don't have a Jenny McCarthy-like celebrity out there pitching or lobbying on The Hill for us in this regard! Aarrgghh!

 

 

What new paper???

I don't have all the specifics, but he told me that he is working with Swedo on this paper (I guess they met last month and will be meeting again before the presentation in July). And he indicated that the paper will state that IVIG is the indicated treatment protocol.

 

Sorry I don't know more!

[tapiash]

Do you think his issue was muscular coordination? Vision? Focus? How old is he? I can see that having better focus would help a child do just about anything. And many parents report vision problems, so maybe it was his ability to watch the ball? Great news anyway. Mine is a BB player too!

I think it was focus. He is 9. His vision is better than 20/20