madhu Posted March 10, 2010 Report Posted March 10, 2010 Hi, Could someone let me know what steroid and dosage does Dr K give to all his patients. I have an appointment this afternoon with son's DAN doc and would like to get a prescription to try. He just started having sudden increase in tics for the last 2 days. Thanks, Madhu.
Chemar Posted March 10, 2010 Report Posted March 10, 2010 madhu does your child have tics only related to the PANDAS infection(s)? or is there a chance that he has Tourette Syndrome? if he may have TS, do be careful about doing steroids as that can cause a spike in tics for people who have TS because of the effect on dopamine by the steroids just a caution I always put out as altho I know how very beneficial the steroids have been for many PANDAS kids, the TS alert does need to be mentioned just in case
madhu Posted March 10, 2010 Author Report Posted March 10, 2010 Thanks Chemar. My younger son is clearly a PANDAS kid because the symptoms started 3 weeks after a strep throat last year. I was very hesitant with IVIG and steroids too and waited this long. Thanks, madhu.
Doug Posted March 10, 2010 Report Posted March 10, 2010 I think you would need to have your doc call his office so he can tell him the right amount, but he is gone untill Monday
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