Intuniv any one tried it?

[melanie]

Just asking if anyone has tried this one?

[MomWithOCDSon]

Yes, we have. And it appears to have helped with focus and "antsiness."

 

DS13, 130 pounds, started on 1 mg. Intuniv about 5 months ago; after 1 month, we increased to 2 mg., and we have held it there since (I think max dose for ADHD/ADD type behaviors is 4 mg.).

 

Both times we began the doses, he had 3 or 4 days of feeling drowsy in the afternoon, but he would adjust and that side effect would fade away by about day 5 or 6.

 

We also understand that it can lower blood pressure, so we have a home blood pressure monitor that we test every 2 weeks or so, and we always make sure he has a good lunch and an afternoon snack so that his blood sugar doesn't fall off and cause him to fade in the afternoon.

 

DS reports that he feels more focused and less antsy in school since beginning the Intuniv.

[trggirl]

We tried it but did not get good results at all. She focusing got worse and she became scared of everything. It was a terrible experience.

[melanie]

We tried it but did not get good results at all. She focusing got worse and she became scared of everything. It was a terrible experience.

 

 

Thanks !! Im going to call the MD and ask her opinion too .

 

Did It seem to help with the tics?

 

Melanie

[mom md]

We went to see someone who is considered the top pediatric neurologist in this area. She recommended this drug as a possibility in the next year or two if we felt some ADD/impulse issues were left from the disease. She said it helped kids with tics control them and did not have any neuro side effects which is nice. She felt like it was a great option. I would definitely try it if needed.

[MomWithOCDSon]

We went to see someone who is considered the top pediatric neurologist in this area. She recommended this drug as a possibility in the next year or two if we felt some ADD/impulse issues were left from the disease. She said it helped kids with tics control them and did not have any neuro side effects which is nice. She felt like it was a great option. I would definitely try it if needed.

I will also add that our psych prefers Intuniv to another non-stimulant medication for ADD/ADHD behaviors, Straterra. His response was purely anectdotal, but when questioned, he replied that he's seen a lot of kids for whom Straterra doesn't seem to work, but the research on Intuniv suggests it is a good option.

[trggirl]

The tics got worse. It really was a very dramatic downward spiral. She became afraid of snakes in her bed and would not sleep in it. She had horrible nightmares. Her hands shook when she played the piano because she was afraid of making a mistake. Piano practicing would end in tears and meltdowns. She was coming home with 0's on her paper because she would not do them. I think these are things that are always there with her, but she is able to work through and conquor. After starting the Intuniv, it just sent her over the edge. And quite honestly, it really surprised me. I really thought Intuniv would be the one to help her. I put a lot of research into it before starting.

[Fixit]

The tics got worse. It really was a very dramatic downward spiral. She became afraid of snakes in her bed and would not sleep in it. She had horrible nightmares. Her hands shook when she played the piano because she was afraid of making a mistake. Piano practicing would end in tears and meltdowns. She was coming home with 0's on her paper because she would not do them. I think these are things that are always there with her, but she is able to work through and conquor. After starting the Intuniv, it just sent her over the edge. And quite honestly, it really surprised me. I really thought Intuniv would be the one to help her. I put a lot of research into it before starting.

 

 

how long into starting this did you see things sprial...?

how long after you stopped did it take things to go back to baseline?

[Fixit]

We went to see someone who is considered the top pediatric neurologist in this area. She recommended this drug as a possibility in the next year or two if we felt some ADD/impulse issues were left from the disease. She said it helped kids with tics control them and did not have any neuro side effects which is nice. She felt like it was a great option. I would definitely try it if needed.

 

 

mom...why a year or 2 from now.....too young...or want to see if ivig works first

...how old is your child now?

[trggirl]

The tics got worse. It really was a very dramatic downward spiral. She became afraid of snakes in her bed and would not sleep in it. She had horrible nightmares. Her hands shook when she played the piano because she was afraid of making a mistake. Piano practicing would end in tears and meltdowns. She was coming home with 0's on her paper because she would not do them. I think these are things that are always there with her, but she is able to work through and conquor. After starting the Intuniv, it just sent her over the edge. And quite honestly, it really surprised me. I really thought Intuniv would be the one to help her. I put a lot of research into it before starting.

 

 

how long into starting this did you see things sprial...?

how long after you stopped did it take things to go back to baseline?

 

 

Fixit, we started seeing things spiral within a week. She kept taking it because we wanted to see if she would adjust to it. It just got worse as time went on. We stopped it after around 3, maybe 4 weeks. I don't remember exactly. It took about 2 weeks to get back to baseline. I should also mention that we had low blood pressure issues the first week. We never raised the dose from the 1mg because her BP stayed low.

Edited May 3, 2010 by Trg girl

[Fixit]

Thanks

[melanie]

Thanks

 

 

Well the psy said its a good idea and to try it.Shes calling in a 1mg script and to try it at night so Ill let you know tomorrow.She said it take a few days but should see something by the end of the week.Ill call her then

 

Melanie

[trggirl]

I really hope it works out for you! I really wanted it to work for us. I was so disappointed.

[Fixit]

I'll be praying for fantastic results for you!!!!!!

Keep us posted...maybe like sammy he just needs a little boost...

[melanie]

I really hope it works out for you! I really wanted it to work for us. I was so disappointed.

 

 

im sure I will be dissappointed too no med has ever helped so what the heck what was the 1st bad thing you saw? Hes going to start it at night so if hes tired he will atleast sleep

 

keep your fingers crossed

 

melanie