thereishope Posted April 26, 2010 Report Posted April 26, 2010 Isn't it odd how angels enter our lives at times? I bet your heart skipped a beat when he said that to you. Congratulations. So saw the brother of the immunologist today. He's also an immunologist in the same office as Allie's. This was so easy! He said he read the report from Dr.L (she recommended 1gm/kg). But, he said, in reviewing the literature, he thinks that 1.5g/kg is the usual in the case of PANDAS. So, that's what he's ordering, over 2 days. I was all ready with my articles and information...didn't need it!
EAMom Posted April 26, 2010 Report Posted April 26, 2010 good job! I think you will see a difference at the dosage. I'm still scared- turning back the pages....there are many pages in this book that I don't want to read again! This guy wants us to do 2 of them a month apart, then check how its going. I think 2 a month apart is a great idea. I'd be great if there was a study that compared doing 2 a month apart (vs. just one).
peglem Posted April 26, 2010 Author Report Posted April 26, 2010 Isn't it odd how angels enter our lives at times? I bet your heart skipped a beat when he said that to you. Congratulations. It was pretty cool! At first, when I couldn't get her regular immuno, I thought, "oh, no! I'm never going to get somebody to change the dosage on another doctor's patient!" Then, I thought that maybe this was more than a fluke and we were meant to see someone else for a reason. I do believe in divine intervention and trying to let The Almighty steer the way!
dcmom Posted April 26, 2010 Report Posted April 26, 2010 Peg- I am so happy for you and Allie. I hope this is the answer for you. It is amazing how some docs make things so easy, and others, well....
bronxmom2 Posted April 27, 2010 Report Posted April 27, 2010 good job! I think you will see a difference at the dosage. I'm still scared- turning back the pages....there are many pages in this book that I don't want to read again! This guy wants us to do 2 of them a month apart, then check how its going. I think 2 a month apart is a great idea. I'd be great if there was a study that compared doing 2 a month apart (vs. just one). I believe Dr. B. is doing all his patients 1.5 mg every two months. He should be doing a study of the results!
melanie Posted April 27, 2010 Report Posted April 27, 2010 good job! I think you will see a difference at the dosage. I'm still scared- turning back the pages....there are many pages in this book that I don't want to read again! This guy wants us to do 2 of them a month apart, then check how its going. I think 2 a month apart is a great idea. I'd be great if there was a study that compared doing 2 a month apart (vs. just one). I believe Dr. B. is doing all his patients 1.5 mg every two months. He should be doing a study of the results! Ok Im jealous!!!How did you get this. YEA!! Did he say insurancce would pay?? Melanie
peglem Posted April 27, 2010 Author Report Posted April 27, 2010 good job! I think you will see a difference at the dosage. I'm still scared- turning back the pages....there are many pages in this book that I don't want to read again! This guy wants us to do 2 of them a month apart, then check how its going. I think 2 a month apart is a great idea. I'd be great if there was a study that compared doing 2 a month apart (vs. just one). I believe Dr. B. is doing all his patients 1.5 mg every two months. He should be doing a study of the results! Ok Im jealous!!!How did you get this. YEA!! Did he say insurancce would pay?? Melanie I'm assuming- insurance is already approved and paying for the dose she has been getting. What I described above- that's all there was to it....unless her pediatrician called him w/o my knowledge- which is possible- the guy seemed to know more about it than the original treating immuno.
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