Oh so close to the PANDAS diagnosis...been a long time coming!

[saidie10]

Hi! This is such a great day in our house! Anyone else get excited and have a Tom Cruise couch moment when another child tested positive for strep while the possible PANDAS child is having an exacerbation of symptoms! That was what it was like in the doctors office this beautiful morning!

 

So older DS7 has been going through the motions to try and figure out if he has true tics and true OCD or strep caused tics and OCD for about a year and a half. FINALLY after about 4 days of noticing an increase in tics that had almost completely gone away over the course of the last 10 months (since his tonsils were removed) an increase in irritability, quick to anger, sleeping problems and very easily frustrated (his OCD is being controlled by zoloft), our younger DS started running fever two days ago and began complaining of an earache last night. Brought him to the doctor and he has an ear infection and she said his throat was a little red and I said swab him for strep. I don't think she was going to, but she did and rapid came back positive! I am bringing older DS in this afternoon after school for culture and have a call in to his Neurologist to let her know what is going on. I would hope and think she would want to draw blood and look at his titers, right? We ran titers and Anti-DNase B about a month and a half ago and ASO was 400 and DNase B was 561.

 

One more interested side note...of course we have been watching younger DS since all of this started with older DS. Well he did test positive for strep in February and since then I would say he has developed some funny finger stretching and nail biting which he has never had before. Could this be tics and OCD? Should we be talking to the Neurologist about him as well?

 

Thanks for any advise!!!!

[tpotter]

Yes...I suspected we have ALL felt that way (certainly speaking for myself, I was jumping for joy that it was something that could possibly be treated, and that my son finally had something we could identify!)

 

If you suspect your younger child might have PANDAS symptoms, I would get him to the doctor extremely fast, and make certain that the proper abx are started immediately, and continued until it is gone!

 

Good luck.

[Stephanie2]

Def sounds like you have pandas on your hands, especially with those elevated titers. For your younger son, yes those sound like tics (my 2 year old picks at his skin and also has some subtle eye tics and it def corresponds to his other pandas symptoms). Watch closely. It may be hard to get your neuro to take you seriously with those mild tics, though.

 

Good luck!

Stephanie

Hi! This is such a great day in our house! Anyone else get excited and have a Tom Cruise couch moment when another child tested positive for strep while the possible PANDAS child is having an exacerbation of symptoms! That was what it was like in the doctors office this beautiful morning!

 

So older DS7 has been going through the motions to try and figure out if he has true tics and true OCD or strep caused tics and OCD for about a year and a half. FINALLY after about 4 days of noticing an increase in tics that had almost completely gone away over the course of the last 10 months (since his tonsils were removed) an increase in irritability, quick to anger, sleeping problems and very easily frustrated (his OCD is being controlled by zoloft), our younger DS started running fever two days ago and began complaining of an earache last night. Brought him to the doctor and he has an ear infection and she said his throat was a little red and I said swab him for strep. I don't think she was going to, but she did and rapid came back positive! I am bringing older DS in this afternoon after school for culture and have a call in to his Neurologist to let her know what is going on. I would hope and think she would want to draw blood and look at his titers, right? We ran titers and Anti-DNase B about a month and a half ago and ASO was 400 and DNase B was 561.

 

One more interested side note...of course we have been watching younger DS since all of this started with older DS. Well he did test positive for strep in February and since then I would say he has developed some funny finger stretching and nail biting which he has never had before. Could this be tics and OCD? Should we be talking to the Neurologist about him as well?

 

Thanks for any advise!!!!

[saidie10]

Made it to the lab just in time today to have DS's blood drawn for ASO and Anti-DNase B. I think Neurologist thinks I am loco! Oh well. I am confident we are dealing with PANDAS and I am not backing down DS has been regressing quickly in the last few days with very aggressive and volatile behavior which reminds me of last year when he was having all the strep infections! He started with some tics again so I know something is going on! Younger DS who tested positive for strep this morning is starting to do some weird things so he is on my radar now! I am determined to get answers and help these boys! I will not stop!!!

 

Hi! This is such a great day in our house! Anyone else get excited and have a Tom Cruise couch moment when another child tested positive for strep while the possible PANDAS child is having an exacerbation of symptoms! That was what it was like in the doctors office this beautiful morning!

 

So older DS7 has been going through the motions to try and figure out if he has true tics and true OCD or strep caused tics and OCD for about a year and a half. FINALLY after about 4 days of noticing an increase in tics that had almost completely gone away over the course of the last 10 months (since his tonsils were removed) an increase in irritability, quick to anger, sleeping problems and very easily frustrated (his OCD is being controlled by zoloft), our younger DS started running fever two days ago and began complaining of an earache last night. Brought him to the doctor and he has an ear infection and she said his throat was a little red and I said swab him for strep. I don't think she was going to, but she did and rapid came back positive! I am bringing older DS in this afternoon after school for culture and have a call in to his Neurologist to let her know what is going on. I would hope and think she would want to draw blood and look at his titers, right? We ran titers and Anti-DNase B about a month and a half ago and ASO was 400 and DNase B was 561.

 

One more interested side note...of course we have been watching younger DS since all of this started with older DS. Well he did test positive for strep in February and since then I would say he has developed some funny finger stretching and nail biting which he has never had before. Could this be tics and OCD? Should we be talking to the Neurologist about him as well?

 

Thanks for any advise!!!!

[JAG10]

I was reading this post and it got me to thinking about Tom Cruise and his couch jumping..... didn't he get himself in a whole heap of trouble for questioning the practice of psychiatry as an industry? Didn't he question the idea of chemical imbalances in the brain? just being born crazy??

 

I don't know... the whole biological causes for disease of the mind.... I'm not say psych meds aren't useful to some or anything like that.... but after the journey my family has been through, he just doesn't seem quite as crazy as he did back then.

 

You know.... he's pretty popular..... I bet there's a shot he could be convinced to rehab his reputation by lending his fame to the PANDAS cause....

[P_Mom]

That dude IS nuts! :0 I don't think he would buy into the biological cause either.....I think he tends to believe (Scientology) that it is all in the mind....mind control stuff, harmony with the body, ya know??

[JAG10]

Hmm, the body and mind in harmony would work, but you've got to respect the microbe!

 

There's got to be some celebrity out there with personal experience with this cursed condition!

[P_Mom]

Oh yeah...you have GOT to respect the microbe!!!!